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Allergies and intolerances

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I'm going outside to bang my head against the brick wall, very, very slowly...

4 replies

tee4two · 14/01/2008 22:02

My ds3 is now 27 weeks, and after 6 months of struggle, trial and error etc,I have concluded that he is intolerant to dairy [with no help at all from HV or GP[or DP but thats another story! ]
Ive now got him on solids [gluten and milk free] which he wolfs down, and his vomiting has all but stopped and his poo is now firm and nicely formed after 5 months of slimy green smelly [full] nappies. Unfortunately he is still on Cow & Gate comfort formula, so would like to switch this.
My problem now is trying to get
a] a definite answer/diagnosis
b] some bloody advise
c] a suitable formula
We had a Paed appt last week, she said it sounds like he could be intolerant, although she couldnt understand why he couldnt tolerate breast milk??? When I asked what about changing his formula she said 'Yeah, you can give it a try..'
Today I took him to GP to discuss formula and somehow Ive come away with SMA LF cos 'we dont do formulas on prescription I dont think and anyway I got this for my ds after a bout of S&D left him lactose intolerant'
Plus after describing his symptoms i.e tummy pains, drawing legs up etc, he said 'all babies do this'
Do I have to get stroppy and actually demand a suitable formula, its not like Ive made the whole thing up

Buggering buggering bugger.

OP posts:
notsofarnow · 14/01/2008 22:12

what are they on about. If you were eating a dairy diet then that passes on to baby = making him ill.

i know this only because a friend had to have a dairy free diet because of the same problem. He is fine now btw and eats dairy.

tee4two · 14/01/2008 22:35

I know.
This from a female paediatrician who was about 7/8 months pg herself!
Its like I'm speaking in a foreign language most of the time.

OP posts:
wb · 15/01/2008 11:16

What you need - obviously- is a referral to someone who knows what they are talking about. Then you could get the exact problem (dairy allergy or lactose intolerance or gluten intolerance) pinpointed and get some proper help.

They do do formula on prescription - your GP can arrange this - if you have a helpful GP. Pepti is fine for most cases of dairy allergy, but not for lactose intolerance - then I think its neonate.

What I suggest (other than the head banging, theraputic though this is) is either go back to your GP or change them and get a referral to an allergy clinic, or failing that a paed specialising in allergies (I hope the one you saw doesn't claim to be this).

I found I had to tell my doctor what I wanted, rather than asking for advice but once I got specialist help things fell into place. If you can afford a private consultation, then this can speed the process.

Sorry you are going through this, the lack of knowledge and provision for allergy services across the country just makes me want to weep.

tee4two · 15/01/2008 11:39

Ive found myself sounding just like my mum "I know whats wrong, just give me the prescription pad and I'll write my own prescription!"

Ive phoned today to speak to a GP that I trust, but she is off sick, my HV is busy at the moment, the receptionist said to ring the hospital again and they would prescribe something.!
We had to do a stool sample last week, do you know if this will shed any light and then we can get somewhere?

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