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Allergies and intolerances

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See all MNHQ comments on this thread

This was anaphylaxis wasn’t it? Nuts.

222 replies

Mytortoiseisbetter · 10/06/2022 15:42

Ds2 (16) has always had hay fever/throat-clearing type symptoms ans the odd rash after food but last night something more serious happened.

he ate 4 Brazil nuts and a few minutes later his throat felt weird and his breathing became noisy. His eyes were red.

We happen to have a neighbour who is a local GP and he kindly came over. He got ds2 to take antihistamine. Then he got an inhaler, then a steroid inhaler. The throat cleared a bit and he sent ds2 to bed saying he should go to hospital if it didn’t settle. He said “we’d know by now” if it was going to be severe (he stayed with us for an hour)

I slept in the same room as ds2. Shortly after going to bed he got very agitated saying his heart felt like it was on fire. I thought it was a panic attack but then he threw up and after that it all subsided. He says his throat still feels a bit “cottony”.

I had assumed the vomiting was a response to the inhaler but Google tells me that vomiting and heart issues are actually part of anaphylaxis especially if food-related.

this morning I obviously called our own GP who ordered a RAST(?) test but that’s not till next Friday. She said normally you call 999 with any breathing issues.

I realised I’d failed to tel, her about the heart and vomiting to called back and gave a message to the receptionist.

dh is in complete denial saying “it could be nothing”.

it’s not though is it?

my neighbour has shown us where their epipen is (it went out of date in 2020).

Not sure what I’m really asking here. I guess a handhold? My older son had a life threatening emergency just a month ago requiring neurosurgery and I’m only just recovering from that!

OP posts:
Mytortoiseisbetter · 11/06/2022 09:38

Oh thank you catseye

OP posts:
Chanandlerbong1 · 11/06/2022 09:47

ABC - Airway, Breathing, Circulation. Quick assessment, if any of these are affected then call 999 absolutely.
Anaphylaxis can be difficult to spot as not everyone presents typically.

GnarlyOldGoatDude · 11/06/2022 12:10

Mytortoiseisbetter · 11/06/2022 09:26

All very well to say that Meg but the allergy consultants are not at my beck and call! and I need to make decisions about desperately needed holiday to France etc etc.

can a GP prescribe epipen on a suspicion of anaphylaxis? I’m struggling to see how we travel otherwise and like many people we have not had a family holiday since January 2020.

@Mytortoiseisbetter we are in an incredibly similar situation to you. DS12 had an out of the blue reaction to what we think was walnuts while abroad a few months ago, having previously eaten normally all his life.

GP (phone consult) when we got back told us we needed an epipen and we now have 2.

We are still waiting to hear back from the hospital- I phoned and we’ve been downgraded to a routine outpatient appointment, for which the wait is well over a year!!

We’ve actually just got back from a half term break in France and it was fine. I just made sure I carried antihistamines and the epipens with me at all times, and checked all meals/ foods for nuts. We also self catered a fair bit, and the supermarket food labelling is good.

Good luck with everything- this is a whole new world for us and it’s taking a lot of adjusting when life and eating has always been so carefree for us as a family before 💐

Mytortoiseisbetter · 11/06/2022 12:19

Oh thank you Gnarly. Very interesting to hear your story. That must have been awful with it happening abroad. Sounds like you got the. Epipen on suspicion? Hopefully we won’t get any resistance when we ask for the same on Monday morning.

I’ve booked a private appointment with paediatrician who deals with all the paediatric allergy cases locally - and from what you say about waiting times that was the right thing to do! - but it isn’t till 1st July.

OP posts:
Midlifemusings · 11/06/2022 12:30

I had a similar reaction to walnuts at one point - and they still make my throat swell up and very itchy. I ended up being told it was OAS and not a tree not allergy specifically however I got an Epipen immediately after the first incident and kept an active one for about ten years. Over that course of time, I haven't had another systemic reaction, only local reactions in my mouth and throat and so I no longer have an Epipen but I did get one immediately and kept it until I better understood my allergic reaction.

I would definitely get an Epipen and have your son keep it on him until you better understand what is happening.

GnarlyOldGoatDude · 11/06/2022 12:34

@Mytortoiseisbetter yes the epipen was the GP’s suggestion, not ours. Really hope yours does the same.

well done on the private allergy appt. We may end up going the same route. It angers me that you have to do that though; it’s so important. I’m NHS myself and well used to waits, but for something so potentially life-threatening, I’ve been really shocked.

Beccatheboo · 11/06/2022 13:23

This is a very interesting and informative thread. We are just waiting for results of an IGE specific blood test for my eldest son, after a previous blood test showed elevated IGE. I suspect he has severe hayfever but he also experiences stomach problems and we’re unsure if he’s allergic to certain foods.

After my youngest son had a reaction to walnuts, he had skin prick tests which identified he’s allergic to all grasses. The consultant mentioned about cross reactivity so he’s not actually allergic to walnuts. Over time, he now suffers from an itchy mouth and throat after eating other foods (ie melon and, weirdly, lettuce). Subsequently, he’s not keen on eating fresh fruit and vegetables and so doesn’t have the best of diets. He will actually eat strawberries and oranges, which I’d have thought might trigger him.

Sadly I’m to blame, as I suffered from severe hayfever as a child and am (mildly) asthmatic. I also have some undiagnosed food sensitivities (ie too much lactose and raw onions). My dad and brother are allergic to kiwi fruit and shellfish. Bloody allergies!

One other annoying thing to highlight is that you can’t get travel insurance if you are waiting to be diagnosed with an allergy - I’ve tried and failed for a major holiday next month 😡Unless I’m missing a trick?!

GnarlyOldGoatDude · 11/06/2022 13:29

@Beccatheboo oh!! I hadn’t thought about the travel insurance aspect at all! We have it through our bank so don’t take out a specific policy when we go away. But you’re quite right, I can see that would have implications 😨

GnarlyOldGoatDude · 11/06/2022 13:31

Although France would be covered by GHIC I guess?

Mytortoiseisbetter · 11/06/2022 14:36

Can’t get travel insurance????

OP posts:
Mytortoiseisbetter · 11/06/2022 14:37

What is GHIC?

OP posts:
GnarlyOldGoatDude · 11/06/2022 14:50

Mytortoiseisbetter · 11/06/2022 14:37

What is GHIC?

Global Health Insurance Card. The replacement for EHIC; it covers emergency care in Europe via a reciprocal arrangement with the NHS.

Doesn’t replace travel insurance and doesn’t cover repatriation, but does mean that you should be covered for emergency medical care in Europe.

Catseye109 · 11/06/2022 14:52

Re the travel insurance. Ring the insurer (if you already had it) as if the trip is already booked they may still cover.

I have travel insurance through my bank account (Barclays) and the only issue I have had is that when I rang them to disclose my nut allergy they asked if I had been hospitalised with it in the last 12 months (I had). They refused to cover for 12 months since the date of hospitalisation and after that it was fine. I argued the toss with them because I couldn’t see what additional risk there was but they wouldn’t budge.

I wouldn’t really mention the waiting to be diagnosed thing. I just rang them and said I had a nut allergy I can’t recall them asking if it had been officially diagnosed

MrsAvocet · 11/06/2022 14:58

Mytortoiseisbetter · 11/06/2022 14:36

Can’t get travel insurance????

My son has multiple food and environmental allergiescand I have never had any difficulty getting travel insurance, you just need to use one of the companies that specialises in pre existing conditions.I use goodtogo but there are plenty of others.

Midlifemusings · 11/06/2022 15:03

Beccatheboo · 11/06/2022 13:23

This is a very interesting and informative thread. We are just waiting for results of an IGE specific blood test for my eldest son, after a previous blood test showed elevated IGE. I suspect he has severe hayfever but he also experiences stomach problems and we’re unsure if he’s allergic to certain foods.

After my youngest son had a reaction to walnuts, he had skin prick tests which identified he’s allergic to all grasses. The consultant mentioned about cross reactivity so he’s not actually allergic to walnuts. Over time, he now suffers from an itchy mouth and throat after eating other foods (ie melon and, weirdly, lettuce). Subsequently, he’s not keen on eating fresh fruit and vegetables and so doesn’t have the best of diets. He will actually eat strawberries and oranges, which I’d have thought might trigger him.

Sadly I’m to blame, as I suffered from severe hayfever as a child and am (mildly) asthmatic. I also have some undiagnosed food sensitivities (ie too much lactose and raw onions). My dad and brother are allergic to kiwi fruit and shellfish. Bloody allergies!

One other annoying thing to highlight is that you can’t get travel insurance if you are waiting to be diagnosed with an allergy - I’ve tried and failed for a major holiday next month 😡Unless I’m missing a trick?!

This is what I have. If you look up oral allergy syndrome, you will see the specific fruits and vegetables and nuts associated with the different tree and grass pollens. I also can't eat much raw fruit (I can eat them cooked) but I can eat berries and bananas without a problem. There are quite a few raw veggies and nuts I also can't eat. Some give me worse reactions than others. Some just make my mouth itchy and raw feeling, others make my throat swell up.

BanditBluey · 11/06/2022 15:23

mackthepony · 10/06/2022 17:32

Are you sure the Brazil nuts aren't being confused with pecans?

Why would you say that? My mum has a nut allergy and the allergy test showed Brazil nuts as being the worst nuts for her, compared to eg almonds which give her an itchy throat. Luckily she's never tried Brazil nuts so we don't know how bad the reaction would be

Beccatheboo · 11/06/2022 16:46

Re. travel insurance - the problem is, he doesn’t have a diagnosed allergy at the moment and you have to declare if you are undergoing investigations… I really need to sort insurance and we don’t have existing cover. I’ve tried a couple of the insurers which specialise in pre-existing but they can’t help. I’m hoping the blood test results will be in soon!

Beccatheboo · 11/06/2022 16:47

Meant to add - thanks Midlifemusings

frogslegs1 · 11/06/2022 17:07

My son has exactly the same reaction to all the nuts he has tried. He has been to the allergy clinic at the hospital and has lots of testing over the years, his is not anaphylactix, he has the itchy throat, swelling of lips, indigestion type feeling (lots of burping) and vomits. On the last appointment she did say she was pretty sure it was Oral Allergy Syndrome due to all the nuts being in the same group as well as his reaction to nectarines,plum, apple and soya! He does have an epipen though as he is allergic to something else!

Mytortoiseisbetter · 11/06/2022 17:10

Same as my son frogs?

OP posts:
AvocadoParsnip · 11/06/2022 17:22

OP just to second all the people saying do not use an epipen unless your son cannot breathe at all. It is very dangerous. GP once told me that even when I was struggling to swallow and rasping for breath was not the time - the time was if my airways had actually closed, which they did not.

I have oral allergy syndrome, which is scary to experience (anything the food touches swells up, eg my throat and lips) but it's not actually anaphylaxis so I shouldn't need an epipen. I carry one as a precaution but I've never needed it. Reactions are usually managed by sitting calmly, quietly (to avoid heart racing/ exacerbating reaction), antihistamines as needed and drinking plenty of water to flush and dilute food through. Depending on the reaction it could go away (time taken varies) or I could have godawful stomach cramps and issues. The antihistamines make your mouth feel funny for a while after (IME).

You will be able to get insurance (I've never had a problem, nor has close family relative who has actual anaphylaxis allergies and is the reason why I was prescribed an epipen - theirs came on overnight to foods they'd had before so GP has always been cautious with me).

Holidaying is fine, just be super careful about reading packets and I tend not to believe people when they tell me there aren't nuts in things unless it'sreally obvious eg steak and chips; too many issues (including unadvertised peanuts in a salad🙄).

Feel free to PM me if you have any questions - been living with this for 20+ years.

AvocadoParsnip · 11/06/2022 17:24

Oh also reassure your son it is normal to have a "feeling of doom" when having a reaction, something to do with adrenaline I think, but doesn't really help with staying calm in the moment!

Yarnasaurus · 11/06/2022 17:56

Feeling of doom is linked to crashing BP which is a known sign of anaphylaxis.

Really good research article here addressing some of the myths around anaphylaxis (several having been posted on this thread):

www.ncbi.nlm.nih.gov/pmc/articles/PMC6317446/

Mytortoiseisbetter · 11/06/2022 18:02

Thank you Avocado but your GP's advice is I think not current thinking. The consultant allergy doctors who publish guidance all talk about using the epipen as quickly as possible.

See here from the BMJ.

Myth 4: ‘Epinephrine is dangerous’

Epinephrine given by intramuscular injection into the outer mid-thigh is very safe and starts to work within minutes. Epinephrine can either be injected using a needle–syringe (using 1:1000 epinephrine, which results in a lower volume, less painful injection than if using 1:10 000) or by autoinjector device (eg, Emerade, EpiPen, Jext). Where an autoinjector is used, note that both EpiPen and Jext are only available in 150 µg and 300 µg doses, which means that the 300 µg is effectively an underdose in someone over 30 kg (this may explain why some patients require a second epinephrine dose). Younger children should be transitioned to a 300 µg dose when their body weight is >25 kg, and some centres advocate doing so from 20 kg. Around 10%–20% of patients report transient effects including pallor, anxiety, palpitations, dizziness and headache (although these symptoms may also be due to the reaction and/or the patient’s own endogenous epinephrine production).

Epinephrine is underused in the treatment of anaphylaxis, both prehospital and in emergency departments.6 10 21 23 28 Further intramuscular doses of epinephrine should be administered in the event of persisting respiratory or cardiovascular symptoms. Epinephrine can and should be repeated after 5 min; the administration of other medication such as antihistamines or steroids must not cause delay or distraction, as these are not first-line (or even second-line) treatments for anaphylaxis24 (figure 2A). An alternative summary of anaphylaxis treatment, consistent with national and international guidelines, is shown in figure 2B.
Figure 2

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Figure 2

Acute management of anaphylaxis. (A) Current UK Resuscitation Council algorithm. (B) Suggested amended algorithm by the authors, which emphasises the need for further doses of intramuscular epinephrine in the event of ongoing anaphylaxis symptoms and incorporates a low-dose epinephrine infusion protocol used widely in Australia and Spain (with permission, from Brown SG, Emerg Med Australas. 2006;18:155–69).
Myth 5: ‘Antihistamines can be used to treat anaphylaxis initially; epinephrine is only needed if symptoms worsen’

Histamine is only one of many inflammatory mediators released during anaphylaxis. Oral antihistamines take around 30 min for onset of effect; intravenous chlorphenamine has a faster onset, but can cause hypotension. Antihistamines are not effective against anaphylaxis: their prophylactic use during controlled immunotherapy does not prevent anaphylaxis, and any apparent response during acute management of reactions is most likely due to the patient’s own endogenous epinephrine.29 Antihistamines have now been relegated to third-line therapy in international guidelines; their use is limited to the relief of cutaneous symptoms and should never delay the administration of epinephrine or fluid resuscitation during patient stabilisation.10
Myth 6: ‘Corticosteroids prevent delayed or biphasic reactions in anaphylaxis’

Historically, corticosteroids have been used to prevent protracted and biphasic reactions (the latter defined as a recurrence of symptoms within 72 hours of initial anaphylaxis, without re-exposure to the trigger). However, this has never been tested in a randomised clinical trial; more recent evidence has cast doubt over their efficacy.30 A recent systematic review and meta-analysis included 27 studies with 4114 anaphylaxis cases, of whom 192 (4.7%) had biphasic reactions.31 Steroid administration did not affect the likelihood of a late phase reaction (OR 1.52, 95% CI 0.96 to 2.43). In fact, there was a non-significant trend towards increased risk, although this is probably because steroid use was more common with severe reactions. Biphasic reactions were more common where hypotension was present at initial reaction (OR 2.18, 95% CI 1.14 to 4.15), but this is unusual in food-induced anaphylaxis. The median time to onset of biphasic symptoms was 11 (range 0.2–72) hours, that is, 50% of reactions occurred >11 hours after initial reaction. This is relevant because current guidance from the National Institute for Health and Care Excellence recommends patients over 16 years are observed for 6–12 hours after anaphylaxis (children under 16 should be admitted).32 In reality, it is generally accepted that prolonged observation may not be required following a straightforward reaction in someone who already has a comprehensive management plan and rescue medication (including epinephrine autoinjectors) in place.
Managing children at risk of anaphylaxis

Although research in ongoing into potential treatments for food allergy, the mainstay of management remains dietary avoidance and provision of a management plan/rescue medication in the event of accidental reactions.
Myth 7: ‘Only children who have had anaphylaxis need an epinephrine autoinjector’

Allergy skin prick tests and/or allergen-specific IgE blood tests do not predict reaction severity, and anaphylaxis can occur in patients with high, low and even negative tests. A recent European Consensus concluded that it is very difficult if not impossible to accurately predict who is at risk of severe anaphylaxis: a number of risk factors acting together are involved (figure 3).9
Figure 3

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Figure 3

Risk factors for severe reactions. Reproduced with permission from Dubois et al. 34 BHR, bronchial hyperresponsiveness; NSAID, non steroidal anti-inflamatory drugs; OIT, oral immunotherapy; EMS, emergency medical services.

Clearly someone with previous anaphylaxis is at risk of subsequent anaphylaxis. However, most children who present with anaphylaxis as their initial reaction do not experience further anaphylaxis. Ewan and Clark followed up 747 allergic children, of whom 220 had initial anaphylaxis to peanut/tree nuts; 25% had further accidental reactions over a median 3-year follow-up, with only one experiencing further anaphylaxis.33 Other studies report a higher rate of anaphylaxis in those with initial mild reactions. In a UK survey of 969 young people attending allergy clinics, 48% had experienced an accidental reaction in the previous year, with 245 (25%) having anaphylaxis.6 However, the occurrence of anaphylaxis is likely to depend on a number of factors, including dose or level of exposure34 (figure 3). In a unique study of 89 children with suspected peanut allergy, Wainstein et al demonstrated that up to 75% will have anaphylaxis if exposed to sufficient peanut at challenge.35 Thus, lack of prior anaphylaxis is more likely due to insufficient exposure rather than some inherent lack of predisposition. Importantly, there are no data indicating that allergic reactions get worse with each subsequent exposure. Nor is there any evidence to suggest that anaphylaxis risk ‘runs in the family’.

Various risk factors for severe anaphylaxis have been proposed, based on limited case series of fatal anaphylaxis. Interestingly, food-induced anaphylaxis is most common in the 0–5 age group, but death from anaphylaxis in this age group is rare.2 Teenagers and young adults appear to have an age-dependent predisposition towards severe outcomes, which cannot be easily explained by risk-taking behaviours.2 Asthma is considered a risk factor; however, in the UK Fatal Anaphylaxis Registry, 22% of cases did not have a prior diagnosis of asthma.2 Around 50% of children with food allergies have asthma: the vast majority will never have a severe allergic reaction, thus asthma has poor predictive value for severe reactions (although this does not negate the imperative to improve asthma control in food-allergic individuals as a means of reducing risk).9

Delays in treating with epinephrine are a risk factor for fatal outcome10 36: it is this, as well as our inability to predict severe reactions, which drives the provision of epinephrine autoinjectors. A summary of recent guidelines on who should be prescribed autoinjectors is summarised in table 1. Healthcare professionals must consider the patient/family preference: if prescription boosts patient confidence and allows them to lead a less restrictive life, then autoinjectors should be part of the management plan. However, this requires actual carriage: the autoinjectors need to be available at all times, otherwise prescription is pointless.

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Table 1

Factors to be considered as part of the risk assessment on whether to prescribe epinephrine autoinjectors

Controversy exists over the number of autoinjectors to be prescribed. The BSACI and ASCIA in general recommend one device (for school children, one device for home and a second for school, while in the USA, physicians will generally prescribe two devices).10 17 In 2014, following an extensive review of epinephrine autoinjectors prompted by a coronial inquest, the Medicines and Healthcare products Regulatory Agency (MHRA) issued guidance that individuals at risk of anaphylaxis should carry two epinephrine autoinjectors at all times due to ‘uncertainties about the site of drug delivery and the speed of epinephrine action within the body’, which, together with device misuse or malfunction, might result in a second dose being needed.37 The BSACI guidance (issued after the 2014 statement) recommends a single device on the basis that one dose is usually effective for most reactions. The MHRA recently reiterated its policy,38 in line with new Department of Health guidance for school children at risk of anaphylaxis39 The MHRA review also addressed a concern that in some individuals (predominantly adolescent and adult women), the needle length in some autoinjectors may be insufficient to deliver an intramuscular (rather than subcutaneous) injection, although data to inform this are limited. At the current time, prescribing practice remains divided among UK healthcare professionals.
Myth 8: ‘Epinephrine autoinjectors are overprescribed and overused in anaphylaxis’

Autoinjectors are underused to treat anaphylaxis in the community. In a study of infants aged 3–15 months with anaphylaxis (US definition), epinephrine was administered in under one-third, most commonly because the caregiver did not recognise the severity of reaction or the autoinjector was not available.40 In a UK study, only 16.7% of young people used an autoinjector to treat anaphylaxis, the most common reason being they did not recognise that the reaction needed treatment with epinephrine.6 A Scottish study among adolescents with previous anaphylaxis reported a number of barriers to the effective use of autoinjectors, including failure to recognise anaphylaxis, uncertainty and fear over how and when to use the autoinjector, and lack of carriage due to size/design.41 In the USA, these issues have led to some management plans (by FARE) offering the suggestion to use an epinephrine autoinjector for all reactions regardless of severity, but this remains controversial and is not accepted as standard practice among many healthcare professionals.42 It must be noted that anaphylaxis morbidity/mortality is no lower in the USA compared with UK and Australia where epinephrine is only recommended for reactions with respiratory or cardiovascular involvement36
Myth 9: ‘Prescription of an epinephrine autoinjector in isolation is life-saving’

Optimal management of food-allergic patients and treatment of anaphylaxis has many facets and is not limited to a prescription for an epinephrine autoinjector. Improving patient/carer knowledge on the recognition and treatment of anaphylaxis, and addressing the complex psychosocial dimensions of allergic emergencies, form the cornerstone of successful anaphylaxis management.6 41 One-third of fatalities in the UK occur despite timely epinephrine administration.20 Epinephrine autoinjectors potentially buy valuable minutes while an emergency medical response is summonsed. Such devices need to be prescribed as part of a comprehensive management plan, which includes advice on dietary avoidance and on when to administer epinephrine. Patients and their families need to be told to use their autoinjector in the event of any respiratory symptoms, where anaphylaxis might the cause, irrespective of severity. P

OP posts:
Spudina · 11/06/2022 18:04

This was an allergic reaction, not an anaphylaxis. Your son will not necessarily be eligible for an Epipen. My nephew is also no allergic to nuts but his allergy after skin tests was not deemed serious enough to warrant one.