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If you are coeliac and eat gluten ?
17

SevenandOnemore · 25/03/2022 20:19

What symptoms do you get and how long do they last ?

Dd has coeliac but I’m wondering if it’s due to accidental gluten as to why she has symptoms but unsure

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IamMydaughtersMum · 25/03/2022 20:43

If she's coeliacs she shouldn't be eating gluten as will cause long term damage

Vomiting and diahorrea are what I get

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Iwantthesummersun · 25/03/2022 20:45

Accidental glutening always needs to be considered doesn’t it? My daughter would have terribly cramps, very smelly wind and become exhausted. The pain itself lasts a good few hours but the other symptoms take longer to settle.

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pastabest · 25/03/2022 20:48

There really isn't a standard reaction to being glutened. I have 3 coeliac family members and they all react very differently.

Common causes of accidental cross contamination:

Communal toasters
Communal butter
Communal pots, pans and oven trays
Using the same spoon to stir gluten/non gluten items on the cooker
Drinks containing barley malt extract (lots of fruit juices and cheap colas do)
Cadburys chocolate
Quite a few sweets
Crumbs from others nearby
A incorrect belief that deep frying 'kills the gluten'

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choosername1234 · 25/03/2022 20:52

My mum gets bloating, farts, pain and extreme tiredness

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canyoubelievethat · 25/03/2022 20:55

I have coeliac disease and I accidentally got glutened this week by some barley malt extract. I had very painful sharp stomach cramps, followed by 2 days of diarrhoea and a 2 day migraine. After that I seem to have been fine so far.

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JaninaDuszejko · 25/03/2022 20:59

Most people with coeliac disease can control it with diet but an unlucky small percentage still get inflamation even with a gluten free diet. How old is your DD? Discuss with her consultant next time you see them.

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SevenandOnemore · 25/03/2022 21:15

@IamMydaughtersMum

If she's coeliacs she shouldn't be eating gluten as will cause long term damage

Vomiting and diahorrea are what I get

She hasn’t had any for years we’ve been so careful but twice recently had it by accident so I think this is what’s causing her pain and symptoms but
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SevenandOnemore · 25/03/2022 21:17

Sorry posted too soon

But I just feel it’s lingering a bit and I was worried so wondered how others are when they have gluten by mistake

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ffscovid · 25/03/2022 21:28

Raging trots for a day or so and a bit of tummy pain / brain fog for another couple of days. Bloating / savage farts can last a few days too.

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hunder · 29/03/2022 07:30

DS2 would be violently sick 2 hours after consuming gluten, then would sleep for a few hours. Is generally fine 5/6 hours later.
DS1 would get brain fog, stomach cramps and almost feel like he was getting flu. Lasts a day or 2.
DH doesn't get gastric symptoms, but slips into an almost mini depression for 2/3 days.
All very different.

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ParisNext · 29/03/2022 07:37

My dd has emotional symptoms before her stomach hurts. She is upset/tantrum/anxiety/hollow eyes basically as though sickening for something. Then her stomach hurts. The emotional symptoms can last for 2 weeks or so.
I wrote on a post yesterday to be careful about barley malt in all types of easter chocolates that’s not normally there. They use it to help shape the sweets or eggs and it’s a nightmare. My dd was recently glutened by cheese tortilla crisps that had no gluten on the packet but clearly did gluten her. When this happens to us we go back to strict basics with only naturally gluten free foods etc until it passes.

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FrenchyQ · 29/03/2022 07:41

My husband gets stomach cramps, hot flushes and explosive diarrhea. It normally passes in a few hours with him.

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NeverDropYourMooncup · 29/03/2022 08:30

Is she having 'gluten free' oats? Oats have a similar protein that some of us can't touch either. And she could be lactose intolerant.

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BearPear · 29/03/2022 08:35

My daughter was asymptomatic and diagnosed after a raft of tests at age 3 after “failing to thrive”. As an adult she gets bloating if accidentally glutened, or when she was at college and let loose on her own and eating more gluten she was incredibly fatigued.

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Mumski45 · 29/03/2022 08:50

I get a reaction within 2 hours. I feel it coming and have about 20m notice before my stomach spends the next 3 hours violently and painfully ridding itself of the offending ingredients until there is absolutely nothing left to bring back. It is horrible and I feel totally trapped as there is nothing I can do except ride it out. After that I sleep and will feel ok the next day.

Not sure about the long term consequences and apologies for being a bit graphic.

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katekt · 17/05/2022 23:54

Agreed on your points!
some good consistent Gluten Free products I’ve found are;
Bread
Sacala Pasta & Sauces
Gluten free sweet selection
hope this helps

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Namenic · 18/05/2022 00:49

Long term exposure can have v serious consequences. Probably best to discuss with GP (or ask for referral to specialist). Perhaps they can give tips on how to investigate accidental gluten ingestion. a food/cooking diary may help (recording what cooked when and seeing if there is any correlation with symptoms)?

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