Hi first post
(also sorry, I'm not pregnant but folic acid is talked about alot here and I'm desperate to see if others have the same problem).
I don't know the correct term as there's next to nothing I can find on it through researching regularly for the past year and a half so need to see if any people have had it and if they found out what it's called or if others believed them.
I have a severe intolerance to synthetic folic acid. I was prescribed folic acid after bloods came back as my foliate levels were so low. Long story short between an incompetent doctor ignoring my repeated concerns over increasing symptoms over months, being referred to neuropathy specialists and put on max dose of pregablin, still being ignored, switching doctors, suicide attempt, stopping all meds which put me into a week long withdrawal unable to eat and barely drink with fever and delirium... Slowly taking medications again one by one but not foloc acid, start to get almost 100% normal and then I stupidly take another tablet and less then 24 hours later I'm back to full blown symptoms and it takes over a month to go back to normal.
Again in short, folic acid affects my nerves in my skin. Mostly in my hands, arms, feet, face and neck and when at its worse affects all my skin. I become overstimulated by any friction/movement on my skin and when something should feel soft like stroking my dog it feels more like I'm stroking sandpaper. It's not painful but it causes me to cringe uncontrollably. It got so bad that laying still all day trying not to move whilst wearing the softest tight fitting clothes so it moves less and dulls some sensation including gloves during heatwaves in summer would have me crying because I couldn't hold my bladder any longer and needed to pee and the act of getting up, walking to the bathroom, pulling my trousers and underwear off and then gloves and then having to touch toilet roll then do all those in reverse so I can get back on my silk sheets and enduring the sensation of still touching things for the next hour made me want to end it all as I became tolerant to meds to numb me and so I got no break from the torture.
Through trial and error I figured it out and even though I had spent over 6 months symptom free it's traumatised me with alot of sensations and textures (had to throw away anything canvas, never could go back to normal cotten sheets).
I noticed my hands getting a bit more sensitive and thought it may be just I my head until I had to start wearing gloves, I was kicking myself thinking how it could have got in my system and then I remembered a thread about folic acid being added to bread like it is in cereal recently but didn't click because I've only recently started eating cereal (eating issues made me avoid certain foods for years) and had just finished a box of crunchy nut.. I check the box and what ensues is alot of swearing and death threats to boxes of cereals at my local asda... Suffice to say my OH was mildly surprised and amused at me saying when I next had money I would karate kick boxes of cereal and then pay for the damage, and then very understanding of why I was so annoyed.
So any experiences you or someone else has had is massively appreciated.
And any cereal that isn't fortified with folic acid also appreciated.