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Allergies and intolerances

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8years old with multiple allergies

13 replies

KasiaMatter · 17/04/2019 23:36

Hello mums,

I am looking for any support related to kids with multiple allergies.
Our son is 8 years old and suffers from multiple allergies (wheat, diary, nuts, some trees and grass etc).
We are struggling with feeding him as he is also having a phobia of trying new food. He eats this same kind of food for the last 5 years and it doesn’t look like he is going to change that.

I was wondering if there are any parents who struggle with kids with allergies but also with very very selective eating ...

I’m feeling hopeless as our son is getting more and more anxious about eating.

Thank you

OP posts:
nanbread · 20/04/2019 10:52

That sounds really hard. What are the symptoms of his allergies eg are they iGE?

Have you looked into gut and liver healing in relation to (multiple) allergies? Are you confident you have established all his allergic foods? How's his overall health? Are you having regular skin prick tests - if yes I recommend you look at new research suggesting they can worsen / lengthen allergies.

Snowjive2 · 20/04/2019 17:50

We had similar with DS2. I think as he realised the seriousness of his food allergies, a general anxiety around food developed. In children with food allergies, this is not fussiness, it’s entirely understandable. At around age 9-10, he was eating little. He grew out of it in a couple of years, thank goodness, but we had to stay calm for him - we just kept offering new, safe foods at home and didn’t make a fuss if he didn’t want them.
Have a look at the Anaphylaxis Campaign website. There’s lots of support and good ideas there.

KasiaMatter · 20/04/2019 20:36

Thank you both for your response.

Dear nanbread, yes, we know how he would react to allergic food (mostly rash, difficulty with breathing but we never had to use epipen as he is so anxious about the food he wouldn’t touch.

His food is limited to plain rice, gluten free pasta, soya drinks and yogurts and potato products... lucky him he eats lots of fruits!

I just don’t know what to do to convince him to try different safe foods.

Snowjive2 how did you manage to keep calm over all these years?
Can you please tell me more about your kid, when and how did he start being more interested in trying new foods?

OP posts:
KasiaMatter · 20/04/2019 20:43

We do prick tests every year, and they always come back worse than before.
We even tried a wheat challenge ( I was very surprised when my son said he really wanted to do this as I was less keen) and it didn’t go right.

We ended up with sickness and stomach pains, and doses of antihistamines.

What I worry about is his emotional side, I can see how it influences his social life, parties and holidays.
He would choose to starve than have something new to eat.

I don’t know what to do to fight his fears

OP posts:
Snowjive2 · 21/04/2019 04:25

Kasia, DS was like that - would rather go hungry than take the risk of irritated lips/mouth, constant vomiting and the knowledge that those symptoms might develop into something much worse (anaphylaxis). It’s pretty logical, when you think about it from their point of view I was worried sick at the time, as you are, and felt that I was failing him. What got us through it was taking the pressure right off. My anxiety was reinforcing DS’s anxiety, so I had to force myself to calm right down.
I just focussed on making sure he got enough calories, vitamins and minerals, and didn’t worry about the form he got them in. So pasta twice a day if that’s all he would eat for lunch and dinner, but healthy fats and vitamins via the sauces (hide vegetables and chicken/mince by blending into a tomato-based sauce). It’s It great that your son will eat fruit - lots of that, preferably fresh but also in fresh smoothies. Unlike your DS, he could eat wheat and dairy but not fish, eggs, tree nuts and some pulses (chickpea, peanut, green peas) so making sure he got enough protein was tricky. Chicken featured heavily in his diet but it couldn’t be on the bone (he reacted) so lean fillets only. A chewy multi-vitamin every day. Safe biscuits and sweets, if we could find or make them, and he wanted them - I didn’t limit them. Variety was not so important as adequate nutrition, and peace of mind for DS.
It took about 2-3 years, I think. DS got older and understood his allergies better - didn’t feel so helpless and overwhelmed. Compared to children without food allergies he still has a restricted and rather repetitive diet, but that’s allergies for you. He got into sport, so realised that he needs food. He’s now grown up - tall, fit and strong.
I do understand your worry about social situations. It is sad when they can’t eat what their friends are eating, and awkward that they always need additional precautions. But that’s becoming less of a deal these days, as people (slowly) become better informed about allergies. What I found was that DS’s friends were often more aware than their parents - I always called/emailed parents before playdates/parties to explain about allergies and offer to send DS with food that he could eat, and the patents would tell me they already knew as their kids had warned them that DS couldn’t eat X, Y and Z so they needed to get something nice that he could eat! Not always, I admit, and I did worry that DS maybe didn’t get invited to as many things as he would have if there had not been the allergies to cater for. It is a worry for parents of non-allergic kids who fear they may end up inadvertently causing serious illness. It was necessary to do a big reassurance number on them too - email/call in advance, clear instructions about safe foods (and not to worry if he “isn’t hungry”), where the antihistamines/epipen were and when to use them, my or his dad’s mobile number and that we’d be round the corner in case of any concern. Unfortunately it is necessary to be a bit of a helicopter parent, but the main thing is not to let DS know too much about that. Despite all of that, he would often come home from play dates/parties not having eaten. We just fed him extra at home with what he would eat. Residential trips with school were more of the same. I bombarded the teachers and centre with info, sent DS with a load of snacks that he would eat and reconciled myself to the fact that he would eat the same thing every day or not very much. I made sure that his favourite/familiar foods were available in quantity when he got home.
Sorry this is a long post, but I really understand where you’re coming from and I feel for you. I think that people with several serious food allergies can never have the same relationship with food that the rest of us do - I don’t think DS will ever see food as a great pleasure. Looking on the bright side, however, he’s unlikely to turn to it for emotional support, which is probably a good thing.

canteatcustard · 24/04/2019 16:06

you have had some excellent advice . All I can add is that this is sort of the peak age when they realise what allergies mean, esp if your a multiple allergic person.
I would avoid pushing to try new food , but let him learn and feel more in control, in a positive way about his allergies.
This was one of the reasons I let my son carry his own meds in a bag outside school from age 7.

I would also suggest that you get him cooking, shopping , reading labels, and verbally explain why he wouldnt eat something. esp if you consider it a safe choice. Again dont push to eat anything, leave it up to him to think over. Sometimes its good to verbalise what your concerns are in your head iyswim.
I would also keep up some after school fun or interests that he enjoys, and underscore that allergies do not impact everything in life iyswim.
Some positive confidence building in other areas does improve general mental health and may lesson the stress impact of allergies.
For my son his interest was in playing for local football team.
We also brought our kids up to use knives and prepare veg for dinner, or ask them if they wanted to cook something they wanted to eat, which for our son was shepherds pie. < not my fav.>

This is a long term plan to keep things positive, upbeat and avoid the constant worry over calorie intake. You worry as his parent, but dont let him.

KasiaMatter · 06/05/2019 13:17

Thank you so much for your reply!

I find them very reassuring and helpful. That's what I am planning to do, be more focused on my son's activities and achievements to help him build his self esteem and confidence.
Maybe one day he will break his fears...
I have found some supporting groups for families dealing with allergic children's problem so we will give it a go.

At least he won't feel like he is the only one :)

It is very important not to let him feel my worries, I agree!

Thanks ever so much x

OP posts:
SunInTheSkyYouKnowHowIFeel · 14/05/2019 21:04

Bit late to your thread but I have a 6 year old boy just like this. Its nice to know im not the only one. He's got multiple allergies and very very fussy, as in eats the same few foods all the time. Its hard enough having multiple allergies but having a fussy eater as well is so so hard. Hoping like some of the posters above things get easier as he gets older and understands the need for food and varied diet.
Do you mind me asking you what support you've found? I'd love to go to a local group or something but not seen anything in my area (South Coast).

Cappucinoextrachocolate · 15/05/2019 09:36

DS, also 8, has several food allergies as well. With food, I think it's a phase they go through, as my DS is also getting more and more anxious and refuses to try new things. He had anaphylaxis to hazelnuts 2 years ago and since then he has been extremely cautious. I try to see it from his point of view, how willing would I be to try new things if new things made me ill in the past? I always stay at parties, although in a corner and don't hover, because I have his Epipens. I have no advice I'm afraid, as I am struggling with this myself at the moment. As a PP said, I try to empower him, show him the labels, get him to ask for the allergy folder when we go out (same 3-4 places). He is luckily not airborne so we do go on holiday abroad and try to do lots of things which don't involve food. I realised that for my son not knowing is the worst, for example this year his allergy to lupin was confirmed, and this got him very anxious because he didn't know what lupin looks like and what it can be in. I explained about it, showed him a few labels where it was declared, and this seems to have helped.

I am also interested in the support groups, if you don't mind sharing (South East).

NeverTwerkNaked · 25/05/2019 15:55

My son's allergy clinic referred him to a specialist psychologist when he was 5 as he was so wary of food. She pointed out it isn't an irrational fear it is actually very logical.
We moved on to rewarding him for even touching food or putting it too his lips. Lots of praise and reassurance.

The other thing we did was have lots of tapas style meals with lots of tempting but safe food on the table and every now and then he would get curious and ask to try something.

I think the psychologist really helped.

KasiaMatter · 09/08/2019 20:14

Hi all, it’s been a while...
I have found some group in Greenwich Library but still didn’t manage to go there and take a part of it. I have heard that you can meet up with parents and their children suffering allergies or food phobias and talk through your struggles.
We have been on holiday recently and the only think which my son changed in his diet was the way of eating a sandwich 😉. Before he had to have everything separated on the plate and this time he managed to make a real sandwich out of his bread and ham and cucumber.
Apart from that, everything remains this same. It is so hard as I realise that one day the food he is eating won’t be enough.
The other thing which is worrying me is that he is gonna change his school as we are moving a house.
It is getting harder and harder for him to accept his allergies and talking about it makes him more and more anxious.
Do you have any ideas how to make it easier for him please? I’m already panicking, please help!

OP posts:
CelineDavid · 24/10/2019 15:52

My son has multiple allergies also. He had the IGE test and he is allergic to dust mite, dander, house dust, cockroach, dairy products, most seafoods, cacao, corn, peanuts, gluten, eggs, penicillin, you name it!

It made me crazy. At first I was very strict with what he ate, but after a year, I realized being very strict made him even more sensitive. So what I did was I slowly introduced some allergens into his diet and observed what would happen. Now he doesn't have as many allergic reactions as before. He used to have rashes on his arms or face.

But I suggest you avoid medicine allergens completely. For airborne allergens, air purifiers are great at minimizing them. Just make sure you clean your home regularly and use www.airhonest.com/hepa-filters-explained/air purifiers with HEPA filter.

canteatcustard · 25/10/2019 18:52

I would never avoid prescribed medication for allergies, that is not going to work for many people with multiple allergies.
Even with hepra filters, air purifiers , bedding etc my two allergic children would never have coped and son in particular needed every medication going with the above, just to get through spring.

Daily, nightly antihistamine was needed for him as he had ALL environmental allergies and could never avoid total exposure. for instance highest exposure to cat and dog dander was in school corridors from the coats and jumpers from other pupils.
Sons dog allergy was considered life threatening for a few years. So medication was needed.
There is also no need to avoid food to which you are not allergic even if its considered an allergen. life is difficult enough with the confirmed allergies.

During childhood allergies change, some outgrow and some remain, but tend to present differently for instance less hives, but have the other symptoms.

A positive aspect about allergies is that its common foods that are a problem, so for instance my son could enjoy fish, like squid or snails in france. Not that he wanted to try as a child, but did as a teen/ adult!

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