New to intolerances way of life

[YearOfYouRemember]

Feeling overwhelmed due to the appointment, dh thinking its nonsense and friend thinking I am gullible to believe what the practitioner has told me. Plus dd has been ill and I think I've got it too.

Food wise I've been given a list of nearly thirty foods I'm intolerant too. I had cut out one thing and after a few weeks my symptoms were hugely eased then I ate it and symptoms were soon back, so not a surprise that I am intolerant to it.

As of tomorrow I am going to miss as much as I can then slowly try once symptoms have eased /gone as it does say don't cut the food items out completely. Could just use some friendly support and tips. TIA.

Who has given you the list OP? 30 foods is a huge amount, I struggle to avoid just dairy.

The only thing that would make me question what you’ve been told is that the term intolerance hasn’t really been used for a while by the medical profession. It’s either IGE allergy or non-IGE allergy.

Intolerance is my word and I saw an homeopath and allergy practitioner.

Personally I wouldn’t cut out any foods without takking to my GP first. I did some reading when I realised that I am allergic to dairy and everything I read said to consult the GP first.

Sorry to hear you’re feeling overwhelmed.

Please ignore this homeopath, such practioners are not able to properly diagnose allergy regardless of what they decide to call themselves. Go see your GP for proper tests if you think you’re having a reaction to some foods. What symptoms are you having?

I'm not cutting the foods out completely. I'm just doing what I need to do to get rid of the symptoms (bloating, loose stools, bad stomach pains, wind) then I will try each food.

I've seen the GP. Had blood tests but not sure I ate enough for long enough and she's said I'm border line celiac.

It's very hard when people are dismissive at things already done. I've been ill for years. I had to try something new. If I'm being tricked then it's only my wallet hurt.

If you are borderline coeliac, could you deal with it as though you have a Coeliac diagnosis and follow the advice for that?

I would have to read up then as I'm not confident I fully understand it. Thank you.

The other alternative is to eat everything, including gluten for a few weeks then go to the GP and ask for retesting for Coeliac.

Right now I couldn't face doing that as I'm suffering and don't want to make my symptoms worse. I'm going to carry on with current plan and if that doesn't resolve anything I'll do your suggestion.

It would be better to get the tests done now - when you are suffering - so that they have a chance of being accurate. I’m not sure what the term borderline coeliac is supposed to mean - sounds like you are coeliac, then. It’s not a spectrum diagnosis.

But if you are coeliac it’s in your own interests to be properly diagnosed and followed up by the Hospital. Coeliac is an autoimmune condition and is associated with other auto-immune conditions

If you go ahead and miss out gluten now then your intestine will heal and tests for coeliac could turn negative. Then you’ll end up having to eat gluten again for weeks just to try and get a positive test. Your pain will return and possibly be worse because our bodies seem even more sensitive to an intolerance food once we miss it out for a while.

I would recommend going to your GP, and not a high street practioner. They can possibly refer you to a dietician - and you could properly look at the FODMAPs diet.

Totally agree with Tallula OP. I’d see your GP tomorrow.

I don't know what you mean by a high street practitioner. I saw someone at a clinic recommended by someone I see for other treatment.

I accept I need to find out a lot more about things with what you've all kindly advised me. I just know I feel so much better without the pain, wind, etc and I've lost 10lbs since I stopped eating wheat in July and 3lbs since I started my new plan since Thursday. However, life without proper toast would be pretty sad so I need to do something but I am not cutting out everything for ever, that's not the advice.