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Allergies and intolerances

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Nut allergy but drs won't prescribe Epi pen

1 reply

OompaLump · 30/05/2018 21:06

Son has been ill since December and I finallly figured out it was down to allergies after being fobbed off for months by drs.
Was tested for allergies and scored extremely high for dust, grass and tree pollen and was told a score of 6
Asked for food allergy test and after much deliberation from the drs son scored a 4 for hazelnut and 3 for peanut and almonds.
How bad is a score of 4 for nuts and would you think a epi pen is needed?
I was told until son has collapsed then epi pens aren't prescribed which i find disgusting as he could have a reaction and it kill him and the wait and see approach rather than just in case approach is dangerous.

As a coincidence whilst in the chemist a lady was querying why her prescription only had 2 epi pens and the chemist had to explain that the NHS are restricting how many are put on prescription now and no more than 2 can be on prescription.
I know the NHS has to budget but I find it disgusting something like epi pens are so hard to get a dr to prescribe.
Going off a score off 4 would you expect a epi pen? And how careful do I have to be around nuts , obviously don't have my son eat them but is a 4 bad enough that a trace of nuts could really hurt him?

OP posts:
triballeader · 30/05/2018 22:38

My youngest son presented at BCH's A&E age 10 weeks. His skin had reacted violently [went deep burnt red head to foot that started to peel, hives [raised very itchy lumps & blisters round his mouth and nose] to a lady sat eating a nutty cake confection next us in a cafe. He was refe'd for food challenge allergy testing and the pead' dieticians. His blood was tested and his IgE count was not simply high it was through the roof to the point I was asked if I had recently taken him to a tropical climate and if there was any chance he could have picked up a very rare infection there. I had to keep a very strict food diary of what I ate against how he reacted. It took time to track down the offending proteins. He had a severe allergy to cows milk, legumes [peanuts and all], nuts, fish and eggs. Try breastfeeding with none of those in your diet. His fave scary trick was to react from skin contact. After his third severe reaction needing A&E and a heap of anti-histimenes, fluids and steroids we were taught infant CPR and handed epi-pens as well as a hospital pharamacy milk replacer. Any re-introduction of a food group had to be done in hospital with a planned food challenge test with the crash team on call. Not fun for him or us. None of my sons allergy testing was skin prick based as his was clearly an internal anapylactic response. His was blood IgE readings indicating his immune system had gone trigger happy. These were taken frequently until he reached 7 when his immune system began to settle back down. He spent five years on a hospital supervised total exclusion diet of 7 single foods and the rare teeny piece of Kinnerton 'Just' for Easter. It was his medical history of severe reactions that gained him epi-pens for home and epi-pens and training on how to use them from the pead' district nurses for any where else he might stay. Severe nut allergy is not fun to live with an manage as almost everything 'may contain traces of nuts' and should be diagnosed by a peaditrician with an interest in allergies and supervised by a peadiatric dietician.

If your child's reaction does become severe and life threatening and needs A&E that is the time to ask about epi-pens. If your son was severely reactive [anaphylaxis] to nuts - I hate to say this- you would have certainly noticed by now because nut oils are used in soaps, shampoos, cleaning products, in food grade oil for machines, traces left behind on food counters and tables and on and on and on.........

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