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Allergies and intolerances

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used an epipen for the first time today

31 replies

tatt · 13/11/2006 20:52

and my child is fine even though I messed it up and didn't hold it there long enough. They couldn't talk and were really frightened but were fine again within minutes.

Worst thing is that we hadn't had any food with nut warnings on it so they probably are allergic to something else. More allergy testing to be arranged

OP posts:
VeniVidiVickiQV · 13/11/2006 20:53

How scary

Well done though. I am dreading ever needing to use DD's.

HonorMatopoeia · 13/11/2006 20:55

Good on you, I've got a girl in my class who needs one for a nut alergy and the training I got on the pen petrified me (I'm scared I'm going to need it when I haven't got it close to hand). Glad Dc is fine, sorry to hear about more allergy testing, never fun

tatt · 13/11/2006 21:07

we've lived with this for years now and haven't had even a little tickle of a reaction for about 3 years. Then we get a full blown reaction. I felt like crying afterwards but at the time you just have to be calm and get on with it.

And at least now I now they are much easier to use that the practice pens. I'd been told that and I'd practised with an out of date pen on an orange but it all goes out of your head when you're scared.

HonorMatopoeia ask the parents or school nurse if they have a practise pen. I wish I'd used ours recently.

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BumMum · 13/11/2006 21:55

Bloody Hell tatt... how scary... did the epi pen hurt your Child?
Glad they alright after..

tatt · 13/11/2006 22:54

well the needle area was a bit sore for about 3 hours but not enough to stop them doing things. There was a red mark there at first and a little dot now. It was great when they were able to say "you forgot to rub it".

We'd tried to get away with piriton as there shouldn't have been any nut in the food. The deterioration was too rapid to leave any doubt about using the pen. It worked quite quickly and there was no secondary reaction. I'd use it quicker next time. It's almost scarier braving the receptionist to get a replacement.

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mymama · 14/11/2006 03:10

omg!! What was the food involved tatt? Any chance there was nut contamination?

Glad I have read this thread as I have become a little complacent with ds and "risking" some food that are higher risk for nut traces.

Sure your child is fine now, but how are you?

brimfull · 14/11/2006 08:18

gosh,ditto mymama,I've been getting complacent with ds aswell.
I find the trainer pens nothing like the real thing.The real ones pack quite a punch .The teacher at ds's nursery accidently held it upside down and injected her thumbIt got stuck in the bone ..ouch.She was practicing with an out of date pen.

Glad it worked tatt,what symptoms did they show?

moondog · 14/11/2006 08:20

God how scary!
Hope you've calmed down a bit now.
I'm sure the first time is the worst.

Bozza · 14/11/2006 08:32

I had a friend of DS's round for tea last night who has a nut allergy. While they were eating their carefully vetted tea (ham sandwiches with carrot, cucumber, cherry toms, grapes, satsuma segments and pringles, followed by choice of homemade cake or yoghurt) I asked him about his allergy. He says he has an epipen but they don't have one at school they just ring his Mum. But his Mum works in the nearest big town and doesn't drive, so I was a bit surprised. Although since when he was in my care at home in the next street I wasn't too concerned.

Tatt sorry for the hijack and so glad that the reaction was controlled so well. Although I can understand it is worrying wondering about the trigger.

tatt · 14/11/2006 09:48

talking about it helps. Obviously you can't show anything in front of your child and I did feel quite tearful afterwards. No matter how careful you are there's always a contamination risk/ risk they'll develop another allergy.

Bozza I'm sorry but an epipen which is not with the child is no use at all. You really ought to talk to the child's mother. It may be that the risk to the child is small but with nut allergy you can't really tell. I told my friend I wouldn't take her asthmatic child out with me without her inhaler, in your place I'd ask for the epipen.

Symptoms - tickle in throat. We've had that before several times and a bit of antihistamine usually deals with it. So it was out with the piriton and 5ml straight down. Didn't like the way she looked - hard to say what but it was like her first bad reaction - so another 5ml followed. She started to look very distressed but kept insisting she was fine and just hot. She was going quite pink. Then she stopped talking, I said you can't talk can you and she shook her head. Her breathing became quite obvious - slow, laboured - and she looked really frightened. So I used the epipen. She moved slightly to make it easier. That shows how worried she was as she hates the idea of using it normally. Within minutes her colour was back to normal and she was telling me I'd forgotten to rub it.

The food was a ready meal of baked beans and nuggets - a rare treat for her as we don't normally have prepared food. I've phoned the manufacturers help line to ask about nut contamination, they're going to phone me back but the initial reaction was that they thought the factory was nut free. If it was nut contamination there's a small possibility it was from something like her school books (they sell nuts at her school now). It may have been another allergen, like soya, which is why I'm arranging more allergy testing.

She's gone off to the school with a note about the sale of nuts there. We can't just phone the hospital as it's so long since she's been seen. Keep in touch with your consultants, people, so you don't have to join those long waiting lists again. I see our gp later this morning to ask for a new referral. I have the telephone number of the nearest paediatric allergy specialist seeing private patients for a private referral if I can't get an NHS one.

We'd become complacent because we'd had several years without any type of reaction. It was a reminder that we can't afford to be and brought back all those fears I had when she was first diagnosed. Tomorrow I expect I'll have it back in perspective. The pen worked, even if I didn't do it quite right. We had a back up epipen if I'd needed to do it again. It was probably useful in making us more careful again. But right now I just want to wrap her up at home and keep her safe.

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Mell2 · 14/11/2006 09:50

How scary Tatt. I have a trainer pen but that's a good idea about practising with an out of date one.

How do they differ from the trainer one and do you mean you should have left the pen in longer?

Hope you find out soon what they were allergic to. It's a nightmare isn't it.

Know exactly what you mean about braving the receptionist

katierocket · 14/11/2006 09:51

Oh Tatt you poor thing - how frightening. Sounds like you reacted perfectly. How old is she?

brimfull · 14/11/2006 14:03

oh tatt your description of the symptoms made me well up at the thought of how frightening that must have been .We've had some hairy moments with ds aswell.

gigwig · 14/11/2006 20:08

oh really sorry to read this Tatt, hope you and your daughter are feeling better now about it all.

chlochlo · 14/11/2006 20:23

Thats awful had to use our Epipen on ds last year and its nothing like the training pen i stabbed myself when i pulled the needle out. Glad it is a happy ending (well sort of)

Mell2 · 15/11/2006 10:01

I'm a bit worried that people are saying that the trainer pen is nothing like the real one.

Will definitely practise on an out of date one.

brimfull · 15/11/2006 10:03

yes I'd recommend that mel.The trainer pen lacks the physical punch the real one gives.The superviser at ds's nursery was amazed !Be careful though dh got stabbed trying to put the cover back on.

Mell2 · 15/11/2006 10:07

Just got rid of the last out of date ones! Will have to wait till August now.

It sounds really scary. This thread has just brought it home to me that we have to be on our toes all the time!

Smithagain · 15/11/2006 10:43

Mell2 - you have to leave the pen in for a slow count of ten. That's how long it takes for the adrenaline to be injected properly. Otherwise it dribbles out. If I ever have to use one, it is my worst nightmare that I might forget to hold it in for long enough and waste the precious stuff.

Mell2 · 15/11/2006 10:56

Thanks for that Smithagain. I'm sure i knew that but all i could remember was massaging the area afterwards.

Hopefully that is firmly in my brain now!

tatt · 15/11/2006 14:41

yes I didn't remember to count to 10. However as nothing seemed to dribble out maybe I held it there longer than I thought. We keep a cork with the ones in bum bag/ school first aid box but the easiest one to get to was in my handbag. I shoved it back in the tube afterwards. I was very relieved we had a second one in case she hadn't got enough.

The real pens have a kick to them, much stronger than a trainer pen. They are easier to use but harder to hold for the count of 10.

Been busy trying to find someone who will check the food to see if there were nut traces. Have had the run around from environmental health, trading standards, food standards agency. Allergy UK were helpful. Had enough of it for today.

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Chandra · 16/11/2006 22:43

Tatt, I'm so sorry to hear about this. I have been wondering about how "real" DS allergies are, guess it is easy to forget the "point" after being in a restricted diet for a good time. This has just remind me not to get complacent about his diet.

As for checking the food contents, DS had a reaction to baked beans were milk had gone into the sauce and was, obviously, not listed. From the moment I contacted the manufaturer to the moment they confirmed contamination, it took about 3-4 weeks. I reported it to Allergy UK (i think) and the Anaphylaxis Campaign but it didn't show on their sites, and after 3-4 weeks I just forgot to keep checking.

Hope you get some answers soon.

tatt · 17/11/2006 11:04

apparently the local public analyst is doubtful that they can detect peanut protein in a cooked meal. So they have at least been looking in the shops I sometimes use for a can of uncooked product. Unfortunately I use several stores and it could have been any of them. If anyone has a Crosse & Blackwell can of bean'n'nuggets with a use by date of Feb 2008L T3ML and number 6048 10 18 10 on the bottom can you phone Crosse & Blackwell (number on can) and offer to let them test it? At least now their head office are involved and taking it a bit more seriously.

I was glad I'd only bought one can - now I wish I'd bought 2.

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tatt · 17/11/2006 11:10

if anyone does have a can and C&B wouldn't reimburse you I would be happy to do so.

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MegaLegs · 17/11/2006 11:10

Wow - tatt. Have only just seen this. Your description of your dd's reaction has left me cold. My ds was the same for a few years with eggs. I never had to use his epipens but I have sat there with the lid off, hovering over his leg a few times. You sound like you were so together.

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