looking for some help, 10yr old dd has been on 4 sachets of Movicol for about 3 years, before starting she progressed from complaining of intermittent stomach ache to being unable to eat a meal without leaving the table 3 or 4 times due to needing the toilet, she also suffered from finger and toe infections - to the point of almost losing nails, split lips, mouth ulcers, hair loss, bouts of melancholy(best description) random and unavoidable and unexpected vomiting, anxiety and lethargy. I had been to GP previously re tummy issues but the advice was non existent so when I suggested trying lactose free milk I was told to give it a go. At the end of my tether with random symptoms I had her Vega tested which suggested avoiding dairy, wheat beef etc. When I eliminated these items there was a magical transformation for a couple of months but then certain problems began to reappear, tried a different GP who suggested normal diet and celiac testing which we did and was negative. Consultant then diagnosed constipation which was the start of the Movicol journey.
Weaned her off Movicol after 9 months she then lost finger nail due to infection and friends started to mention bloating which eventually dawned on me that all the previous symptoms were reappearing.
Back to GP given more Movicol and referred on to consultant who did a skin prick test which was negative and recommendation to continue with a no soya/dairy diet. We have a final appointment with consultant which we have already been told will be a sign off as all the tests that have been done have come back negative,.
I am very aware that the NHS has been fantastic to us but worried that we will be left reliant on Movicol when the reason for needing it has not been found.
Has anyone ever had similar symptoms, DD is health and average height,weight etc but has always suffered from bad skin and will now request Movicol if she feels out of sorts
Sorry for a long post