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Allergies and intolerances

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Is oat milk gluten free? And...

24 replies

ilovetosleep · 14/10/2014 18:47

What about baking powder? Neither say so on the box but I wasn't sure... Thanks

(Am new to all this!)

OP posts:
Missunreasonable · 14/10/2014 18:49

Oats contain gluten so oat milk probably does too. Baking powder: you need to buy special gluten free baking powder.

TheRealMaryMillington · 14/10/2014 18:49

Nope, neither are unless specifically produced to be so.

You can get gluten-free oats
And make oat milk yourself easy peasy from them

Missunreasonable · 14/10/2014 18:52

As you are new to this it might be worth noting that the following things contain gluten (amongst the more obvious);
Vinegar
Beer
Most cereals
Most sausages
Most ready made sauces
Some seasonings.

grocklebox · 14/10/2014 18:54

Oat milk....well the thing about oats is that they are naturally gluten free BUT can be cross-contaminated in the processing as they are usually milled in the same place. Some are guaranteed gf but will state that (and charge you more). It depends on the level of sensitivity as to whether you may have a possible problem.

Baking powder...some contain wheat starch as an absorption agent, some don't. They should really say if they do but I'm not sure if they have to? you can contact the coeliac society as they should have a list of brands that are def gf.

ilovepowerhoop · 14/10/2014 18:54

you need to go to the free from range to get gluten free baking powder. Do you need to be dairy free too?

grocklebox · 14/10/2014 18:56

miss, oats contain avenin not gluten, which is similar but not the same. Most people who can't tolerate gluten can tolerate avenin.

ilovetosleep · 14/10/2014 19:06

Thank you all, and thanks for that list miss - gah I had no idea about vinegar. I eat lashings of vinaigrette as I thought at least my sacred salad was safe! Wtf? I am gutted. Does that mean all my pickles too? Gerkins? Argh!

I am egg, gluten, dairy and soya free while bfing and trying to see what's causing DS his problems. I must admit I was pretty convinced he'd improved loads since cutting out gluten but now it appears I haven't been doing that v well.

Bugger.

OP posts:
grocklebox · 14/10/2014 19:13

But even on a normal diet the amount of gliadin in BM is absolutely tiny....there is no proper scientific evidence for cutting out gluten in the mother even in a child at risk of coeliac disease, let alone for a random untested intolerance. Worrying about the minute amounts of gluten in some of these products unless you have been properly diagnosed as coeliac is really unnecessary
Do you have proper advice on this, because you seem to be doing several elimination diets at once on shaky reasoning?

ilovetosleep · 14/10/2014 19:38

Proper advice... Well that's debatable. My paed came out with something along the lines of 'your DS Is obv allergic to something in your milk, if cutting out cmp hasnt worked then don't bother bfing just give neocate and when you wean don't give gluten, egg, dairy or soya til he's one'. So I now have a referal to an allergist in London but until then I decided off my own back, and on the advice of friends who had been through similar, and from trawling mn, that I would cut out gluten and egg until the testing in 10days time. Before the appointment last week I had been off dairy and soya for 2-3 months already.

So I can have vinegar?!

OP posts:
grocklebox · 14/10/2014 19:45

yes you can. Your paed sounds rather vague and unhelpful. Many are, mine told me that I should cut out dairy when bf'ing in case ds was lactose intolerant...showing a basic misunderstanding of human biology that is worrying in a medical professional!
I wouldn't be cutting out anything without seeing a proper allergy specialist, not least because some tests won't work when you already on an exclusion diet.
Good luck with it all.

ilovetosleep · 14/10/2014 20:09

Hmm I hadn't considered that. So if I have been for eg dairy free for 3 months, and DS has a skin test, will it not work?

OP posts:
grocklebox · 14/10/2014 20:27

I can't say as I don't know what kinds of tests you will get, but certainly some work like that. Coeliac testing for example. they test for antibodies which you arent going to have if you aren't consuming the substance.

Missunreasonable · 14/10/2014 22:24

miss, oats contain avenin not gluten, which is similar but not the same. Most people who can't tolerate gluten can tolerate avenin.

Yes that is correct but for people who are very sensitive (my DS) oats which are not gluten free are not tolerable. Part of the problem is the manufacturing process rather than the avenin in lots of people. Normal oats are not usually processed in a GF environment which means cross contamination is a huge problem.

OP: vinaigrette might be okay if it is made with spirit vinegar and not malt vinegar.

grocklebox · 14/10/2014 22:58

Yes I said that about contamination. Between 1 and 5 % of coeliacs will also be intolerant of the avelin in oats.

But you said oats contain gluten which is not true and since this is an allergies board we should be careful giving wrong information like that,

Vinagrette is fine for the OP whatever vinegar it is since she is neither coeliac or gluten intolerant.

Missunreasonable · 15/10/2014 07:17

Okay grocklebox next time I will be more pedantic and say oats which are 'labelled gluten free' rather than saying 'gluten free'. I didn't think I was being particularly misleading but I learn new things every day.

HappyNap · 15/10/2014 07:45

Your baby is more likely to have an allergy to WHEAT rather than have celiac disease.

You are doing the right thing by cutting out the major allergens to see if it makes a different to your baby. The allergens do pass through to breast milk, even wheat. Carry on doing what you are till your appointment.

ZamMummyInGabs · 16/10/2014 07:43

Hi again ilovetosleep did you manage to get a dietitian appointment as well as the allergist? My experience has been that Dr's don't really do dietary advice, referring it all to a dietitian. Without one you will drive yourself crazy! I was a bit sceptical but having one very experienced person who knows your specific issues to ask will save your sanity. If you're short on time in London get an appointment before you arrive (ask George du Toit's secretary for a name or go with one of the ones I recommended on your other thread) as you might have to wait a couple of weeks if you wait for him to refer you.

grocklebox · 16/10/2014 10:20

I'm sorry to go on miss but my point is you said that oats contain gluten and they do not. IT's not pedantry at all to point that out on an allergy forum. ITs not about the labelling, we covered that separately.

Missunreasonable · 16/10/2014 12:43

If they have been contaminated with gluten during manufacturing then they do contain gluten as purchased. They are no longer gluten free.

grocklebox · 16/10/2014 14:00

WE know that. I'm saying thats not what you originally posted.

ilovetosleep · 26/10/2014 08:25

Hi, I'm back with another gluten Q! I have been advised now to carry on with weaning introducing allergens slowly as be only tested +ve for egg. Still suspect an intolerance so want to go slowly. I need to introduce gluten ASAP but wld like to do this seperately from wheat - so what can I give 6mo with gluten but not wheat in a quantity big enough to see a reaction? I will try porridge. I doubt he would like rye bread but that is only other thing I can think of! Any ideas?

OP posts:
ilovetosleep · 26/10/2014 08:27

ZAM - there wasn't time to sort out a dietician app and get a referral for the insurance co so that didnt happen. Du toit was a bit meh about gastro intolerances and diet despite being amazingly thorough with allergies. So I'm starting this on my own and can access a dietitian here if necessary, but not a paediatric specialist one unfortunatly...

OP posts:
webminx · 26/10/2014 16:22

Hi - just a quick one - Dr Oetker baking powder is GF (labelled as such also) and now so is Rude Health oat milk rudehealth.com/product/oat-drink/.
Good luck

ZamMummyInGabs · 27/10/2014 12:21

Sorry posted on your other thread before I saw this one. If you don't get anywhere with local dietitian (not sure if paediatrics is so specific that they won't be able to help much, or whether it will be fine) it would be worth contacting Rosan Meyer to see if she does Skype consultations. She will also see you if you self-refer. My experience has been that insurance company (US) don't pay for dietitians but it is worth every penny. Don't worry that George du Toit was a bit meh re gastro intolerances, it's simply not his specialism. Kind of like asking a surgeon about allergy :-) Doesn't mean it's not an issue though. Tbh although Neil Shah was great, all the practical stuff came from the dietitians.

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