Does anyone have any experience of Stevens Johnsons syndrome. My son has had 4 episodes now, with the last one being critical. He spent 3 weeks in hospital with 1 week on high dependency. He is a bit better now but may develop complications with his sight if he had another occurance. Doctors cannot identify the cause - they believe it is a viral or bacterial reaction. His skin is not badly affected, but the mucous membrane in his eyes, nose, mouth and penis were destroyed. I am aware that it is an extremely rare syndrome and have looked on-line for information but the websites are devastating. Any imput most welcome. Many thanks