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Allergies and intolerances

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Corn free hypoallergenic formula ...?

10 replies

GrumbelinaPicklebottom · 02/10/2014 13:19

Hi,

My 7 month old is MSPI, and also intolerant of eggs and corn. She is currently breastfed, but I am finding it difficult to manage my diet, and know whether anything else I am eating is affecting her.

The paed we see privately prescribed nutramigen (as a supplement) some time ago, but I didn't have the heart to try it at the time. Since then, she's developed an intolerance to corn, and nutramigen contains corn flour.

Does anyone know of a corn free hypoallergenic formula? Contacted aptamil and I was told aptamil pepti also contains "corn flour", though it isn't listed on the ingredients. I think it may be that the maltodextrin (listed as first ingredient) is derived from corn.

Any advice greatly appreciated.

OP posts:
GrumbelinaPicklebottom · 03/10/2014 10:05

Anyone ... ?

Sad
OP posts:
piggyboo · 03/10/2014 10:16

DS is corn sensitive and did well with neocate active, he did ok with the neocate LCP too but was even better when we switched to the active at 12 months. I feel your pain with regards to corn, it is in everything and usually not labelled. Have you seen the corn allergy list? if not just google. My son is now nearly 2 and has started to outgrow the corn. He can now tolerate corn dextrose and ascorbic acid.

GrumbelinaPicklebottom · 03/10/2014 12:54

Thanks for your response.

Will look into neocate lcp. Have heard it causes constipation though - did this bother your son? My daughter is really struggling since she's been on solids (I am wondering/worried about other intolerances), and I'm not keen on adding constipation to her problem list, but equally struggling with breastfeeding at the moment.

OP posts:
eragon · 04/10/2014 14:51

is the protein structure of the corn in the milk undergone the same treatment as the milk?
is it worth contacting the manufacturer and enquiring? or asking your GP or yr private doctor to do this for you?

piggyboo · 04/10/2014 20:09

My son has never had constipation. Neocate does make their poop dark sludgy green which is normal, glad someone warned me in advance otherwise i'd have been a bit worried.

GrumbelinaPicklebottom · 08/10/2014 08:48

Eragon - good question. I would assume not, as the formulas I am aware of are not specifically made for children who are corn intolerant/allergic.

It seems there must be a significant degree of contamination if corn derivatives like ascorbic acid (as piggyboo mentioned) and glucose syrup cause reactions. Will try contacting manufacturer anyway, but I suspect they will tell me to avoid it.

OP posts:
piggyboo · 10/10/2014 20:51

Most companies will say that there is not enough corn protein in any corn derivative to cause a reaction, unfortunately that is not the case for many. I guess the machines they test with just aren't as sensitive as the human immune system.

On a positive note it has been a year since we last trialed corn, we have been trialing ascorbic acid and dextrose veerry slowly over the last 10 weeks, this weeks trial has been cornflour, tonight was sweetcorn and No reaction whatsoever. It looks like DS has finally outgrown it a week after his 2nd birthday. Fingers crossed your lo can do the same. Of all the allergies to have it has to be the most restrictive, corn really is in everything as i'm sure you know x

GrumbelinaPicklebottom · 10/10/2014 22:20

Thanks for that piggyboo. It's good to know there's a chance she'll outgrow it soon. It doesn't seem to be a very common allergy so there isn't a great deal of info out there, anecdotal or otherwise.

How did you manage to avoid corn? Did you just avoid processed foods completely?

My LO just gets mucousy poos when I eat corn at the moment. Did your LO have a skin/IgE type reaction?

OP posts:
piggyboo · 10/10/2014 22:52

my son has a type of allergy called FPIES which causes delayed vomiting. His corn reaction was different though, rash on his face, neck and tummy with small amounts of derivatives, vomiting, reflux and diarrhoea with larger amounts. He was IgE negative. He reacted to cow's milk formula at 6 months, i thought he was cmpi but it was actually the maltodextrin. We went to quite extreme lengths as he was so sensitive. I wrote a post on the FPIES fb page about it. I'll paste it here, i warn you it's very long though:

Ok, i have been meaning to post this for a long time. Warning it will be very long It is a post all about Corn and what i have learned over the last 12 months.
My son is 18 months old, he was ebf from birth and had symptoms from very early on. In particular, frequent projectile 'spit up', eczema and rashes. At 6 months old we started weaning his first food was a mango baby porridge made from rice and corn! whilst i realised that he was reacting to some foods i couldn't figure out which. He developed a rash in particular on his neck and face. At 7 months we tried some hipp organic formula as i wanted to use the ready-made version on his cereal rather than expressing. His vomiting got much worse and he developed diarrhoea, I presumed he had a delayed milk allergy so we both went dairy free, unsurprisingly we saw no improvement (dairy is actually safe). All meds like infacol, calpol, even antihistamines caused his neck rash to flare horribly. At 8 months old he developed a permanently runny nose, it would stream all day long, getting worse throughout the day. I thought he might have hayfever or pet allergy but these tested negative. At 10 months at our consultants request we removed all food except 2 safes and put him on neocate and his symptoms improved 95%. He was doing great and started to gain weight. However his nose continued to stream and his neck rash still came and went along with an occasional patch or two of eczema. At 12 months old he started to gag frequently and choke on his safe foods then vomit onto his highchair, I thought he must have EoE. At 13.5 months we re-started food trials, at our consultants request we tried corn early on. I gave DS 1 corn puff and 3 hours later he was covered in a top to toe rash, not something i had seen before. I googled corn allergy and came across this list www.cornallergens.com/list/corn-allergen-list.php Wow!! it was like a lightbulb had gone on. We had failed over 20 foods between 8 and 10 months and i started to realise many were due to corn!
FAIL LIST
maple syrup -corn oil can be used as defoamer
Vanilla extract (alcohol from corn)
Hipp formula (vitamins, maltodextrin from corn)
calpol (sorbitol, xanthan gum -corn)
parapaed (sorbitol, saccharin, xanthan gum-corn)
cetirizine syrup (sorbitol,glycerol, saccharin-corn)
soya milk (maltodextrin-corn)- soya also an issue though
apple fruit pot (ascorbic acid-corn)
pear pouch (ascorbic acid-corn)
bag apples grapes (E302 calcium ascorbate-corn)
well kid syrup (ascorbic acid, xanthan gum-corn/ barley extract)
dalivit (polysorbate 80, ascorbic acid-corn)
nurofen baby (citric acid-corn)
White potatoes (sprayed with chlopropham (no bud) to stop sprouting)
Colgate kids toothpaste- xanthan gum etc

I joined the corn allergy and intolerance board on facebook and learned that many other things contained corn too, like toilet tissue, eczema creams, soaps, cleaners, wet wipes etc. If you are brave enough to venture over to the corn board be advised that a lot of them over there are ana to trace amount and even contact so there are very few products they will say are safe. Sensitivity varies vastly as does strength of reaction so what is unsafe for one person can be fine for another.
The first thing i did was try apples without the vitamin C, they were an easy pass, same for pears. I then stopped using kleenex to wipe DS still constantly runny nose and got some wetwipes called water wipes instead. I bought a bar of olive oil soap with no obvious corn ingredient to use to wash Joe's body and hair. I stopped using his emollient and hydromol bath additive. changed his toothpaste, Stopped using antibac sprays and cif to clean and bought a steam mop and started using online recipes for cleaning solutions using lemon juice/ rice vinegar and bicarbonate of soda, which actually work really well to clean surfaces. It took a couple of weeks to start work but at this point his nose stopped running! ( it took a further month or two to fully work though i presume due to residual corn around the house.) it was amazing, to think wiping his nose with tissue was actually causing the problem, crazy! We have not changed washing powder at all and still use disposable nappies when needed with no problem as it seems fortunately he has to ingest the corn to to be a problem.

DS still gets 'corned' on a regular basis. It is really obvious when it happens, he gets a red itchy patch on his neck within an hour or so, it's a bit like one of those tefal spot indicator thingies on the pans . It's usually things like balloons, chewing on card books, stickers etc that cause the problem but some foods that look like they should be safe also cause corn symptoms, the most common ingredients to do this are 'vegetable oil' and natural flavours'. Because corn can be so hidden eg used to clean processing equipment, we now do a mini trial of EVERY new product, just one or two days, but no other trials that day. to be sure it is safe.

To avoid confusion with vegetables and whether they have been sprayed with corn we grow most of our own veg now, otherwise we get it from the local farm shop and failing that we buy organic.

Since we have been 'almost' corn free his nose no longer runs (unless he gets corned), his tonsils are gradually getting smaller, his always swollen glands in his neck have come down, he no longer gags or chokes and more importantly he started passing more new foods! I feel like with his 'corn bucket' more empty his body has less to fight and is less reactive.
I realise this is reeally long but i am fairly certain that those who have the hardest time with figuring out triggers are those who's lo's are sensitive to corn. We are lucky that DS has to put the corn ingredient in or around his mouth for it to be a problem, he is however super sensitive to it. On the plus side his reactions are fairly mild and it takes a large ingestion to actually cause any vomiting or diarrhoea. Most kids do not get a tell tale rash or obvious immediate symptoms but more of a build type reaction with symptoms once their 'corn bucket' gets full. We are very lucky that it is so obvious and no other ingredients cause the same reaction in DS.

Hope that this will help some of you. If you have any questions please ask

And yes i realise i sound like a crazy woman, but corn sensitivity is crazy.

Emmak20 · 13/11/2020 09:02

Hi,

Sorry I know this this is an old post but I’m going crazy trying to figure what’s going on with my little girl. He’s 6 months soon and we still don’t know what’s she’s allergic too.
We’ve tried so many amino acid based formulas and we are still the same apart from her poops are better. But all the congestion,unsettledness at night, ezcema, is all still happening after 13 weeks on amino acids.
What formula did your little one end up on and am I best to trial her on sweet corn to see if it is?

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