What is wrong with dd? Milk intolerance?

[tabbytoo]

Ever since dd was born (she is now 9 mnths), she has been breast fed. I had awful pain at first and tried her on formula, which she then projectile vomited later on. Ever since, she has vomited violently whenever given any milk products. She doesn't vomit immediately, it's always between 2 and 6 hours later.
Formula's i have tried include: Cow & Gate, Aptimil, sma, Wysoy and sma lf. She has also vomited after having yoghurt and custard.
Bank holiday weekend we ended up in a&e with her after being told to try her on a tsp full of yoghurt. It was 2 hours before she had any reaction.
Today, we took dd to have a 'scratch test' for milk, and it was negative, meaning that she is not allergic or intolerant.
I still have trouble breast feeding, but i have no alternative. i'm at my wits end!
Any similar experiences?

Sorry to hear how it's going. I can't really offer empathy as dd's colicwas solved with LF sma. Found a useful book in the library called "The Allergy Bible" which was helpful to me and may have some useful info.

Don't know if the following websites are useful?

www.eatwell.gov.uk/healthissues/foodintolerance/foodintolerancetypes/milkallergy/

www.pioneerthinking.com/ara_cryingbaby.html (tho some of site looks a bit new age wooly there may be some useful info!)

www.kidshealth.org/parent/food/special/milk_allergy.html

Anyway, hth.

a scratch test wouldnt necessarily show up an intolerance. Intolerances are very hard to detect. Saying that I dont think a milk intolerance would give such a violent reaction. Intolerances tend to build up and build up to give a reaction. Allergies tend to give a more 'sudden' reaction. I think.

Are they going to give her any more tests or anything?

hi all

we are now being referred to a paediatric dietician, maybe she will have more idea of whats happening.
The frustrating thing is that no doctor or health visitor will give us a straight answer, it's a bit like dealing with politicians!
All I really need to know is what milk will be safe to give my baby until we have a diagnosis. I am hesitant to try anything without medical supervision now!
i will keep you updated......

tabbytoo -It could be a milk intolerance -it won't show up on a scratch test as it is not an allergy but a digestive problem -I have heard of such violent reactions to milk (see other threads here). This is a good website for explanations www.foodsmatter.com/What%20is.html Unfortuneately she may also be reacting to BF if you still are including milk in your diet. If you want to keep breast feeding, try avoiding milk and see if that helps. Alternative milks could be powdered goats milk formula (try the health food shops for that one) which is sometimes tolerated when cow's milk isn't - you could try goats milk first itself rather than buy a whole tub of formula. Also try to keep a food diary for her (and yourself if you are breast feeding) as it will help prove to the dietician what the problem is and may pick up if she has any other intolerances (eg eggs).
Unfortuneately if she is very sensetive to low levels of milk you have to become very good at scouring the ingredient labels - milk can be in everything from bread to sausages and it sounds like she could be intolerant of soya too if she has reacted to soya formula. Good luck with the dietician.

tabbytoo - just wanted to give you a bit of moral support & share my experiences. My DS (8mths also bf) has had awful urticaria and eczema since weaning which got 100 times worse after he had a d&v virus. He has a paed appointment next week & I'm hoping to get a formal blood test as allergies (anaphylaxis) run in the family.
I've kept a food diary for both me & him and know that he reacts badly when I eat dairy/sesame/strawberries/egg. A close friend of mine is a kinesiologist and tested him for us (muscle testing). It identified all the things his body "didn't like" (and it additionally revealed tomato/wheat/goat products & the formula I'd been trying to wean him onto to take what I was eating out of the equation (SMALF)!) 10 days later excluding all these things and his skin is clear and not itchy (he had looked like his whole body had been flayed with nettles - the sesame, in hummous, made his lip swell & face go blotchy)
Kinesiology can't identify which substances are true allergies & which are intolerances but it has certainly made a huge difference to us in the interim. I don't know yet whether I'll tell the paed about the kinesiology (I may fib & say I found all the foods by diary keeping as I have no desire to be given the "oh dear, a wierdo" look.) but I figure that anything that relieves the discomfort in my LO and gives me some thing to work with has got to be a positive thing. HTH

just to add - I too am struggling to find a suitable milk. I dropped the formula (which, to be fair, he was only having a couple of ounces of for breakfast because he didn't like it)& have just carried on bf (but obviously have to avoid eating anything he can't tolerate just in case)
Let us know how you get on