Allergies

[Littlemummylambo]

Hi, my daughter has a milk protein allergy/anaphylaxis. Does anyone else's child have this? I would really like to talk to someone going through the same thing. :-)

Hi, my daughter has a severe milk protein allergy/anaphylaxis. Does anyone else's child have this? I would like to speak to someone who is going through the same thing. :-)

My daughter has milk allergy too, amongst others. It is very common now.

How did you find out?

ShineSmile, I was breast feeding my daughter then decided I would try put her on formula at 4months old. She had one once and was projectile vomiting everywhere, chocked, struggled to breath it was very frightening, I didn't think she was going to take a breath. She was then very limp for about an hr. I put it down to her being a bit unwell at the same time. 2wks later I tried the formula again 1 ounce. Same happened. I then went to docs who advised I try another formula. I don't know why but I said no. I asked to be refered to a dietician. When we went to see the dietician she was very angry. She said that my girl has milk protein allergy that is so severe causes anaphylaxis. Had I given my daughter more formula it could have been fatal. How did u find out?

Babybarrister Thanku, I've joined anaphylaxis campaign but can't find anyone to talk to about the same thing. I can't work out how to use the site correctly. That's why I've tried this. There's no support groups in my area either as I am in fife. Thanks again tho and I will keep trying :-)

Gosh, that must have been very very scary for you. Does your daughter have any other allergies or is it just dairy?

With my DD, it wasn't as serious. I gave her some porridge which had a milk powder in it, and she came up with hives at 6 months. I had a hunch that she had cows milk allergy, so it was pretty much confirmed. At 11 month however we discovered she is also allergic to soya, egg, nuts and wheat. She's just been a very unsettled and demanding baby, and it's been a long journey!

So is your DD on formula now or breastfed? Have you cut out dairy too?

ShineSmile, she has been formula fed from about 5months but it is a hydrolysed formula which is on perscription. She also gets the 2mls of another perscription formula which should not cause an allergic reaction however it caused her to come out in hives only putting one drop inside her lip. This was done in hospital tho. It's been a slow process to get to 2mls. We had to rub a drop on her arm then, that moved on to rub outside the mouth again in hospital, then she had no hives so we now do it at home. 1small step at a time. She will go bk to hospital for next steps soon. She still comes out in hives if she touches food containing milk or eggs or if someone else touches her that has touched anything containing them. Her pediatrician and allergy nurse have said I can't increase it to much or it could trigger anaphylaxis again. Sorry for going into such great detail. It must be really hard for u to choose foods. Have they said if ur little one will grow out of it? Did u feel a little crazy at toddler groups ? It's hard to watch constantly. :-)

It's good you are getting specialist care at the hospital.

We haven't been told if she'll grow out of it but I really hope she will, but tbh it seems increasingly that some children don't until they are 6-10 years of age.

Meals were tough at the beginning with so many allergies cut out,but you do get used to it. I miss cake alot, soya sauce and eating out. It's tough eating out with multiple allergies.

Am I correct in thinking your little one can have soya? If so, that's great, because there are loads of alternatives with soya, especially puddings and treats.

I do have to watch little one at toddler groups but tbh she is still a bit young and thankfully they've had mainly fruit there. I normally take snack from home for her. I suspect it will get challenging when she gets older.

All the best x

There's an allergy event on in edinburgh on the 24th. I'm planning to take dd out of school to go along. Maybe you can get to it?

www.cyans.org.uk/files/2014_04_16_Ev_flyer.pdf

She was awful with contact reactions when younger. We went to music groups, gymnippers etc as they were food free and more relaxing. Otherwise antihistamines and lots of hand washing.

I have been thinking of setting up an Edinburgh based support group...

Hi, my DS is very allergic to milk amongst other things. He used to scream when I bf him and the GP dismissed my hunch it was due to allergy. We finally got a diagnosis and a referral after his first try of formula at 6 months. We tried it at the GPs and the projectile vomiting was like a scene from the exorcist!!

He was also allergic to nutramigen, but although fine with Neocate, I bf him until he was 2.

I'm also in Scotland. There's a Facebook group called CMPA support in Sotland, which is really good.

there are quite a few good fb groups if u have facebook :)

Hi everyone thanks very much for posting. , My daughter can get soya, I know what u mean about eating out. I get worried I just take a little pked lunch for her at the moment but that's not going to happen much longer as u can see she's wondering what everyone else has.
I'm going to see if it's possible for me to go to the event in Edinburgh it would be good to maybe get more advice. X

Rosehb, yeah hand washing and antihistamine is also what we have been using for contact. It's having to say to other adults n kids eg at toddlers. At first I thought people were thinkin what a weirdo. Also wiping a things and cleaning hands etc but now at toddler group they know my daughters allergys so it's a bit better there.we also have to wash our lips or she get hives if u kiss her x

Hi little mummy my dd is allergic to Cmp, eggs and nuts.

There is a CYANS allergy event in just over a week - on the 24th in Edinburgh. It's a full day event from 10am and there should be other parents there who have gone through what you are going through. The anaphylaxis campaign and allergy uk will also be there. If you want to go you need to register on the CYANS website.

It's really scary but once you get used to checking packets and finding safe foods it just becomes a normal way of life. Weaning is daunting but it can still be fun.

Is there anything in particular you want to know?

Oops I see someone told you about the event already! Sorry that will teach me to read a thread first