Dietician recommendation and how-the-hell-do-you-get-a-one-year-old-to-drink-Nutrimagen-Lipl-2?

[10000Fireflies]

Can anyone recommend a dietician, preferably paediatric, for DS please? He has a cows milk protein intolerance (or delayed allergic response, as is the official term now, apparently). Anyway, it's taken 3 months to see the paediatrician, and now, 3 weeks on the allergy dept have told me that they have not received his referral yet, and even when they do, the apt will not happen before Aug or Sept. I can't wait any longer!! He hates his prescribed milk and I just don't know if it is worth the hassle of trying to get him on to it now he is past his first birthday.

I am in London, so that would be a preferable location for a dietician, but could travel within the SE region, and even around Southampton/Bournemouth type regions could be do-able. The most important thing for me at this stage is to see someone who's really worth paying for!!

Also, any top tips on getting them to drink Nutrimagen Lipl 2? I've come across the idea of adding Nesquik, but just how much, and doesn't that make them hyperactive at night because of all the sugar?

I only ever used it for cooking, adding to cereal and so on. I just continued to breast feed for milk drinks. Sorry probably not much help. At 1 can he not just start on soya milk? That's what I did for DS2. Or have you been told not to?

cece thanks for the idea of using it on cereal. No idea why I didn't think of that. Soya milk protein about same size as cows milk protein so will irritate stomach similarly.

Babyb that's great, thanks.

Hi - from 1 they can start on the soy equivalent of full fat cow's milk - Alpro 1+. It tastes a bit like fudge flavoured milk and is very tasty indeed. My bottle refusing DS took to it straight off! Good luck.

Thanks abigboy. What was the food allergy/intolerance you were dealing with in particular? was it a general allergy to cows milk? I've been told the size of the proteins of soy and cows milk are similar and therefore it's not a suitable substitution when the issue is the irritation of the gut by proteins larger than that in breastmilk, ie cows milk protein intolerence.

He has a cow's milk protein and egg allergy. Though he has pretty much grown out of the CMP allergy already but no idea about the egg as he won't eat anything in the graded exposure

Not sure if its relevant but just to add he tolerated the dairy in my diet fine. Was EBF until 6 months and only sign looking back was very mild eczema.

A lot of children with a CMP allergy/intolerance will also have an allergy/intolerance to soy, but not all - I've been given figures from 10-50%. We have been given nutrigimen (sp?) but it is disgusting so DD won't touch it. She had a mild reaction to soy about the same time as awful reactions to cows milk so we avoid it.

She is still bf and has had some almond milk quite happily. I might try her on soy milk later but at the moment she doesn't really need it. I make sure she gets lots of good fats through olive oil, rapeseed oil, nut butters,nus and seeds etc and lots of fish with bones, green veg etc for calcium plus a multivitamin.

I was advised by a dietician to mix the new nutramigem aa formula with my breastmilk (or formula as could not express enough) - so 3 scoops normal formula, one scoop nutramigem and over a week or so change the ration. It worked!! Meant he had the wrong milk for another week but worth it to make him happy on the nutramigem.

Abigboy I guess it is relevant that your DS tolerated dairy in your diet when you BF. Mine was the same.

Pourquoi did you see a dietician/nutritionist or did you read up on line? I could do with your diet sheet to crib.

hoop thanks for that tip. I think I will give that a go, but mixing nasty formula with oat milk. DS drinks the latter with no problem at all.

Doesn't the smell of Nutrimagen just make you want to !!

Are you on Facebook OP? There's a group on there I have found so helpful and supportive. Great advice from experienced parents. It's called Cow's Milk Allergy Support.

Typo! Cow's Milk Protein Allergy Support.

Bigboy thanks for the info on the FB group. I'm not a member. It's getting more and more difficult to avoid though!! Oh, I just found this page: Cows Milk Protein Allergy Support group . Posting in case anyone else would find it helpful.

Yes! That's the group I was meaning too. I just use their FB site. Found the support invaluable when we were doing DSs graded exposure.

Oooh, a graded exposure! That sounds v advanced!!

Yep! DS is almost completely back on the dairy now

That's great. How old is he bigboy? The paediatrician said a lot of babies grow out of it by their first birthday. We won't be able to see the dietician until sometime around Sept, so might just have a go at it myself. I just need to catch upon some zzzzzs first!!

He's just turned 2. Oddly he always managed hard cheeses (in the days when he would actually eat them..) so we trialled a graded exposure when he was just over 1 year but he fell at the first hurdle (whey/dried milk) as it made him vomit..a lot! I waited about 6 months before trying him again (just wasn't in any rush to be honest) and our main difficulty was getting him to try the whey/dried milk products after what had happened previously! He was 19-20 months then and made it all the way to the milk challenge (though we had to skip over some things eg ice cream as he wasn't for trying it) but he projectile vomited with just 1tbsp of whole milk in 210 mls soy milk. We really should have tried him again by now but I dread doing it! This thread has reminded me though so I have milk in the fridge to start tomorrow. Because it was so hard getting him to eat a lot of the things on the graded exposure, I used a mix of the protocol on the CMPA support group FB page and the one from our health board. I can PM you our one if you like? It is much slower than the one on the CMPA page and I felt happier with it (mostly). Good luck and feel free to PM if you have any questions about any of it.

Thanks for the further info Abigboy. Wow, that is quite a dramatic sounding reaction. By the sound of it your DS is probably more sensitive/allergic/intolerant than mine. He just gets wriggly and doesn't sleep when he has too much cows milk. I am wondering whether they get worse though if you cut something out of their diet. Has that happened with yours? I seem to have more probs with fish these days now I don't each so much.

Funny about cheese. My DS seems ok with small amounts of cheese as long as it's no later than lunch time. I guess I can wait to see the NHS dietician and will see what they say, but thanks for the offer of PM re this. Will do so if I need more info.

I ordered a shed-load of Oatley milk and cream yest. Made him some custard for his supper. He quite liked. Looking forward to making rice pudding for him next, and I suppose that means I will be able to knock him up a reasonable version of ice cream. :-)

I met someone the other day who's son has celiac's and it took nearly 2 years to diagnose. She'd had the most awful time, so I feel lucky not to have had to deal with that. Our DSs are the same size!

Hope the graded exposure (still loving that term!!) goes well!!