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Allergies and intolerances

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My ds had an anaphylactic shock - I am truly devastated

14 replies

keresley · 21/05/2006 14:51

On Friday afternoon , my ds accidentally ate a mouthful of peanut butter and had a severe reaction to it. He was rushed to hospital and they managed to sort him out. He is OK now- just looks a bit sunburnt and puffy. But it is the implications of my baby having anaphylatic shock that I am struggling to get my head round. I have spent the day mostly crying as I feel that there are lots of loaded guns everywhere waiting to go off and kill him (does this make sense?). I know I can reduce the risk by having a nut free house but what if he goes somewhere where there is a nut on the floor and picks it up and eats it? And then there’s Nursery and school to contend with later on (he is 18 months atm). My ds is already registered disabled with his eczema and our whole life revolves around keeping him comfortable. This just seems another cruel blow which at the moment, I just can't handle. If any mumsnetters out there can give me some words of support- I would be grateful.

OP posts:
zippitippitoes · 21/05/2006 14:54

I can't help but there are mns with children with nut and other allergies. I'm sure they will chat to you (Sunday is quite quiet though)

scienceteacher · 21/05/2006 15:04

You will be able to handle it, keresley. It's early days yet, but you will come to terms with it and it will become normal life for you.

{{{hugs}}}

morocco · 21/05/2006 15:14

I'm so sorry you've had such an awful shock with your little boy. It must have been utterly terrifying. I'm glad that your ds is out of hospital and doing well. I don't have any personal experience of this but I know other wise mumsnetters will be able to help. Hugs.

brimfull · 21/05/2006 15:17

oh keresly,I'm so sorry your son went through this,and so glad he's ok now.
I know how devastaing it is to suddenly think he has a life sentence of a nut allergy.My ds was diagnosed with a tree nut allergy at 18months.He has never had an anaphylactic shock ...thank god.It must have been terrifying for you all.
It truly does get easier with time.He's now 3.5 yrs and it is just part of our daily life.The hardest part is finding and trusting others to care for him.My dh and I just attended a parent workshop run by the anaphylaxis campaign(strongly recommend you join btw) and it was so reassuring to meet other parents with the same worries.
He's still so young and you are completely in contol of what and where he eats,it will become second nature to you and your family to check everything that comes into the house.We find that keeping the house nut free works for us at the moment while he is young.Atleast when he's being babysat I know there is nothing that can harm him.
We have found one of the most difficult things is eating out,we hardly ever do it and it always has to be well planned.
There is such a lot to take in at this stage,I too cried for days,weeks .I got great supportive advice on mumsnet and talking to a few local mums .

brimfull · 21/05/2006 15:23

forgot to say ,ds's nursery are wonderful.It was terrifying for us and them as they'd never had aseverly allergic child before.They all went through epipen training and inhalor training (he's also asthmatic).Most primary schools have some severly allergic children and are pretty clued up about it these days.
I think at the age your son is now can be really stressful as you need to watch him carfully at places where there is food,I avoided a lot of places because of the stress!
Have you been given an epipen?

socks3 · 21/05/2006 15:43

That sounds truly terrifying. I am sure I have read somewhere that it doesn't mean your child will be allergic for life and may grow out of it. Maybe think about getting a medical bracelet for him with it marked as to not have peanuts, etc. Hope you are all okay now. Thank goodness the nursery is a good one!!

williamsmummy · 21/05/2006 16:53

I must join in and agree with all the other posts, but add that there is a small chance that your child may grow out of his peanut allergy> how old is your DS?

i can also add that the parent workshops are very good, and worth attending. we got great support from one of them. Exchange e-mails with other matching parents, this helps as well.

I can also recommend a visit to the allergy show and visiting the anaphylaxis campaign stall, and some of the lectures.

What allergy testing have you had so far? I just mention this because egg and peanut allergy do seem to go hand in hand. Rioting ezcema may be a sign of other allergies.
Please also check any new ezcema treatments for any nut oils, just in case, as GP's often forget.( sorry voice of experience there)

I know that you are on the start of a very big learning curve.
Have been there, got the t-shirt and am still wearing it.
Our sons life long allergies are to peanut and all beans. ( he has a chance of still growing out of many of this other allergies)
He is now 10 and has as much fun as any other child, your child will as well.
This isnt a death sentance, its a new way of parenting.
you teach your child to be a confidant survivor.Just like other parents teach their child to cross the road, we have to add lots more to that list.
Its managable, its workable , and life will go on.
For your child, he will never remember any other way of life. This will be normal for him.
I hope this helps.

moondog · 21/05/2006 17:07

How scary kere. Sad
I think Chandra had a child with a severe nut allergy and posts a fair bit about it...

keresley · 21/05/2006 18:13

Thank you all so much for responding to my post - I appreciate it. I know that I will eventually get used to the idea and also that it will eventually become just a way of life (like his eczema is). I have already booked tickets for the allergy show and I attended it last year- very good if any other mumnetters were thinking of going. I guess I am just going through the 'why me?' stage atm and until I become clued up on the condition, I suppose it all just seems really scary. I have found a paediatric allergist today (on the internet) that runs clinics from guys. So I will be making an appointment asap so my ds can be properly tested. Your comments are making me feel better so thank you again.

OP posts:
Chandra · 21/05/2006 22:40

I'm so sorry to hear about your DS's reaction Keresley Sad. DS had a reaction to peanuts and although I was expecting him, after the reaction, to be allergic to them I never imagined that the tests would show that he was also so allergic to milk, fish, soya and egg. And I was angry too, because DS was just looking as if he had outgrow eczema, and just in the same week when DS was tested he had his first serious asthma attack.

The day I learned that DS was allergic to nuts, soya, milk, fish and egg I couldn't understand how things could have gone that bad, I cried for a few hours wondering how I could bring up safely a child with so many allergies, and just wanting to be able to feed him something knowing that he was going to be OK. That day somebody told me that the day you get the bad news is actually the worst one, and it was true, soon you will find ways to avoid foods and situations that put your child at risk, and as others have said, it will become second nature.

When you get the diagnosis, it is easy to focus in the worse: your child is allergic and you have to be extremely careful. However, it is easier to forget that your child is actually going to improve once you take more precautions. DS is sooo diferent (for the better) since he is in a restricted diet that I can say that all the worries and extra work are worth it. You may find that once you start removing other peanut related things from his diet other "additional" problems tend to disapear. So don't dispair, if we can teach our children not to drink bleach we can also teach them to avoid certain foods. Being in a restricted diet takes the same work as if you have suddenly decided to become vegan/vegetarian/etc. you will need to adapt the diet of your family but once you get into it you will see that things are not that difficult anymore.

So, in the mean time, a huge hug and any questions, please just ask.

mymama · 22/05/2006 12:22

sorry to hear about your son's reaction keresley. I found out my ds was allergic to nuts and other things at around 9 months. It came as a complete shock and I cried all of the way home from the doctors. I thought it was a "death" sentence. 2 years on and it is now part of life. We are a nut free house and his daycare room is nut free. He only started daycare about a month ago and we put things in place to protect him. Unfortunately awareness is rising as the allergies are rising. Try to get as much information as you can and educate yourself and your son. I am constantly telling ds not to eat food from others and picking things up from the ground. Even though he does not understand now I see it as education for his wellbeing. Things can only look better from here.

mymama · 22/05/2006 12:23

Sorry - meant fortunately.

Hillary · 18/06/2006 22:00

Big Hugs

My two year old is Anaphylaxis sufferer to eggs and nuts, it does get easier i find its rather like driving you know what your doing its everyonelse you have to watch, the people who don't quite understand the implications. Please dont let people tell you your little one will grow out of it he wont! people confuse an allergy to an intollerance! If you phone Birds Eye and other food manafacturers they will send you a list of all the foods which are ok! also a new law was passed to state all products now have to have high risk foods like egg, nuts, milk etc listed next to the ingredients. you will find people dont realise if they're not looking at an egg it cant be in it! It's not as bad as you think it does get easier honest! As for toddler groups, my little one hasn't been to one yet i enquired last week but they have to change everything first before she can attend!

I think we should set up our own group for anaphylaxis sufferers so they are all together and safe, no triggers and mothers who know and understand!.

ke127106uk · 09/08/2006 13:23

Keresley

So sorry to hear about your childs reaction - I've been there, got the teeshirt!

If you have a look though some of the other posts on this thread I've put quite a bit of information there about my 12+ years experience of severe nut and food allergies, if there's anything you'd like to know more, just ask.

Keep safe. Katherine

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