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Allergies and intolerances

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"May contain" labels

16 replies

tootiredtothinkofanickname · 30/08/2012 09:04

DS (19 months) has recently been diagnosed with seeds and nuts allergy. We knew he was allergic to sesame seeds so avoided them (and nuts too, just to be sure) for a few months, until he was tested in hospital and all his allergies confirmed.

Strangely, he is not allergic to peanuts, although we are avoiding all nuts as it?s easier. My question, however, is about the ?may contain? labels. It?s easy to avoid nuts, but avoiding all products which may be cross contaminated would be a nightmare. The thing is that while we were waiting for his allergy appointment to come through, we made sure he didn?t have sesame and nuts, but he had lots of things the dietician said may be contaminated: Cheerios, ham from the deli counter, shop bought bread (baked in store) to name just a few. I also looked on the wheat pillows he?s had for breakfast for a while now and they too have a ?may contain? label.

Is it really irresponsible of me to let him have most things he?s had so far which may be cross contaminated, but which he didn?t react to? I will avoid anything from the deli counter and the bakery, any chocolate/chocolate biscuits which ?may contain? traces of nuts (as I understand there is a bigger risk with chocolate), but what about the rest? I have Piriton and 2 Epipens with me all the time, so does his childminder, although of course I?m not blasé about it and don?t want to be in a position to use them if I can avoid it in the first place.

Although, if he continues to eat these things, does it mean that the allergens will build up in his system and he?s more likely to react in the future? He is otherwise very healthy, no other allergies and no asthma.

OP posts:
savoycabbage · 30/08/2012 09:09

Hello, I think that most companies are just covering themselves. Kinnerton is a chocolate company that strives to be nut free.

You really do have to make judgements all the time and decide what you are going to let them eat. I am more vigilant if we are in a situation where we couldn't get to a medical facility at all. Or where if she had a reaction and threw up it would mean her missing something fun like a birthday party.

I was reading every label when we first had a diagnosis when my dd was 4. She is 8 now and sometimes I realise I have bought and then fed her a brand new type of cereal without reading the label at all.

Peanuts aren't a nut, they are a legume. Like peas. Not that I knew that before my dd was allergic to them!

CasaBevron · 30/08/2012 11:21

Hi, I think that it's a very personal decision whether to give your child 'may contain', and it also depends on how severely allergic they are. We were advised by ds's specialist at St Thomas's that because ds has never had an anaphylaxis (he's never even had a nut reaction, just diagnosed by skin prick test) that we were safe to give him 'may contain' products provided we were able to reach a hospital easily and had his piriton to hand. Tbh, that advice was enough to scare me into avoiding, and we have done so since his diagnosis at approx 8 months old, around a year ago.

I agree with savoycabbage that mostly, the 'may contain' is likely to be an arse-covering exercise for the benfit of the company producing the food, rather than the customer - there is no law governing 'may contain' by the way, so any info given is voluntary - but it can lull you into a false sense of security and just because you have eaten a product and had no reaction so far, that may not always be the case. You have no way of knowing by looking whether your product is the one in a million that may actually contain nuts, and that's what I find worrying. I also want ds to grow up to control his allergies responsibly, so if I take chances, I am teaching him to do the same.

We are only avoiding nuts and eggs, so I don't know how practical the seeds side of things is, but I am happier to take food with me in situations where I can't guarantee that there will be something safe for him. I am getting a bit more clued up as to what pre-packaged snacks I can buy for him out and about, and the range of stuff that is suitable for him grows as he does. (Most of the major food companies have comprehensive lists of foods that are suitable for allergy sufferers available online that are updated regularly.) However, if there is nothing that he can eat, I always have back up stuff available so he doesn't go hungry!

Like savoy, I didn't realise the difference between tree nuts and peanuts until we were give a swift introduction to the wonderful world of allergies! Ds tested negative to peanuts and we were enouraged to get them into him before he became allergic. He now eats them a couple of times a week and our hope is that this will maintain his tolerance.

Ref your q about the allergens building up in his system, I'm not quite sure what you mean. If you mean the foods that he is already allergic to, you wouldn't get a chance for them to build up in his system, you would get an allergic reaction every time he came into contact with them. As I said above, it's an unlikely - but still possible - consequence of eating 'may contain' foods.

babybarrister · 30/08/2012 22:03

This reply has been deleted

Message withdrawn at poster's request.

CasaBevron · 30/08/2012 22:33

Hi BB, have you literally been up a mountain in Outer Mongolia? Not seen you here for ages! Grin

Nuttyprofessor · 30/08/2012 23:27

when DS had his appointment we were told we should allow "may contain" as it was only likely to contain a little oil from machines used for nut containing products and unlikely to react severely without protein. Also told that small amounts were likely to encourage a tolerance.

babybarrister · 31/08/2012 08:54

This reply has been deleted

Message withdrawn at poster's request.

trixymalixy · 31/08/2012 23:17

We give DS food that has may contain on the labels or not suitable for x allergy sufferers.

We have recently stopped giving him chocolate with may contain labels as he started saying that his mouth was feeling funny after eating it.

tootiredtothinkofanickname · 01/09/2012 10:58

Thanks very much everyone, all your posts are very helpful. DS will be seen again when he is 5, but we were told in most cases this type of allergy is likely to be lifelong. I'm just a bit puzzled again as I remembered he had pesto at his CM before his allergy to pine nuts was confirmed, and he didn't react in any way. It just scares me to think he might have had a bad reaction, and he didn't have an epipen then.

OP posts:
trixymalixy · 01/09/2012 11:14

DS had humous many many times before reacting to it. He's allergic to both sesame and chickpeas. Reactions happen the second or subsequent exposure, not the first.

bruffin · 01/09/2012 13:30

My DS is the same ate many things until the age of 4 then suddenly allergic to seseme, treenuts and peanuts.Looking back he may have had a very mild reaction to seseme when he was little but no other reactions before a weekend when he was 4 and had reactions to sememe and pecan. He then couldnt eat any tree nuts or peanuts.

He grew out of the peanuts by the age of 12 and now eats them regularly.
Allergies can happen to anyone at any time of life it is perfectly normal.

Schulte · 01/09/2012 15:34

Bruffin, how did you find out your DS had grown out of his peanut allergy?

I have a nut allergy myself and never avoided 'traces of' products. DD2 also eats those without any problems so far. I'd keep giving them unless you actually see him react, otherwise there's not much he can eat is there?

bruffin · 01/09/2012 15:42

We had him retested at 12. Still allergic to treenuts and seseme but the peanuts came out clear.

Schulte · 01/09/2012 15:43

And did they do a food challenge too? Or just look at the test results and say, go ahead and give him peanuts?

Sorry for hijacking the thread. Just good to hear from a child who has grown out of an allergy!

bruffin · 01/09/2012 16:02

They just did a blood test and said that he should be ok to eat them. No food challenge.

Schulte · 03/09/2012 20:14

Wow, was that not scary first time you gave him peanuts?

valiumredhead · 11/09/2012 16:29

We shop at Tescos for precisely this reason - their labelling is fantastic and you can make an informed decision.

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