Is this CMPI?

[WantToMoveNorth]

I have a 16 mo DD who had terrible reflux. At about 4 months old, dairy was removed from her diet & was she put on omeprazole and she greatly improved. She has been on Nutramigen until last week (Monday) as our paediatrician has stopped her prescription as her skin prick test for dairy came back negative (although I thought skin prick tests didn't show intolerances?) she is now on cows milk but she seems to be extra windy & since yesterday her poo has been very loose and mucousy. Is this Cmpi? Should she have had a reaction as soon as i gave her milk or does it have a cumulative effect so is only showing now? Should I fight to go back on Nutramigen or can she just drink things like oath now?

Thanks very much

Yes! Your pediatrician is an idiot! Call him/her back and say that you have had the symptoms you mention above. Have you seen a dietician? If it is really urgent that your dd goes back on diary free you can get it off prescription but it is hideously expensive (last time I did it it was £35 for AA and £12 for Nutramigen 1). Skin prick tests only show allergies, not intolerances, you are absolutely right. Ooo this makes me angry, as if we don't have to jump through enough hoops to get nutramigen prescribed, they then go and take it away based on flawed understanding.

Good luck

Thanks. I'd started giving DD yoghurts at lunch about 2 months ago & I'd noticed that she seemed more windy. I said this to the paed & she told me to buy lactose free milk as the skin pirck test would have shown a Cmpi. I did say that I'd heard differently & but she didn't want to listen. I hate going to see the paed- I feel it is such a waste of time! I might try going to my gp first, although they hate giving me Nutramigen as it is! I have 4 tins left so at least I can keep going for a couple of weeks. I might see if they can refer me to a dietician too.

I was excited when she started having milk- life is so much easier. I was hoping the loose stools were a bug or teething as its taken a week to come through. She doesn't seem grouchy though- i guess she can cope with it better.

I thought they all grew out of intolerances at about a year old? Does anyone else have a toddler with Cmpi? How strict are you and are you still on hydrolysed formulas?

Thanks

My DS and DD are both CMPI. DS outgrew the worst of it by 18 months meaning he could tolerate small amount of yoghurt and hard cheese. I gave him oat milk (not soya) plus we were still BF.

He's now 2.10 and doesn't drink cows milk but does have other dairy products. However they still make him windy but nothing like before. I suspect he'll be ok in a few months past 3 years old.

I always like hearing about kids that have grown out of cmpi - thanks Iggly! We are still waiting at 14 months now, not old I know but frustrating when we keep adding to the list of intolerances rather than looking at challenges but I like knowing that there is hope that ds will eat the foods we do at some point. The last set of stats I read said 85% out grow this by 2, I am clinging to this!

At the moment I really notice if a food slips through the net, ds is a nightmare the next day. Most of his reaction is behavioural, although that may be because he can't tell us he is in pain so it is the only way it is expressed. I try to be as strict as I can (its just my mum that doesn't think that her biscuit may have no-no foods in it, argh!) and ds is on Nuramigen AA, occasionally I use Kara for cooking but we only have one meal that we can all eat now so there is little point so mostly I cook with nutramigen.

I am very glad that ds has mostly intolerances rather than severe allergies because the foods he can't have are in everything and very well hidden. I am in awe of those of manage anaphalaxic (sp?) allergies. #trying to think positive!

I agree with the people who said the paed is an idiot. Most kids with CMPI do not have IGE to dairy (which is what the skin pricks looks for) but have non-ige reactions which tend to be delayed by hours-days after exposure.
They will also have an individual tolerance level which tends to get better as they outgrow the CMPI, so she may be fine with a tiny bit but react once you get beyond that.
Oatly and all the other non-formula milk subsitutes are not supposed to be used as a main drink until they are two as they are low in protein and fat, but it does depend on the rest of their diet. Our dietician was happy for us to use Oatly in addition to 2 breastfeeds from 1yr old, M would never take the vile fomulas.
He's largely grown out of the CMPI aged 27m, we even gave him whole milk this week without any dramatic ill effects. There is light at the end of the tunnel. Jen x