Is your cows milk allergic baby under a dietician?

[janey223]

Is your Cmpa or cmpi baby under a dietician? Our paed said he'd refer us to one but didn't and wondering if I should push for a referral at our next appointment.

His weight is fine (apparently too heavy according to hv) he mostly has fruit, veg, porridge and rice cakes, started a bit of meat and sometimes hell have egg or hummus. He still has 4 bottles a day (he dropped to 3 but woke up in the night for it so I added it back in) about 22oz total, add another oz if he's having porridge.

Thanks!

Oh, he's 6.5 months, Started weaning at 4.5 months.

No, he was referred but I cancelled it. He has a good diet and was literally off the percentile chart (very off, 28lb @8 months eek!) hes slimmed out a little now hes started crawling but he is well.

Plus my friend who has a cmpa saw one last week. Said she was crap, that figs have lots if calcium. And that was it.
Glad I didnt mission over to the next city to be told that.

We were briefly but it was a bit of a waste of time really - you can work out the diet on your own with a surf on the interweb. My dietician did however write a note to my (knobhead) GP and make him prescribe Pepti formula for us to use in cooking (I was bf and couldn't express) after he'd refused to do anything including a referal to the dietician. I love my HV who was able to get us in to see the dietician without the GP!!!

DS was but then he was very skinny (almost off the scale in the other direction) and it was useful to get some tips on getting calories into him...and reassurance re ignoring everything we're told re healthy eating... for him, healthy eating was more cake and less fruit and veg.

My DD is possibly CMPI and definitely allergic to egg (annoying as scrambled egg was my salvation first time round). If we confirm
that she needs to stay off dairy I wasn't going to push for a referral this time but just revise my list of calcium rich foods and equivalencies to cows milk products...

I guess it depends on the child's individual needs as well as your own - I definitely appreciated the reassurance first time round but am happy to go solo this time...

DS was, but I thought she was pretty useless tbh. I told her about the arsenic in rice milk!!

If your DS is a good weight and you're happy that he has a good balanced diet then he'll be fine.

He was but after a couple of appointments I said I didn't need to go anymore.... I didn't find it particularly useful.

We saw one with my dd2. She was very nice but not really as knowledgeable as I had expected but was fully supportive of my decision to stop with the re- introduction plan. She said my dd looked perfectly happy and healthy and not to worry as I clearly cared alot about what she ate and she had no concerns. I explained we would try again at two ish when possibly she will be more vocal and can tell us if she has a tummy ache. It was lovely tbh to have the reassurance she was doing fine and not have a hcp panic cos she couldn't eat a food group. not like there aren't a ton of alternatives :)

Dd saw a dietitian as part of her allergy testing appt. (shes allergic to egg and milk) I found it really helpful, she gave me loads of recipe ideas and websites where I could get more info. I also have a phone number to call if I've got questions in future.

Dd was 8 months we went and she also gave info about milk alternatives after 12 months and how much calcium etc she will need.

I probably could have found the info on the Internet but it saved me many hours on google!

Thanks!

Tbh I'm a bit worried about getting calcium into him, osteoporosis and arthritis run in my family (direct line, early onset of both).

He's not fond of veggies full stop never mind high calcium ones :-/ he's reacted to soya too so that's no good.

He's plenty heavy, he's on the 98th centile, I'm actually sick of hvs obsessions with knowing exactly what he eats - he has a very healthy diet! Pretty much everything is homemade and if it's not it's from those pouches with no rubbish added. He's just a wee chubs!

With that amount of formula I'm sure his calcium levels will be fine :) as he gets older and drops more bottles you can just start using formula or something like the vitamin enriched oatly in his food like banana custard, fruit smoothies , white sauces for pasta etc. As for veg could you not make something like the Annabel karmel hidden veg tomato sauce? Great for pasta, mince etc. He sounds like he's getting plenty of milk right now the food is just for fun at this point. It may be worth seeing a dietician in preparation for when he is a little older and u will need to make it up in his diet and she may also be able to advise u on a suitable milk drink replacement or back u up with the go on prescription milk :)

My cows milk allergic ds2 is now 4 years old. He used to be under a dietician, more because of his low weight than his allergies (cows milk is not his only one). However, she used to sit taking notes of stuff we had tried and said "I love having appointments with you, I pick up so many new ideas" , funnily enough we didn't see her after that.

Gp not go

Yes, we had one appt. Not hugely useful but I am hoping that she will be more use when it comes to advice on dairy challenges. We have discovered more problem foods since then so stupidly hopeful of getting more advice on our next appt. The despair squid has got me at the moment so I am clinging to hope where I can! Worth asking for just encase you get a good one.

MagratGarlik, I'm so shocked that your dietitian was so rubbish!

Yep, we see a dietitian every so often. To begin with, it was to make sure I knew what I needed to replace in terms of nutrients. These days I go to discuss how to challenge Baby to see if she's OK with milk. This last visit I finally got a copy of the 'Protocol' for reintroducing milk. I think our dietitian has been good, on the whole, but we are moving soon, so anything could happen!

Yes. We saw one before he was referred to the consultant. Had about 4 appointments. Then after he had an operation we were referred again. We can return if we want to chat.

It was helpful in getting him a calcium medicine prescribed. Also good to chat and feel support as our Dr's told me he had a virus for 6months.

my dd is cmpi and ours told me to stop breastfeeding at six months as there was no nutritional benefit after that, shocking, dd is long and skinny and has severe reflux so I was surprised when we were discharged with no follow up at 18 months but they were dire

at 9 months I had kept a food diary and they clearly did not believe the foods she ate and until I showed them they didn't believe she could feed herself

at a year they took me there was not enough calcium in her diet as they don't count breastmilk! ??

Thanks for all the replies - shocked at some of them though!

Can't believe telling you to stop breastfeeding!!!

I think it'd be useful for when he reduces his milk more (currently about 20oz but some days not wanting his afternoon bottle).

Good news is that he got into my bag when I went to the loo and munched my chocolate rice cake that had soy in it and no reaction!! He reacted to soy before so hopefully this means it's ok in small doses - yay!

My son cannot take too much soy but take abit with no reaction ( especially when cooked in food) and that helps

Pancake - yes, tolerating just a bit of soy is going to make my life so much easier - I'd only been able to find one loaf without it!