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Allergies and intolerances

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Just found out son has nut allergy

10 replies

Niceweather · 28/06/2012 10:03

Hi,
Went for allergy testing yesterday and it was confirmed that 12 year old son has nut allergy. A while ago, he was given a tiny piece of walnut by his grandad, he spat it out after a few seconds but his tongue tingled and his lips swelled up. The allergy testing showed a positive for walnuts but the brazil nut hive was much bigger and the doctor said that it was the biggest reaction she had seen (5mm I think). She said that this did not necessarily mean that his reaction would be as severe although I guess it puts him at a higher risk? He has epipen and syrup and school have an epipen and we have one at home.

Just looking for any further advice.... his grandad loves nuts and has a cupboard full of them. I have suggested that he now stops buying brazils and walnuts but he doesn't see a problem as they are stored in a cupboard. Although the test was negative for other nuts, the doctor said to avoid them but am I right in thinking that we can be slightly less vigilant with other nuts? Apart from the obvious, are brazils and walnuts hidden in any common food? Still coming to terms with it really....
Thanks

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CrustyBurd · 28/06/2012 10:11

I dont think they can hide nuts in anything anymore. You absolutely have to check ingredients of stuff.

As for Grandad, let him have his nuts (ahem...) just dont get them out the cupboard when youre visiting.

babybarrister · 28/06/2012 10:19

This reply has been deleted

Message withdrawn at poster's request.

CasaBevron · 28/06/2012 10:44

Hi Niceweather, sorry to hear your son's diagnosis. I have a ds with allergies to egg and cashew nuts. We were advised to avoid all nuts due to the possibility of cross-contamination - nuts tend to be shelled together in the same place so you really can't be sure that any will be 'safe' for him. We were advised that it would not be necessary to remove all nuts from the house, and dh and dd (no allergies) do still eat nutty cereal and cereal bars etc but they always wash hands and face and brush their teeth when they have done so. I also put any chopping boards, plates, dishes etc that they have used straight into the dishwasher to minimise the chances of nut traces passing onto anything else in the kitchen. Loose nuts would freak me out though - it's the nut dust that worries me, and I don't keep bags of loose nuts in the house.

Ref the skin prick test, I don't think 5mm is all that big ime - ds's raw egg was 13mm! However, all the test tells you is the likelihood of an allergy being present rather than how severe any reaction might be. Ds reacted to raw egg white touching his face with hives where it touched and a red eye where he rubbed it with the back of his hand (he got a tiny bit of egg white on his hand when I was baking) but no reaction at all on his hand Confused The severity of an allergic reaction can be influenced by all sorts of factors, for example if your immune system is already fighting an illness, if you have been drinking alcolhol, have recently done exercise, poorly managed asthma, the amount of the allergen ingested and so on and so on...

The Anaphylaxis campaign have a very useful section on their website which explains the law regarding food labelling better than I could, but put simply, a product that contains any of the 14 major allergens as an ingredient must state that on its packaging. There is no law regarding 'may contain traces', but you will find that most companies do give a warning if there is a possibility of cross-contamination during their manufacturing process. However, they don't have to. It is your choice whether or not you heed these warnings, most often it is unlikely that 'may contain' products would cause a reaction, but just because something has been okay the first few times you eat it doesn't mean it always will be.

I've written a bit of an essay here but I just wanted to reassure you that it does get easier. We only found out about ds's nut allergy last October, when he was seven months old, and I can honestly say that I am coping much better now than I did then. I am by no means out of the woods (pnd not helping matters, but CBT is slowly making a difference...) but I am starting to come to terms with the fact that our lives will not be the same as they were before ds and we just have to get on with as normal a life as possible for his sake. The advantage your ds has is that he is able to articulate how a food might make him feel, and he is certainly past the stage of going round shoving everything in sight into his mouth! Again, the Anaphylaxis campaign has a section on its sight for kids as they get older and from what other posters have said, are very good on helping children make the graduation from being protected by their parents to taking on the responsibility for safeguarding themselves.

Good luck, and keep posting for advice - there are some very knowledgable parents on here who have listened to me bang on and on about ds helped me immeasurably since ds got his diagnosis Smile

CasaBevron · 28/06/2012 10:46

'sight'?? doh! site

Niceweather · 29/06/2012 18:14

Thank you so much for your replies. It's a big shock when you first find out but I am already getting back to normal again. I remember several years ago a friend of his came to his party and we were given his epi-pen and warned about his allergy to nuts. I remember feeling quite scared and intimidated. A bit more all around education would be nice, bearing in mind how common it seems to be.

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topiarygal · 30/06/2012 07:34

I'm so sorry to hear this! They Royal Free try to get teenagers to pop mini strips of anti histamine pills in every pocket/ wallet/ bag so in they've forgotten their epi-pens they've got something to slow the reaction.
Food labeling is good and honestly, it does get easier
Good luck, you!
tx

Niceweather · 30/06/2012 21:24

Thanks for the tip Topiary, I will do this. He is a fussy eater and he's got to the age of 12 without even trying brazils and walnuts but I don't want to get complacent. The reaction from the walnut was enough to scare him. It's scary to imagine what actually eating one hidden in something could do to him.

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Nuttyprofessor · 30/06/2012 22:59

My DS suffered anaphylaxis due to a nut allergy about 6 weeks ago. This was the first we knew of it. He is 11.

The only positive is that our ds's are old enough to understand what they can and can't eat.

My DS is a fussy eater too, I firmly believe this is a natural instinct.

Good that you found out before any severe reaction occurred.

Niceweather · 01/07/2012 07:25

That must have been awful. What did he eat? Hope he is ok now. As my son has not actually had anaphylaxis, it all seems very hypothetical at the moment but terrifying nonetheless. The doctor said that it was likely to happen at some point! I feel rising panic at the very thought of it.

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Niceweather · 04/07/2012 06:27

Just got the letter back from the hospital and the brazil nut weald was 15mm x 20mm and the walnut was 3mm x 3mm. Thought I had better correct the misinformation I wrote about the size earlier as the doctor said it was the biggest one she'd seen.

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