Finally got DD's diagnosis!

[DashingRedhead]

Yes she is coeliac. This is no surprise, as consultant told us it was a 90% likelihood and we've already seen a change in her as we went GF the day after the biopsy. But it's nearly five weeks since the biopsy and I've been finding it so annoying that it's taken them so long to tell us. Anyway, we know now and even though we were expecting it, it's SO MUCH better to be certain. Feel like we can just get on with it now!

How about the others who were waiting to find out?

That's good news Dashing. Sounds odd to say that your child being coeliac is 'good news' but getting a diagnosis and knowing that it's something that can be quite easily managed is so important. I'm glad the gf diet is working well too.

So happy you know, that uncertainty is just awful. Now you can move on and work out how to help your little dd. :)

Exactly. It is good news because it's certainty.

But my lovely little DS, 2.8, has been complaining of tummy ache for nearly a week and is starting to show signs of developing constipation - exactly what DD did at a similar age. I think the best thing to do will be just to have the blood test at the GP's, and get it over with. I don't really want to go through the whole hospital thing yet again. Then we can just accelerate the process.

That's a shame Dashing but exactly surprising as there's such a strong family link with coeliac disease. At least you know the drill now and how to deal with it if the results are positive.

Sorry that should have said NOT exactly surprising - more haste less speed!

Hi Dashing - we're in a similar situation to you. DS1 (4.5) was diagnosed with coeliac by biopsy earlier this year, and we have since been seeing similar symptoms in DS2 (2.11)

DS2 had a negative blood test, but we went ahead with the biopsy anyway (it seems the blood test is not as accurate in under-3s). Waiting for biopsy results at the moment but he's been gluten-free for 2 weeks now, and already seeing improvements in him. Whatever the results of the biopsy, we will continue keeping him gluten-free, and if necessary, do a gluten-challenge when he's older and test again. Can't face watching him go through the slow decline that DS1 did.

In case it helps - I actually thought it was better for both of them to be coeliac rather than just one. It means they will get some mutual support, not feel alone with it or so 'different'. And throughout their lives they will always be able to eat safely at each other's houses.