Fao mums with children with milk allergy...

[BucketOfFuckIts]

How severe is it? Does it require an epipen? Is your child ok with baked milk? Have they tested to see if they're ok? Do they gave an anual blood test/SPT to see if the severity has lessened?

Thank you.

Dd is only 9 months, she doesn't need an epipen so I guess her milk allergy is not that severe. She comes out in hives if she gets milk on her skin or if I touch her and haven't washed my hands after handling milk. We haven't tried baked milk and have only had first skin prick tests last week. They are going to repeat spt and blood tests in a year and possible do a challenge then too.

My DD had a reaction to milk at 8 months (hives, swelling, vomiting) and since then has always carried an EpiPen. She has had a blood test every year since then, and we completely avoided milk including baked milk for the next 6 years. At age 6 she had a challenge at the allergist's office to see if she could tolerate milk, but she failed the challenge. Another challenge at age 7 - her reaction to milk during that challenge required the EpiPen.

Last year at age 8 she had a challenge for baked milk which she passed and has been eating baked in milk for a year now. I am hopeful that she may be on the way to outgrowing the allergy fully, but she still carrires an EpiPen.

Who knows if she would have been OK with baked milk from the start - the advice of the allergists then was to completely avoid all forms of milk as this was thought to improve the chance of outgrowing the allergy.

At 7 months my DS reacted to a very small amount of diluted formula with hives, vomiting and wheezing. Since then he has had no milk, either raw or baked, but when he touches milk he gets hives. He has had four skin prick tests and two blood tests and always tested positive to milk. However, he can tolerate Aptamil Pepti which is made with hydrolyzed whey, and the specialist thinks we could be looking at a hospital challenge for baked milk quite soon, as the skin prick and blood tests show an improvement.
He has an epipen anyway because he has also had severe reactions impairing breathing to wheat and lentils and other foods.

My DS2 has a milk allergy (amongst others). He went into anaphylactic shock aged 6 months, when I gave him a fromage frais. I had to fight tooth and nail to get an epipen, but finally got one when he was age 3 and had already had 3 anaphylactic reactions.

He has had a couple of RASTs done (he's 4 now). We have an appointment with his consultant next week (it's been a year) and I'm hoping we can agree to a baked milk challenge as he recently had a spoonful of milk by accident, and we didn't need the epipen.

He also get's hives on contact.

My 6 year old has the non anaphylactic delayed type, are you interested in that? We've never had a test of any kind and I diagnosed it from the Internet after 5 months of rectal bleeding, eczema, colic and vomiting. The doctors just couldn't join the dots. I 'blame' the high spectrum antibiotics that we both had around his birth although I wouldn't have it any other way as they saved his life. We accidentally gave him something with milk at age 4 and he was fine, he now has loads of milk product and tolerates most although his body functions better without. He can't eat uncooked mozzarella!

My DD had a severe reaction at 6 months when she had yogurt for the first time. She has not had a reaction since then (now 2.2) to milk, but had one other severe reaction to what we now think was nuts through cross contamination. We did not get epipens until her second reaction, and even then, we were prescribed these reluctantly.

We have never tried baked milk. My DD did once steal a biscuit from another baby when she was about a year old and this contained skimmed milk powder. She didnt react to that, but we have never discussed food challenges with the consultant.

My DD was tested at 6 months and then again at 16 months - the 16 month test was only done because my DD had reacted to somthing else, we were told that, otherwise the tests wouldnt be done again until she is 3.

My DS (10) has a milk allergy, had his first reaction at 4 months and skin contact hives etc.
He hasn't had a reaction for over a year now, but I'm not sure how to get him tested. Dieticians never did skin prick tests as it was clearly milk causing the allergy, and he now has "may contain traces of" products with no problems.
I am wary of introducing a milk challenge at home as he will have at least a lactose intolerance, as his gut cannot possibly contain any lactase to deal with it.

My little one was diagnosed at one month, due to extreme cramping, diarrhoea and burnt skin on her bottom. Believed to be CMPI rather than allergic as such, she has not had any tests yet but am going to ask for some to be done. She has been tried with baked milk in biscuit form. She doesn't seem to react as strongly as she used to, but is still sensitive to the tiniest bit.

Sorry, forgot to add - no epipen.

Hi,

From birth my son reacted badly to his formula. Stomach cramping, constant farts, crackly chest, screaming, reflux and constipation. I switched him to C&G comfort milk on advise of HV (partially broken down formula and reduced lactose, it's for colic and constipation). This seemed to help a bit but he was never quite right.

When he was 3months old he had an allergic reaction to penicillin, which caused colitis. From this moment on it got worse. All the above symptoms times 10 plus he went from sleeping through the night to waking screaming all the time.

We sore a paediatrician in April who diagnosed chronic constipation and put him on Movicol. Poo consistency is now better but all the above symptoms are still present and getting worse.

Finally today, after I badgered the GPs and paediatrician so so much and refused to give up, he was seen by a paediatrician today and diagnosed with a cows milk protein intolerance. He has been prescribed special milk.

I must also add he suffers from eczema, hay fever and asthma. He is 10months old and i have beeb fighting for a diagnosis for that long. Do not give up and please follow you gut instinct. I did and I'm so pleased I now have a diagnosis.

He does not have an epipen but is not allowed any dairy or soya in his diet at all.

I hope you get some answers and some help very soon.