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Allergies and intolerances

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its never gets any easier does it!

17 replies

eragon · 26/05/2012 15:07

Daughter is avoiding milk and soya, suspected intolerence to milk but jury is out for now about the soya. has other ige enviromental alleriges after SPT.

Went out for big food shop and added soya to our list of not to buy. In total just for the kids (not me and my diet problems) not going near, peanuts , tree nuts, egg, yeast extract, beans, kiwi and milk.

Thats a very slow walk around the shop reading and trying to plan safe meals for everyone. spent a fortune as usual , and wanted to have a bit of cry with the frustration of it all.

Its been the same with every new addition to the list. so this is a bit of a pity party thread..

OP posts:
lilbreeze · 26/05/2012 15:21

If she's intolerant to lactose (rather than allergic to milk protein) then she should be able to have Lactofree milk which makes things much easier. Also I believe some cheeses are naturally lactose free - possibly cheddar??

It does get harder as the list grows, but gradually it also gets easier as you learn what to buy and shopping gets much quicker! How old is your dd? Some allergies and intolerances are outgrown quite young - fingers crossed!

eragon · 26/05/2012 15:42

have been advised to removed all froms of milk, if it is lactated we cant give it to her.

OP posts:
freefrommum · 26/05/2012 20:16

You're right eragon it's bloody hard work! I thought it was bad enough with DS's allergies to contend with then DD got diagnosed as coeliac last year and that meant a whole new set of things to avoid. It's pants and I do sometimes feel like crying too but in the end we all just get on with it don't we because we've got no choice!

greenbananas · 27/05/2012 09:00

soya is a right pain to avoid - how horrible that you now have to add that to your list Sad We avoided soya for about 6 months when DS was little (he still can't eat much of it) and I know how difficult this can be. Will you need to start making your own bread?

Shopping can be so depressing. I went to a different supermarket the other week, and it took me about an hour to fill a small basket because all the own brands of our usual stuff had different ingredients. I felt like crying, especially when I saw other mums breezily filling their trolleys with anything they fancied, and taking advantage of all the special offers without having to check ingredients first.

Hope you are feeling better. You're right, it doesn't get easier.

WhiteTrashed · 27/05/2012 09:58

It is really hard. And the money spent is so much. Soys is a bitch to avoid as well, cows milk you can use alternatives but soya is in things that arent easy to make your own versions of, bread, crisps, gravy.

How old is she?

eragon · 28/05/2012 10:05

my girl is 13 and is taking this so well. The upcoming practicalities of sorting out sch trip to germany, and we are going to france for our family holiday are all looming in the back of my head.

We took her to macdonals recently and had only two choices that she could eat, other than just fries.
so eating out avoiding soya is going to be tricky.

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WhiteTrashed · 28/05/2012 10:48

Is it possible to have a soya intolerance then? What are the symptons? I asm because its something Ive wondered about my own son. I came to the conclusion that someone couldng be soya intolerant (not sure why I decided that though!)

Are you having to stop it all and start from scratch? Could you not give her a small amount of soya milk and see what happens?

WhiteTrashed · 28/05/2012 10:49

Is it possible to have a soya intolerance then? What are the symptons? I asm because its something Ive wondered about my own son. I came to the conclusion that someone couldng be soya intolerant (not sure why I decided that though!)

Are you having to stop it all and start from scratch? Could you not give her a small amount of soya milk and see what happens?

alison222 · 28/05/2012 11:37

I feel for you - I remember when DS was off both soya and milk ( he has outgrown those allergies but we are left with eggs, nuts, sesame, and fish/seafood). Shopping took ages.

I seem to remember bread was almost impossible to buy and that is why we ended up with a bread machine. There will be a lot of meals involving meat rice potaotes and vegetables.

Some biscuits ( the plain ones usually) are dairy free - and usually the "cheaper" ones that use margerine rather than butter.

You can make diary free cake though if you use dairy free spread/ Stork margerine ( the hard blocks).

I don't know much about yeast extract though so I bet that is hard. - does that mean no bread as it has yeast? so only unleavened stuff?

eragon · 28/05/2012 12:36

you can be intolerant and have ige allergies to soya. esp as its a bean and is a legume like peanut.

my son cant eat stuff like marmite or some crisps with yeast extract.

ok with bread as its cooked to high temp.

some high histamine foods are a problem at the moment, strawberries , raw spinach , raw tomatos. etc.

we have sourced hovis wholemeal for daughter which is only bread soya free.

and use orange juice with calicum and extra supplement due to no milk in diet.

have been told to not give her anything that comes from a udder or any soya!

OP posts:
heliotrope · 28/05/2012 14:29

Poor you I do sympathise and we feel for our children as well don't we that they have to live with these restrictions to be safe.
I have alwasy been grateful not to have to deal with soya wheat or nuts (just milk, eggs, fish so got off lightly), but this might have changed, well it has changed, since a scary anaphylactic / ambulance incident on friday, which seemed to be caused by brazil nut, so now I guess we're effectively nut free too until we get further advice. Not that my son eats many nut based foods, but i feel that this has shifted us into a more serious / probably lifelong / epipen world.
I've never worried about the 'may contains' and 'line handling' but maybe I will have to now.
I seem to have offloaded my problems on your thread, I guess that is what we do on here though! I did post my lolly ideas first which made me feel better too!
I try to tell myself that I've been given ds to look after because I am going to be good at finding him nice things to eat! I'm looking at is as a challenge (on a good day)

Is wagamamas any good for you for eating out? I saw it had what looked like quite good allergy info.

rosehb · 28/05/2012 15:01

Hi I also feel for you :( we used to avoid soya, (dd allergic to milk, egg, nuts). We still try to limit soya as dd gets a lot of sore tummies.. Anyway just wanted to say re bread: Tesco oatmeal farmhouse batch is soya free (and nice). A lot of waitrose own bread is soya free. Sainsburys always been a pain as found very little suitable so if we're there we get ciabatta which is generally soya free. Depends where you shop as to if that's any help- I seem to end up having to go everywhere to get different things...

alison222 · 28/05/2012 16:51

Ah rose but Waitrose own bread has milk in it as I found when trying to buy both soya and milk free- or at least it did unless they have changed things...

rosehb · 28/05/2012 17:05

That's weird. Never seen milk in any of their sliced bread, though have done in fancy rolls, but only look at the prepacked stuff as can't do bakery with cross contamination- is that what you mean? We buy waitrose lovelife oatmeal, wholemeal with seeds, wholemeal etc all just may contain sesame - and wheat obviously!

rosehb · 28/05/2012 17:12

Alison - I guess though if your ds is allergic to sesame then that rules out a lot for you :( I see why you would need a breadmaker.

alison222 · 28/05/2012 17:22

Ah Ok we have not had to do this for a while so they have obviously changed the formula of their bread. 7 years ago there was nothing that didn't have either soya, milk or sesame seeds in it. It was a nightmare.

WhiteTrashed · 28/05/2012 21:10

Also calcium wise, green is your friend. The darker the green (I go for broccoli or cabbage (I know you mentioned high histamine Im afraid I dont knlw if those are)) the more calcium they have.

Also, Tesco do a lush wholemeal bread which is soya free. I know you found one anyway but its always good to have options. Hovis do a seeded one which doesnt have soya in the ingredients but turn it over and the allergy advice says 'contains soya'. I dont know what that is all about but thought id mention.

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