Anyone else's dc moved from Epipen to Jext?

[BloooCowWonders]

Newly diagnosed dd (dd1 already has nut allergy) was prescribed Jext as the new wonder drug :)
Apparently doesn't need to be kept under 24 degrees (not a problem at the moment obviously), but should also last longer. Except that the first batch from our chemist still has only a 12 month shelf life. Hmmmm...

Hello. DD has epipens at nursery and we have jext pens at home. I hadn't realised they wrre different drugs. i assumed it was just a different delivery system. I don't know if we should be trained on the new style. Were you?

They work the same way - lid off, plunge in etc. It is just the storage that is supposed to be different, as far as I could understand...

That's good to know.

I even read the jext instructions and thought it injected on 'stabbing' whereas the epipen was a 'stab' and push of the button at the top. I'll have to re-read this now i think. How can i get simple instructions so wrong! [Embarrassed]

If you go on the Jext website you can order a trainer pen for free (called a Jext Simulator) and there's a video on how to administer: www.jext.co.uk/ plus you can also register for alerts when your real Jext pens are due to expire. I'm planning to ask to swap to Jext next time we need new ones because they last longer, don't have to be kept below 24 degrees and if you do have to use them, the needle doesn't remain exposed.

hi there
we are new to all this, ds1 has newly diagnosed nut and egg allergy.
I could really do with advice about the jext.
Our gp has said he is only allowed to prescribe one.
it HAS to be kept on ds2 at all times and should not be in the school office.
He is 5 this just doesnt seem practical... help!

freefrommum, thanks for the link re the JEXT pens. I've just ordered the trainer pen which I've been meaning to do for a while.

ByThePower, hello. DD has been prescribed 2 lots of 2 pens. " to be ket at school at all times and 2 for us to carry around at all times. It seems daft that your GP is saying he's only allowed to prescribe 1. Most people are prescribed 2 so that if the first isn't effective within 10 or so minutes, the second can be given.

I'm sure your GP can't be right in this. Also, DD's school insisted on having some kept on site to avoid confusion with her drugs being carried t and from school. I told our GP this and he was fine with it.

Could you speak to your DS's allergy doctor or nurse and ask them to write to your GP about this. There are also neew NICE guidelines that have been published which explain the care that people with allergies should be getting but I'm not sure if there's any advice on there about this but it might be worth googling.

Also, the anaphylaxis campaign or AllergyUK may have something that you could print out and give to your GP. Both have brilliant helplines.

Hope this helps.

Our Gp has been brillant we have two at school two at home and two that we carry in her emergency bag when not at school the shelf life thing is a pain just renewed one set and they only have six months on them

stepmad that is why the jext ones are better, Iirc 18 month shelf life and no refridgeration concerns
thanks for your help, I have another appointment with the gp tomorrow so will push her then.

You definitely need to go back to the GP and demand another epi-pen. A 5 year old should not be carrying around an auto-injector in school and I'm sure the school would not be happy about it either. My DS keeps 2 in school and I keep 2 in his medical bag that we take everywhere plus they recently agreed to prescribe 2 more to keep at the childminder's house. Contact your DS's consultant or allergy nurse if necessary as what your GP is saying is rubbish and very dangerous.

Have to be over 15kg to use Jext. We are nearly there at 14.1.