Eczema support thread

[AnAirOfHope]

For all things eczema related.

Hi i would like a support thread for eczema as my dd had mild eczema from 5 weeks old and she is now 20 weeks old and i feel we are only just starting on our journey to control and live with this condition.

We are currently using Diprobase ointment emollient about 5 times a day and Modrasone cream 0.05 Alclometasone twice a day for 4 weeks. All this has not touched it and its still red head to toe.

I have washed all clothes in fairy non bio, only cotton clothes and bedding, snuggle paw sleep suits and i'm bf her.

I also have allergies and hayfever and dyslexia.

i would like to hear other peoples experiance and what has help.

Thanks

agree with foxinsocks, I think insisting on a paediatric dermatology referral is the way to go - or even ideally (IMO) a paediatric allergy referral. But as you mentioned that referrals into London tend not to happen where you are and there is a paediatric dermatology service in your Trust, asking for that might be more fruitful. Also, National Eczema Society Helpline might be useful to help prepare for discussion with GP if unwilling to refer.

Seeing a Derm in May (16th I think??) though it's a Derm. nurse in an adult clinic.

We have tried Diprobase, Doublebase, fucidin (for minor infections but it does diddly squat and she ends up on the anti-bs anyway), Eumovate (which worked until she got her next cold then every eczema patch she'd ever had flared in one go), Dermol 500 (pearly looking lotion??) for the bath, Hydromol, Hydromol mixed with Dermol cream (1 part Dermol to 3 part Hydromol), now Hydromol and Cetraben.

She has another weeping patch on her back about 1" by 1/2" so not big but she's on day 2 of the anti-bs so it should be clearing up not getting worse. DH thought she'd poo'd but it appeared to be the stink from her weeping patch....

I just don't get that how this is mild eczema - that implies to me a few patches that are controllable with a cream with in a couple of weeks at worst with regular creaming to keep it at bay. Not constant screaming in the night for cream, weeping patches, skin staining, cracking open at the joints, plus the usual dry patches - that don't respond to (very) regular creaming and compression garments. Her prescription for the Hydromol says apply 4 times a day - I did it 4 times from 9.30am to 12pm one day (this is excluding her morning slathering). If I stuck to the prescription advice she would spend all day hacking at her skin and screaming . It's just not working.

Oh and I noticed skin like crazy paving on her neck and cheek so it looks like her face will needed creaming too now - hopefully this will mean it doesn't get like her body.

DD1 gets cellulitis frequently (5 times in 12m) which she gets the same anti-bs for (fucidin cream [again never works] & fluoxicillin [which does]). Is this connected as it's the same treatment? Or is it that they are passing bacterial infections to each other? A question for the Derm. Nurse most probably.

Sorry for the massive whinge - if I unload with friends or mums at the school I just seem to get 'well XX had eczema and we tried Diprobase it really worked in a day' - it obviously WAS mild eczema then.....

Thanks ClaireOB I may give that helpline a call. I found the Arthritis helpline fab when DD2 had JIA so I have high hopes

How are the itchy ones today?