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Allergies and intolerances

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DS having a reaction to something - help please

27 replies

cutegorilla · 25/02/2012 19:00

Probably nuts, he had a chocolate bar, he ate most of it unfortunately. He's 4. I gave him 5mls of Piriton but he's still not right. I think he needs to be sick. WWYD?

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Casmama · 25/02/2012 19:03

More piriton - was told by a consultant that it is very difficult to overdose on piriton. How serious is the allergy?

Casmama · 25/02/2012 19:05

I don't think I would be trying to make him sick as you don't know how much has been absorbed and it would probably be very unpleasant for him. Does he have a history of anaphylaxis?

cutegorilla · 25/02/2012 19:09

He's been sick now (himself I wouldn't have tried to make him) so I've given him another 2.5mls. Good to know it's hard to OD on it. He's looking a bit better now just pale.

We don't have an epipen for him because his reactions have always been managed with piriton before but this is the worst reaction in a while. He's normally ok after a dose of piriton. Bless him.

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cutegorilla · 25/02/2012 19:10

Should've said - thank you!

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Casmama · 25/02/2012 19:13

No problem, glad he's a bit better now. Maybe worth a visit to the GP just to check whether there is anything else that can be done in future.

cutegorilla · 25/02/2012 19:17

He's definitely looking better now, phew. Got to love MN for there being someone there to help so fast! I'll discuss it with his consultant at the next appointment which isn't too far away. I wish I knew what it was in the chocolate that set him off.

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ZuzuBailey · 25/02/2012 20:19

My DS (allergic to nuts) once had a reaction to a well-known brand of toffee bar.

It took emails to the manufacturer to find out that it could have come into contact with hazelnuts somewhere else in the factory.

Very scary isn't it? Glad your little boy's ok now, but I think it might be an idea to get an epipen for him as reactions can be unpredictable (DS has never had a bad one but carries his all the time just in case).

Also, if you become a member of the Anaphylaxis Campaign you can sign up for text alerts for any product recalls due to allergens.

cutegorilla · 25/02/2012 21:04

I've asked for an epipen but the consultant won't give us one. He doesn't seem to think it's necessary. I've signed up to the Anaphylaxis Campaign but don't get the text alerts I'll look into that. Thanks.

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mumat39 · 26/02/2012 00:01

Hi cutegorilla

Our DD has a nut allergy along with a long list of other foods. The Allergy Nurse and her allergist, both advised that we steer clear of foods that have the 'may contain traces of nuts' or 'made ina factory that handles nuts' food warnings.

The allergy nurse described it as a bit like playing russian roulette and that you never know when a choc bar with the may contain warning might actually be contaminated. She said that you may eat 9 bars of a chocolate and be fine but the 10th might have nuts and it could be dangerous. I was scared stiff by this so have avoided any foods that have these warnings. Maybe you could avoid things with those warnings until you've spoken to the consultant. If your DS is desparate for chocolate, we buy Kinnerton which has a Nut Safety promise. They are usually available in supermarkets and I found some easter eggs in the local 99p store.

The only trouble with trying to avoid these warnings is that in some retailers, they seem to put this on all sorts of foods so it can make shopping more difficult.

Take care and hope you DS is feeling much better soon.

cutegorilla · 26/02/2012 09:27

I'm beginning to think we will have to avoid the "may contain..." things. The consultant said it wasn't necessary to, but even if his reaction last night was not life threatening it was pretty horrible for him :(. He is allergic to pretty much all nuts but hazelnuts has been the worst as far as I knew. At Christmas he was given chocolate with hazelnut paste listed as an ingredient (don't get me started) and didn't react as badly as last night which does make me wonder what it actually was.

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eragon · 26/02/2012 10:40

is your consultant a pead with out any training in allergies? (curious) .
we were not given a epi pen after our first visit to our allergy clinic, but we were given offered them on the next visit, after we explained the new allergies and symptoms, however i already had them after going to the GP.

what symptoms has your child had during these reactions?

do you think that you could recognise the signs of a severe life threatenng symptom?

just because your child has had previous mild reactions it doesnt mean that severe one isnt possible. there is not such thing as a mild allergy in that respect.
does your child have other allergic problems such as asthma, ezcema and environmental allergies, as they too play a part in the reactions.

web sites like the anaphylaxis campaign and allergy uk can help, or you can ring the anaphylaxis helpline for further help and advice.

cutegorilla · 26/02/2012 13:26

Well it's the peadiatric allergy clinic we go to so I'd hope he does have training. He doesn't have asthma, he had eczema as a baby but has largely grown out of it. He had an allergy to egg white but has grown out of that so it is just nuts AFAIK. Normally he starts coughing and we give him piriton very quickly then he's ok. The worst reaction he had was the first where he was coughing and went blotchy and was sick a couple of times. Of course I didn't immediately realise what was happening that time so didn't get the piriton into him so fast which may explain why it got so bad.

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eragon · 26/02/2012 16:35

coughing is NOT a good sign, please mention this to your allergy clinic when you go.

does he ever get a hoarse voice?

what is there explanation for why you havent been given epi pens?

Beamur · 26/02/2012 16:44

I'm also allergic to hazelnuts but find apple skin can also give me a reaction. I always wash apples before eating. I find it irritates my throat - is it possible your son could be sensitive to any other foods?

cutegorilla · 26/02/2012 16:56

eragon I've told them about the coughing, we go through it all in detail every time I see the consultant, which has been every year since just before he was 2, and there's a dietician in the appointment too. The consultant has said that his reactions are not bad enough for him to need an epipen although he hasn't ruled it out for the future. Last night was the worst reaction he has had in a long time so obviously I will be discussing that with the consultant when we next see him. I have asked about epipens every time we've seen the consultant and I will do again but I can't force him to give us one.

Beamur that's what I'm wondering, if it is actually something else setting him off that we don't know about. I'm pretty sure it's not apples though, he eats loads of those with no ill effects!

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babybarrister · 26/02/2012 17:00

This reply has been deleted

Message withdrawn at poster's request.

eragon · 26/02/2012 17:19

yeah, chocolate , biscuits , cakes etc all very high risk products from a cross contamination view point.
when it comes to 'may contain' it means it might have lumps of pieces of nut in the chocolate. also high in true traces because of 're worked chocolate' which is pushed through the line to pick up bits of biscuit and nut, and then this choc is put back with other stuff before they make the next choc bar.

bars share lines, for instance mars bars with snickers..

are yr consultants hoping that he has a chance of outgrowing by 7 yrs, (he has a 20% chance before that time) ? have you asked them if he has a accidental reaction while ill with a virus, what are the chances of a severe life threatening reaction?

whos yr main immunologist chap? being nosey u dont have to tell me, ours is proff warner btw, who is fab.

btw my son is not asthmatic, had egg allergy and nut and tree nut allergy, and was given epi pens, mainly for symptoms like coughing , facial swelling , and hives. we got our epi pens from the gp, and once we returned to the clinic they offered them to us after hearing about the last reaction.

we only used them in the last few years , and he had them from 2 , and used first one at 12. since then he has needed them 3 x. has had lots of mild reactions. we write down a list of questions for the docs and talk about them before we all go.

cutegorilla · 26/02/2012 17:32

tbh I normally stick with chocolate that he's had often before and we know is ok. He chose this bar yesterday though and we let him have it. I think I'll be sticking with the old favourites from now on. Poor boy it's not fair when his big sister gets to eat whatever she wants but he's very good about it really.

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cutegorilla · 26/02/2012 17:34

At what point do you give the epipen eragon?

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eragon · 26/02/2012 18:32

stick to old favourites with regard to chocolate as those that dont contain any nuts!

pls reffer to anaphylaxis campaign for more clarifications on allergy symptoms.

that said,
when you are looking at someone who is going through an allergic reaction you need to think about what is happening on the INSIDE.
you need to consider if someone is having difficulty breathing, airways becoming swollen, or blocked, you will see that person unable to speak clearly a child may whisper , or have drool pouring out and be unable to swallow, or they may talk in a horse voice, or cough, because of throat swelling, or swollen tongue etc.
they may also have an asthma attack, which again is a serious sign of difficulty breathing.
they may be very pale, grey and clammy, or may go blue around the lips, or be floppy, or dizzy, all signs of lowering blood pressure.
they may suddenly panic after being calm, this is often discribed as a 'sense of doom' again, serious sign that something is going very very wrong.

i have given my son a epi for,
serious throat and chest pain, unable to talk loudly at the time. very pale with white lips.

for swollen tongue, as airways being compromised, if tongue is swelling throat may be swelling shut as well.

for that sense of doom. calm mild symptoms, treated with piriton,with mild lip swelling and couple of hives, feeling sick. all calm then boom going even paler saying that 'its coming and i cant do this any more'!

at each time epi pen worked very quickly and instant relief seen on his face.
we know that epi pens work, we know that we dont wait until true breathing problems start, as this means we have less chance of a effective method of controlling symptoms before he gets to the hosptial.
we dont panic, we calmly give epi, and call for help. we all know the action plan, we all know the symptoms. this helps you and your child cope and adjust to living with life threatening food allergies.

ZuzuBailey · 26/02/2012 18:32

DS always avoids anything with 'may contain traces of nuts' on the label. In fact he's so careful he won't eat anything that doesn't have allergy information stated.

He's had eczema since he was weeks old, had his first reaction to peanut butter at 11 months (before anything much was known about food allergies) and didn't develop asthma until he was in his twenties.

ZuzuBailey · 26/02/2012 18:34

eregon - how scary and how difficult it must be to stay calm.

Luckily DS has never (touch wood) had to use his epipen.

BoffinMum · 26/02/2012 18:47

I am not a nut allergy sufferer but I do have a bad allergy to birch trees that put in hospital a couple of years ago (full on anaphylaxis, very scary). FWIW they told me to take double the recommended dose of an antihistamine as soon as I felt it coming on, and to carry this around with me in my purse so I had it available at all times. It's worked well and I think it's worth asking consultants about this as an emergency measure.

cutegorilla · 26/02/2012 18:51

Thanks for that eragon, it must be scary reaching the point of needing to use the epipen. I would feel happier if we had one, just in case, I have to say although the consultant seemed to be very confident that it wasn't necessary.

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cutegorilla · 26/02/2012 18:56

Boffinmum that's what I do now. I never go anywhere without the piriton, and I always give double the recommended dose. DS has piriton at school and has a care plan there (which includes details of when emergency care is needed), and pre-school was the same. His teacher and TA know and are really careful what he has at school. He has a bag of safe sweets there that he can have in place of stuff that is handed out for birthdays. It's something that we have to be aware of all the time.

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