I had a very difficult time with DD. She had a discoid eczema that looked like chicken box. I recently looked at a photo of her when it was at it's worst ( when she was 4/5months) and she looked shockingly bad.
The GP kept saying we need to get it under control. But using the low steroids wasn't touching the sides. So I was using them but getting nowhere.
From advice on here I went to an eczema nurse who was incredibly helpful and suggested stronger steroids and then a consultant dermatologist who reassured me about steroid use and told us to carry on.
Alongside this I went to an eczema workshop at st Thomas - this was a self referal as I'm in n london. I learnt so much- things that you don't realise can make a difference. I know how hard it is an disheartening to feel like nithing makes a difference Or works so it was incredibly useful to go somewhere and Learn what Does work or whats out there to try. They also discuss alternative therapies. I thought i kew everything but I learnt how to put emolient on and ( after a bath within 3 minutes!) to do it constantly, i do it 5 times a day. To not use steroid too sparingly, to wash things at 60,to do lots of hoovering and banish soft toys.
Now the eczema is under control but she still gets flare ups so I still use super strong steroids. I don't question it because I know there are no cures, only ways of managing it. I use enough steroid at a high strength to make sure it's soaked in but I do this only when it looks angry.
We almost went to Chinese medical practitioners but touch wood, so far she's OK.
If you need any more info just ask. Also cardimimginger and alison1 were very helpful. And lots of others on here!