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Allergies and intolerances

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May I weep a bit here about DS's new test results? :-(

83 replies

Chandra · 03/10/2005 20:56

Well, the title says it all, I'm feeling pretty miserable, we have just had a call from the doctor to tell us about the latest allergy tests of DS. Forget about nuts allergies, as we have already assumed the idea of one. DS had intolerance tests which I hoped were not very accurate, now, with the new diagnosis, my hopes have just gone down. Apart of being intolerant to most things all people eat, now we know that he is also allergic to more things. I'm stressed just to feed him as I never know if he is going to react badly to something he was oK with a couple of weeks ago, he is having reactions to food he had always being fine with .

The doctor has also said that DS has anemia, we have tried to avoid many foods that cause reactions that obviously he has started missing up in nutrition, and there's no way we can get an appointment short term with a dietitian or anybody who can throw some light in how to feed him well. I'm very sad, I know lost of people are far worse than he in terms of allergies but I can't stop feeling bad about what he is going through.

OP posts:
tatt · 09/10/2005 04:34

not all bread has milk in it. We seem to be OK with Hovis. If your son is OK with casein he probably has problems with whey, chandra, which you get in some biscuits. He's probably be allergic to goats milk too - allergies are usually to both because the proteins are similar, food intolerances aren't always the same because goats milk is more easily digested. Worth getting him tested when you go for a repeat test. Also worth asking about lactase although personally we haven't found it any use.

I posted a recipe site on another thread, too tired to look for it again.

meggymoo · 09/10/2005 14:35

Message withdrawn

Chandra · 09/10/2005 23:33

Thanks for your messages.

Meggymoo, Good to hear the skin problem is getting better.

Thanks Tatt, I will have a look to see if I can find it . I also want to thank your for all the information you have provided in the last few months, it has certainly made a difference, I think that without it we will still be waiting for the testing to be done.

Fimac and skinny, Since your first post about Kinesiology, I have read a bit about it and although I'm quite sceptic about some alternative medicine/treatments I thought that if it wouldn't help him it won't make him any damage. However, when I rang to make the appointment, and mentioned that DS is a bit reluctant to lie down in the presence of person he doesn't know well (... the very few times he has done it in the last months it has involved an injection, etc), the woman told me that she can diagnose him through a teddy bear and a bit of hair(WHAT???). She is in the list of the association of kinesiologists, but..is this normal in kinesiology?

OP posts:
Chandra · 11/10/2005 13:21

COD!!! pmsl at your link (thought it was the description of the cereal). Google is right... that's A Millet, although so expensive that I don't imagine we will ever have the money to allow DS to munch on that!

OP posts:
fimac1 · 11/10/2005 20:12

Chandra - admit that really does sound far fetched! My son has been tested 'through' me, as they usually don't do children on their own until 7, maybe speak to someone at the kinesiologogy Headquarters and mention it? They may be able to help locate someone for you.

My heart nearly broke when we first went as when we went into the consultancy room my daughter saw the 'examining' bed and asked in a small voice 'am I going to have an injection?' as I suppose it looked like the doctors sugeries a bit. After being seen by Allergy Consultant, ENT consultant and Gastroentrologist who all did various tests from bloods to endoscopies she had really been through a lot (but never once complained) the Allergy Consultant also had her taking a cocktail of meds daily, I vowed there and then that if I could, I would never put her through that again - so far, with just avoiding the allergens she has not had to go back to Conventional medicine

Nightynight · 11/10/2005 20:51

chandra, sorry to hear about all this. I do hope your ds grows out of his allergies soon.

I have had kinesiology, and I must say I dont get the diagnosis from a toy and some hair at all. Id definitely get a second opinion.

In case, it did successfully identify my allergies and food reactions. but the kinesiologist was looking at how my body was reacting to the allergens and foods.

Chandra · 12/10/2005 02:20

Thanks for that, I will ring the headquarters to see if they can recommend somebody else.

OP posts:
tatt · 12/10/2005 09:33

you're welcome, Chandra. We've actually found the allergy service good once we got to a consultant. I wouldn't have tried Kinesiology because I'd read how unreliable it can be but after reading about fimac1's experinece I'd possibly give hers a go if we lived closer.

Ultimately the only way to be totally sure a food is bad for you is to try it and then stop eating it. Obviously if the reaction is anaphylactic you only try it once.

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