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Allergies and intolerances

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Gastro consultant says DS may not grow out of dairy/soya allergy

14 replies

ilovemydogandMrObama · 29/09/2010 21:11

Saw Gastro consultant this afternoon. He said that now DS is 2.5 and is still extremely intolerant to dairy/soya and beef, there is no point in trying to test him again for another year and a strong possibility that he won't outgrow it. Sad.

Anyone's DC outgrow a dairy allergy? Need hope Smile

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Haliborange · 29/09/2010 21:13

Well, I did. Smile

Cows' milk was the trigger for my asthma and eczema. It was fairly serious when I was tiny but I grew out of it, probably around 7 or so.

ilovemydogandMrObama · 30/09/2010 07:44

Great! Fortunately DS doesn't have asthma, although his sister does...

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nottirednow · 30/09/2010 09:04

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auntevil · 30/09/2010 09:38

ilovemydog It's a good news bad news story here. I have an animal protein intolerance - from birth. Still have, now 44, but don't find that it causes too many problems. 70's were a bit harsh on the eating out bit for my parents, but 80s -90's better, 00's fine! 3DSs - all have intolerances, but gastro hope that as their digestive systems develop, there will be less intolerance. Main thing is to keep hope - but remember if it doesn't go away - it's not the end of the world - there's still really yummy food they can have, and you've probably ensured that their arteries are far healthier!

ilovemydogandMrObama · 30/09/2010 11:40

So pleased there is hope! Smile. aunt I know there are far worse things to contend with, and whenever we go to Children's Hospital and wait with the other paediatric Gasto patients, some with tubes in their tummies, I am reminded that dairy/soya allergies aren't that bad in the scheme of things. And has forced me to bake bread every day.

nottired -- DS is on the extreme side of intolerance. He has had anaphylactic episodes, but no one is really sure why. His gastro consultant refers to him as being dairy/soya allergic.

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auntevil · 30/09/2010 12:12

ilovemydog i hope you didn"t think i meant look around - there's worse out there. All of the above intolerances, allergies, asthma, eczema etc can affect home life - and be very draining/upsetting. I just wanted to let you know that even if your DS doesn't grow out of it, by the time he's an adult he won't even notice it. I have friends that i have known for years that find out by pure chance my intolerance. They then say that they thought I just didn't like something, or were very restrained Grin .

nottirednow · 30/09/2010 17:30

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NKinDXB · 30/09/2010 17:45

My DS now 4 and has outgrown his dairy allergy within the last year but remains v. allergic to eggs and nuts.

Fingers crossed for you guys but even if it never goes it'll just become the norm.

simpson · 30/09/2010 20:34

ilove - I feel your pain Sad

I saw DD's (2.8) pead today and are now doing a host of other tests skin prick tests etc and blood test for coeliacs.

If we get no answers from this then we are looking at a gut biopsy Sad

DD's intolerances are still very strong Sad and they hinted today she may not grow out of hers either (soya, dairy, oats, barley & now possibly wheat)

mintyneb · 30/09/2010 21:04

ilove, we are in the same position as you. My 3.6 yo DD is allergic to cows milk protein and when we saw a gastro last month for the results of her blood test it showed that her allergy (on paper at least) had actually got worse since last year not better.

He also said it wouldn't be worth testing again for another 12 months as he wouldn't expect there to be any change.

He didn't give up hope that she could outgrow the allergy one day but did also say that in his experience a dairy allergy is often grown out of by 2 yo but the longer it goes on the less likely it will go :-(

Whilst we can manage to keep her diet dairy free, now that she's at the age of starting to go to parties I'm so much more aware of all the foods that she is not able to have and that her friends can tuck into without a care

I have to keep hoping that one day she can eat food with dairy in it without worrying

trixymalixy · 30/09/2010 23:00

Ds had his annual skin prick tets a few weeks ago aged 3.5. The previous year he still had a massive wheal from the dairy test. This year there was no reaction. He still has to do a food challenge, but it's a big change from coming up in hives all over when someone kisses him having drank a cup of tea hours earlier.

auntevil · 01/10/2010 10:18

mintyneb I used to worry about parties, but that, like managing a dairy free diet at home, gets easier and easier. My DS1 was diagnosed as fructose and sucrose intolerant at 7. It was harsh as he had previously gone to parties and stuffed himself with all sorts of sweet goodies. He is nearly 8, and within a year has got very used to what he can have and not have. my DS3, was diagnosed as dairy intolerant at 2.8 - and due to swallowing problems still on a weaning diet. When he goes to parties, he doesn't even notice what he can't have. I do make sure that they have plenty of treats at home. i have also done a totally dairy and sugar free party. I don't think any of the visiting children actually noticed the difference!

ilovemydogandMrObama · 01/10/2010 11:34

I find soya free more difficult than dairy free.

At home, it isn't too difficult, and eating out, I know that worst case scenario, he has chips.

Problem is at friend's houses and when we are out, such as soft play, he grabs food, and looks for a reaction.

Am hoping it's just him being in the 'terrible twos' and will be less rebellious in time...

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auntevil · 01/10/2010 14:18

Could just be the mischievous 2s! All of mine have done the 'look' and waited for the reaction! Is he putting the food in his mouth as well, or just going to take it?

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