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I don't know who I'm more angry with..

9 replies

Rosedee · 16/08/2010 14:21

Myself or the doctor. went to docs this morning as my son 8 months old has been scratching at the eczema on his leg and face and has made them bleed. Put scratch mitts on him last night for first time in forever and they were bloody this morning. Have Bern using epaderm which keeps his skin moisturiser but doesn't get rid of these patches.
Doc basically said we are doing all the right things and he'll grow out of it. Suggested steroid cream on patches at night to stop the itch. Have not long ago got him up from nap and there was blood everywhere, all over his face hands clothes and sheet. I'm so angry that the doc said that this is basically ok for this to happen and that I sat there and didn't push further.
I don't know what else I can do if the doc doesn't want to help him. Does anyone know?? Thank you

OP posts:
PixieOnaLeaf · 16/08/2010 14:29

This reply has been deleted

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Flumpetty · 16/08/2010 14:43

It does seem to be quite hard to get a referal for childhood eczema. DS gets it and it can be extremely upsetting.

Have you tried steroid/hydrocortisone? The ones they prescribe for babies are really very weak now and you may find using it just a couple of times a week will make the world of difference.

Do you have something prescribed for the bath as well? If not ask for something. If the skin is broken they can give you bath stuff that will also help stop skin infections. We have Dermol.

It may be Epaderm doesn't suit your son (we use it and love it) so ask if you can try something else. When we have changed creams in the past I've always carried on using the old one on the left side and new one on right side to see which seems to be the best.

Using a sleeping bag, if you don't already, may help with the leg scratching. Although my DS can do a lot of damage with his toe nails! You can also buy lots of different sleep suits to help stop scratching but I haven't gone this route yet.

Also look at information on the National Eczema Scoiety. www.eczema.org

AllSheepareWhite · 16/08/2010 14:48

My DD also draws blood, have cut nails really short on a regular basis, changed sheets regularly/washed mattress pad (dust mite faeces can aggravate eczema), cream every time I change her nappy to reduce the itching in the night, chamomile tea bags stewed in the bath water can reduce itching too. My DD's (14 months) patches seem to be linked to her teething, she has come up all over face, torso, back, legs and in her armpits since her molars started arriving. My MIL recommended calamine lotion if it got really itchy it is what she used for DH who had really bad chronic (elephant skin) eczema. Also I find creams whilst penetrating the skin do not stop moisture leaving so was covering the patches with vaseline which did reduce them a bit, now using 50:50 Emollient on prescription from GP after bath only and alternating Aveeno and Cetraben at all other times. Emollients are thr first stage, antihistamines, steroids and antibiotics if eczema is affected are options your GP/Dermatologist should be able to explain/discuss with you.

Rosedee · 16/08/2010 14:56

Thanks for your replies. Have tried numerous emollients and steroid cream which never quite clears up patches. He has a sleeping bag and will now have mitts on for every nap. We use oilatum in his bath, keep his nails short etc etc
I just can't see how the doc can say he'll grow out of it nothing more we can do. Have made appt to go back and see different doc and will ask for referral.
If anyone does have any other advice please reply here thank you for your help.

OP posts:
Flumpetty · 16/08/2010 15:17

It may be you need to use the steroid cream for a bit longer than you would hope to get the skin clear. Eczema Society had a brilliant article about it in their last magazine.

It explained that often people are actually not using it enough because they are afraid of it causing skin thinning. These days they actually see more children with thickening of the skin from under use than thinning skin from over use.

Also putting on the hydrocortisone straight after a bath means it works better as it penetrates the skin more.

I think it would be helpful if Doctors could actually SHOW you how much to use and this is where a referal to a dermatologist or skin nurse at hospital would help.

I'm not a big fan of Oilatum, ask for something else especially as skin infections can be a major problem if the skin is broken.

We've only ever seen our GP, but it helped that he had a special interest in eczema as his DD had it.

I know it's awful, but they often do grow out of it. This time last year my DS had huge red patches in his arm and leg joints and round his neck and wrists and looked like he was wearing red socks his feet were so bad. He also never slept through the night because of the scratching. It all just made me want to cry and sometimes I did.

His skin has got loads better over the last couple of months and life is very different for us both.

They can grow out of it and I hope your DS will hurry up and do the same!

hlore · 16/08/2010 15:32

My boy has eczema too and i held out on stereoids way too long because I was worried for the side effects. I did take him to osteopath and he had acapuncture, but could not really see any difference. When we were referred to kids specialist for allergies he send me through to see a specialist dermatology nurse who recommended eumovate for his face 3x a day for 3-4 days and Elocon for his body 1x a day for 3-5 days: this was the big life changer for us and to be honest I feel right nasty that I faffed aroudn with all other stuff as he became a much happier child after this cream!
In between we grease him up with aveeno and epaderm.

Push to see a specialist as my GP was reluctant to prescribe elocon. Good luck!

babybarrister · 17/08/2010 07:43

This reply has been deleted

Message withdrawn at poster's request.

mamaloco · 17/08/2010 07:53

Hi sorry to hear that. The best is nothing in the bath no shampoo, no oil and no soap. Just a quick luke warm bath (or shower). Then apply the steroid till the rash disappear (can take 2 weeks) and then decrease the amount of steroids, don't go cold turkey and apply 1 a day instead of twice, then once every 2 days...
Then you need to keep the skin hydrated, for us aveeno is OK, and the best is Ictyane (ducray) but we had to try at least 40 cream to find it, the ones recommended by the doc didn't work for us, some made it worse (diprobase, oilatum, E45...).
Switching back to bio powder helped too. (true bio allergy exist but is pretty rare, non-bio due irritation is more common)
good luck

Whelk · 18/08/2010 09:21

Try going through your health visitor. Where I live the HVs can refer you to an eczema clinic but the doctors didn't know anything about it Hmm

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