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Just mourning the holidays we could/should be having

7 replies

ImStillStandingApparently · 31/05/2024 16:06

Hi, if you're having an amazing half term then I'm very happy for you. Please move on. There's nothing for you to read here!

But for a struggling family with an angry six foot teen with ASD, and their five foot sibling struggling with sensory issues, and missing the routine of school that we can't replicate at home even though we know they NEED it, and no family support and and and (you know, insert all the usual stuff here....)

Every time someone at work says 'Any plans for the weekend/half term/holiday' ?

Every email that comes in promising me a fabulous time at bowling with the kids this half term, or a discount on a family steak dinner, or perhaps shop for our sunny family getaway...

Every family that walk their dog past our house chatting happily. Or even sulking in safe companionable silence!

Everyone that hasn't had to meet with the safeguarding team this week to arrange a safety plan for what we'll do whilst waiting for the police, next time he kicks off and threatens me again.

Everyone who has to plan life like a military operation because even daring to stop at the garage on the home for a load of bread can cause a meltdown.

And has to brace themselves to endure a day or two of 'payback' if they try and go out for a swim after work once a month.

Everyone who has been offered just a visual timetable, and better parenting courses by post-adoption but can't seem to get anyone to with directly with their child to help unlock the trauma.

Everyone constantly reminded to do self-care and get out in nature for a well-being walk alone. Alone?! Imagine!!

To you I say - I see you. Happy it's-nearly-school again.

And of self care looks like taking your time hanging out the washing for a few precious moments alone to breathe, or hiding hobnobs in an upstairs cupboard so you can sneak them more easily, then that's ok.

(ps we are trying to be positive but sometimes I just need to wallow)

OP posts:
Ted27 · 31/05/2024 16:19

@ImStillStandingApparently

We all need a good wallow, it's the least we deserve.

I find myself wallowing in chocolate and sausage rolls, and the local church had a cake sale for Christian Aid today so I just had to go in didnt I?
Is there any way you can carve out some time from work hours for a bit of that self care stuff. Do you take your lunch break away from your workspace?
Or fib, tell them you are now working till 6 on a Monday night and go for that swim

ImStillStandingApparently · 31/05/2024 17:11

Ted I like your thinking! Hope the cake was good, important to support a charity too ;-)

But at the moment we're trying not to be alone with one of them so tag-teaming.

I don't actually get a lunchbreak as I'm part time to accommodate school run but that's only till July then I'll change my work hours once both at secondary. I do take my TOIL during school hours though, I'll factor in a swim when they're back at school next week. Thanks for the encouragement to do it.

OP posts:
Jellycatspyjamas · 31/05/2024 22:02

I feel you, though mine are a walk in the park compared to what you’re dealing with.

In saying that DS had a meltdown in the car going to school this morning - yesterday my childcare fell through at the last minute and the cobbled together arrangements were just too much unexpected change for him to cope with, so he had a day home with me (thank god for truly flexible employers). It’s my DDs birthday tomorrow and she’s swinging wildly between excitement and anxiety.

I took them both to the cinema this evening purely so I could sit in the dark, with a hot coffee in relative peace.

Do whatever you can to get through the day, no judgement or reproach, just get to the end of half term intact.

Torvy · 01/06/2024 09:07

I don't think that there is enough focus on the amount of grieving that adopters need to do and how continual that will be in the training. It feels like death by a thousand cuts, because it can feel like you slowly but surely give up anything and everything that isn't focused on the children. I remember swearing blind that I wouldn't give up work, that I could balance work and childcare. I would just travel with them. No way was I going part time. And then... my kids happened, and my career faltered and has now essentially vanished- all the contacts and networks I made, all my reputation has pretty much gone, and I've had to take a much lower position and go part time. I have had to and am still grieving that.

In the same way, I also thought holidays away would be a blast, but they are so, so incredibly difficult, and I do grieve that idea of family life that I once had. At the moment we have the capacity to physically wrestle ours into doing what we need them to do so that we can do stuff like get to the ferry on time, make them leave somewhere if they are dysregulated or generally move them to and fro. Yes still, we only go to places where we can heavily regulate their environment and our capacity to provide as much structure and similarity to home as we can whilst still feeling like we have, you know, been on holiday. But there will come a time when we can't do that and their behaviour will be too dangerous, and if that happens then I know that even a basic holiday will be too much to achieve. We have just managed to get away, but on the ferry home it was patently obvious that our kids were struggling. They experienced one other disruptive child early on and that was enough for us to have 5 hours of absolute carnage. All these other parents were complaining about how their child was a bit upset because little Tabitha had sulked a bit when she was told to come back and sit at the table for their stone baked pizza, and I'm there pinning down a screaming 4 year old for the 3rd time because he started hitting other kids when they tried to play with "his" blocks in soft play, stopping him from punching me in the face and trying to choke me, after dragging bag full of snacks and games up 4 flights of stairs because the idea he would eat a sandwich is absolutely laughable and I know he hasn't eaten all day, he needs a poo but is refusing to go which drives him barmy, and all the tactics we have are exhausted. Its all we can do to bring ourselves to follow him when he eventually writhes free and try to stop him going out on the deck and climbing on the railings. It was non stop 5 hours of public meltdown after melt down, which his little brother then joined in because why the hell not, apparently all bets were off at this point. All this in front of an audience of the entire ferry. Not just the bit we were sat in, because they had to run away, so that the whole boat saw us chasing them, dragging them back away from the outside deck, stopping them going into the shop and grabbing fistful of the complimentary chocolates that were there and not eating them, no, but throwing them up in the air like confetti and laughing maniacally.

And that was just the ferry. Don't get me started on some of other parts of the holiday. France is a stunning country, but I don't think that they are necessarily set up for kids like ours. We underestimated how badly we needed parks to regulate, preferably ones that didn't have gravel (yes, gravel, lovely, throwable gravel) as the landing surface, and how important having normal plain bread would be to our morning routine. What I wouldn't have done for a loaf of hovis on the final day....

Don't get me wrong, there were absolutely elements of the holiday that were lovely, and we made memories that we will cherish for ever etc etc, but thats not the point of this thread, is it? The problem is, I'm there thinking that ok, he is nearly 5 now, and the signs are that this element of his personality isn't going to get much better very quickly. I remember reading once that a parent with young children with significant SEND should savour the time as babies because the gap is only going to widen as their peers develop, and watching him in the playroom acting the same way an 18 month old does because he is tired and overstimulated, but unable to accept care or boundaries without being forced to, I'm ashamed to think about how applicable that seemed, albeit for an SEMH SEN. What would have been acceptable for the many teeny tiny tots was not for him. As someone who once travelled widely and had hoped for my children to do the same, it's another grief and blow to realise how much they struggle with it at the moment and how much more will have to be done and considered to keep them safe for it to be possible in the future. If it continues, going away will simply not be possible, which is the situation it seems like you are currently in. And you are allowed to be angry at that- you probably wanted to be able to go away or celebrate or have little family treats and nice things when you thought about having kids, and knowing you can't is something you are allowed to be sad and angry about.

I felt like screaming at little Tabitha's parents when they glared at me like it was my fault and I was ruining their idyllic holiday ending by having the audacity to stop my child jumping overboard. We had done everything "right"- my partner had booked the more expensive ferry in the evening so we could spend the day exhausting the boys (swimming, walks, beach time), we fed them before we got on (plain bread, cucumber, plain crackers, ice lollies, all the right sensory foods for them), told them what was going to happen, reminded them of the soft play rules, took their tablets, sticker books, sat close to the play area and obnoxiously took up space so that they weren't over crowded (although tbf they partially did that themselves when they got the screaming heebie jeebies and started siren wailing). We took on their favourite foods, brought their blankets so they could snuggle, did a round of the ferry, took them to the arcade, brought their ear defenders. Were infinitely patient and theraputic with all the meltdowns... and it still didn't work. I was furious with all these other families whose parents got to sit down and drink their coffee and just send their kids into the play area and then call them out and sit and eat food that they had bought and hadn't had to pack and heave up stairs so that it was exactly the right thing.

At the moment we are lucky enough that we have the capacity to do holidays, but we are definitely doing as much as we can now whilst we can power through because who knows whether they will cope in the future? And by the sounds of it, the frustration and anger you are feeling might partly be because of the grief over what should be some nice times and what should happen. Its all very well and good for other people to try to commiserate, but they haven't had to try and do it, or experience what it sounds to me like you have- a slow whittling away of what can be achieved each holiday until you realise its so vastly different to what it should originally be.

I can offer a hand hold and a commiseration. And a tiny complimentary chocolate that got thrown into my face by a 4 year old that I accidentally on purpose snuck into my pocket, if that helps.

cansu · 01/06/2024 09:28

I don't have adopted children but do have two with very significant sen. I felt very similarly to you. One of my children (now a young adult) had very severe challenging behaviour and mental health issues which at times broke me. Life was very different in our family to all the families I knew and not in a good way due to all the stress you mention. I would say to try as hard as you can to prioritise yourself and your health whenever you can, to keep a job if you can and to keep some friends outside your relationship if you can. I gave everything to my kids and still do ( though life is calmer). I am on the other side now and am looking at what is left for me now in terms of health, wealth, love and happiness and things look a bit sparse!

Patchyman1 · 01/06/2024 11:21

I am currently mourning the loss of my job. I have a week left of my notice period. Been part time for 10 years but it's just not working for us any more. To be fair, I don't even like my job that much but it still hurts that I have had to give it up rather than choosing to!
The endless appointments, form filling, phonecalls, pick ups from school as won't get in taxi, has just all got too much.
We went for a walk yesterday as we haven't been out all half term. To be fair to OH he said it would end in tears and it did.
I am now counting the hours til they go back to school for some sort of routine.
So apologies nothing inspirational to add but @ImStillStandingApparently I hear ya!

Beetham · 01/06/2024 11:38

It's a common question that people ask how APs manage 'missing out' on those early years. I wasn't there for my children's first Christmases and birthdays, weaning and clapping etc. But those don't bother me, what I struggle with is the things we currently miss because of their trauma, we can't go to people's houses, birthday parties are a nightmare, a casual trip to the park or day at the beach are all things I mourn for, I absolutely get where you're coming from.

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