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Is there a link between fas/fasd and hypermobility?

7 replies

delilabell · 09/12/2019 19:47

Ds currently in the midst of fasd diagnosis. Today told also hypermobility.
I wondered if there is a link between the two?

OP posts:
fizzysister · 09/12/2019 20:01

I have hypermobility so this caught my eye. I had a Google (FASD and hypermobility) and there's a paper that mentions both...

www.researchgate.net/profile/Philippe_Campeau/publication/233909934_KAT6B-Related_Disorders/links/0c96051b20d21c2e59000000.pdf

I also scanned a blog post that mentioned skeletal bone issues and muscle problems in their adopted son with FASD.

delilabell · 09/12/2019 20:45

Thanks so much fizzy.
Does it affect you a lot? Worried its going to be an extra thing for ds to cope with.

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FlatheadScrewdriver · 09/12/2019 21:11

I vaguely think that hypermobility can be on its own, or can be linked to quite a few different syndromes (ehler danos, is the one that is popping into my head). I didn't know about a link to FAS.

If your DS hasn't seemed to struggle with it so far, hopefully it won't be severe enough to limit him too much? DD has hypermobility in her joints - it was described to us as loose muscles around the joints, so it's extra-hard work for the muscles to "hold" the joints in the right place, and certainly DD can tire easily on a long walk, but hers isn't at all severe. Very rarely a joint goes out of alignment and when that happens it's very painful but seems thankfully brief, when it's her knee it can be a while before can bear weight on it again but it does seem to just go back to normal on its own.

Good luck with the assessment, I hope it goes alright.

fasparent · 10/12/2019 11:49

YES have two children diagnosed depends on how you class hypermobility, from very early age both we found had no scene of danger one has full FAS, were both like little rockets, can not fight it will attempt what would seem impossible. No point in fighting it but take control strategy and structures , we engaged in lots of sports Gym. Trampoline. football. both excelled up to national selection. both physical and ached emic ., Mainly sports coaching and science
Were susceptible too injury and such problems mainly do too being over enthusiastic , hence the coaching etc slowed them down . Main advantage could excel., great for social inclusion put them more on par with their piers . Kept them out of trouble made many many friend's. Travelled home abroad on their own with their clubs and Better than any Phsio but has too structured their coached being full aware of their condition's being very important.

fasparent · 10/12/2019 14:18

Must always take into consideration that it is primary a brain injury at birth. Effecting all global delays . in some instances through structured therapeutics' and exercise can stimulate the brain it being plastic in growth and may prevent secondary conditions. My Two are Adults now both in full time employment , drive, and live independent in their own houses., has not been easy have too use strategy's their are no solutions they both still have FAS FASD ., but live a full life not of befits their choice , just want too be classed as normal.

delilabell · 12/12/2019 08:58

Gosh fas that's like describing ds. Thank you.
I'll add it to our list with geneticist

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fasparent · 13/12/2019 01:32

Is difficult some children are complexed others less so , ours we knew from before adoption diagnosed by Genetic Clinic soon after, no support in our day not much known. But their outcomes proved very positive with time. DD had complex issues hole in heart, central nervous system disfunctions, skeletal issues, executive functioning issues, learning difficulty's. But today leads a normal life. All mainly due too therapeutics and understanding.

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