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15 MO mild hearing loss and limited speech

11 replies

Jannt86 · 08/07/2019 15:58

Hi all. I've recently adopted a LG at 9MO (now 15MO) She is generally doing fantastic. Settled really well and an absolute delight. My only slight concern is that she's not been very quick to talk. I noticed pretty quickly after she came to us that she wasn't babling very maturely although she was vocalising,clapping and pointing and very social. She's learned a couple of words which she uses consistently (dada, car, oh oh) and then I've heard her come out with a few more but only once or twice when she really needs to. She also understands very well and not a lot gets passed her now tbh (she can tidy up our whole living room just from me telling her what to do haha) but her babbling is still quite basic and she doesn't seem to be making much effort to talk. She's had a couple of ear infections and audiologists did note a little bit of glue ear in her first appointment. At her most recent appintment she had mild hearing loss but they didn't seem to care. They've said they'll review in 3 months but seems normal and that they wouldn't even recheck it if there wasn't a Fhx. To me this seems a bit callous as even mild hearing loss is probably having an impact. I know that glue ear is quite common in adoptees so I was just wondering if anyone else has had similar experiences? Am I making too big a deal of this? Has anyone got any tips how to make the right services actually sit up and help? I don't believe in just being fobbed off until she's 2 and still barely saying anything. This few years are so crucial and her parents have mild LDs so I'm determined to make this important time count. Thanks xx

OP posts:
spinderella78 · 08/07/2019 18:21

You are definitely right to be demanding and not patient. However, if it helps my son only learnt to say yes/no at 26 months. He did have speech delay but didn't have speech therapy until 28 months. He now talks CONSTANTLY from opening his eyes to closing them! He still has minor pronunciation challenges on a few sounds and is a tiny bit behind academic milestones but nothing major. Your little one is most likely going to do fine but yes, prudent to push for support if you can.

Weatherforducks · 08/07/2019 18:24

I don’t know much about it really, but my eldest had glue ear. Just before placement he had his tonsils and adenoids removed (3). Before this he was hard to understand, and it caused him an awful lot of frustration. He also snored like a train. A few months after the op he improved dramatically, his speech is actually quite sophisticated now and we don’t have to repeat everything that he has said back to him...he used to insist on this, so he knew he was understood. I think if you’re not happy, then you should push it further. Not overly sure how though. Do you have the AO yet? I only ask because they tend to move a bit quicker if the child is still a LAC don’t they.

Dirtyjellycat · 08/07/2019 18:43

My DS is 2.5 and has good speech and understanding but he’s just had a diagnosis of glue ear. They said to us that they only give the diagnosis if they have fluid in the ear three times (ie on 3 visits), and have some mild hearing loss. They see him every 3 months and aren’t concerned as his speech is good. They also said that fluid in the ear is very, very common in young children. A snotty nose on the day you visit audiology may mean they see the fluid but he might not have it a few days later. For this reason, they wait to see if it’s present over a period of time eg 6-9 months. I understand from my SaLT friends that mild hearing loss is also very common and seldom anything to worry about - it will correct itself over time. They generally don’t recommend surgery unless the problem is significant as grommets can be problematic.

At this age, understanding is much more important than speech production so take heart from this. Many children don’t have much more than a couple of words at this age, so I don’t think there is a reason to suspect a delay. However, I do understand your anxiety due to the family history, so it’s worth repeating this at every appointment you have - these things often seem to be forgotten by HCPs in my experience. There is massive variation in the rate that children develop in this age, and a wide span for normal so I think SaLTs would say it’s much too early for concern (though I know it’s hard not to worry!).

ifchocolatewerecelery · 08/07/2019 19:32

My LO's speech was affected by the move. She was a year old when she came home. Our accents are very different to the one she was used to from her FCs so she had to cope with that. Also I'm pretty sure her whole developmental progress was put on hold because she was too busy with the transition from one life to another and dealing with her loss and the trauma of the move to do much more than survive for the first few months.

sunshineandskyscrapers · 08/07/2019 21:46

It’s our job to worry and advocate for our children at every stage of their development. That said though, I don’t think you are being fobbed off. I have been in a very similar situation with my AS. He moved in at a similar age, was at a similar stage at 15 months and history of ld in the bf. I think it’s true that the move sets them back a bit developmentally, or at least pauses development for a short while while they adjust.

For me I think I clung onto the ld more than I needed to, certainly more than was helpful, but I simply wanted to know and delayed speech was a red flag in my mind. I raised it with three different SaLT therapists and a paediatrician over the course of over a year and they all said it was too early to say whether his speech delay was a result of ld. They also consistently said that he was too young for SaLT work, even at two and a half when he had some words and phrases, but limited sounds and just didn’t seem motivated. He was about a year behind his peers, but apparently not far enough to be a real concern. The bar is quite low for SaLT intervention. Just before three and a half he was assessed again and they agreed he was now at an age/stage that SaLT would be beneficial, but a month or so later when the first session came around he had progressed so far that he was discharged. Now, a few months later, his vocabulary is through the roof. Yes, he is a little behind his peers with his range and he is still working on a few of the harder sounds, but he is chatty, confident, sociable, tells me about his day, tries really hard to communicate, even ‘reads’ aloud and is generally an absolute joy to be around. To the question of whether he has ld, it’s possible, but I’ve accepted that it’s too soon to say and it’s no longer weighing on my mind.

I think if you saw a therapist at 15 months all they would really focus on is how you are interacting with her. That you are reading with her, singing with her and always giving a commentary on what you are doing in really simple language: I am cuddling the teddy, here is your bottle, etc. This is what you need to be working on now to give the best chance. That said, I did all of this and my DS was still delayed so it is definitely not a quick fix. It definitely all helps long term though. I don’t like to think of where he would be if he hadn’t had it.

You could also try some Makaton. You don’t have anything to lose, as it won’t delay speech if you are using it in addition rather than instead of speech and can actually help it along. It may also be the tool she needs to understand and be understood if she does have a few difficulties later on. We came to it a bit late so my lo did pick up a couple of signs, but ultimately decided he would rather just say the words, which was great.

I don’t have any experience with glue ear. I have had moderate hearing loss in one ear myself though. If the hearing loss is mild then she can still hear, and as you said she has good understanding. So it’s more important that you are talking to her clearly and directly, face to face so she can see your mouth. Keep background noise to a minimum as this will make it more challenging. You’ve mentioned an audiologist, but has she seen am ENT specialist? I could be wrong but I don’t think they would operate on such a small child, but the specialist will have far more knowledge and understanding of likely causes and treatment than audiologists and may be able to put your mind at ease. This is what I would be pushing for if you don’t have it already. Your GP can refer you. And obviously keep the appointment with the audiologist in three months.

Above all, do try not to worry. Your baby sounds like an absolute joy. They do develop at different rates and it is really early days. Most likely she will be absolutely fine.

ifchocolatewerecelery · 08/07/2019 22:40

Singing is something else to consider. My LO loves coco melon, super simple songs and bounce patrol on you tube. They all do a mixture of traditional nursery rhymes and some I've never heard of. Coco melon also do lots of songs that are basically social stories so there's ones about starting school, going to the doctor's and having a bath. She's been singing since before she could talk and thanks to having them every day for an hour lunch she's actually ahead of where she's expected to be at this stage because she knows all her colours and loads of different shapes. Some of them we also play through our amazon echo now she knows them to reduce her time in front of a screen.

sunshineandskyscrapers · 08/07/2019 22:46

I just had to Google Fhx. If I am ever asked about family history I always say it can't be ruled out. It is unlikely that the family history you have covers everything. My lo was hospitalised at 18 months with a condition not uncommon in small children, and usually inherited. When asked if there was a history of it in the family I said I don't think so. The doctor asked me to find out. And via the SW I discovered there very much was a history of it in the family, but as small children, and therefore long forgotten by the time they filled in their medical forms.

If I were you I would stress that you likely do not have a complete family history if they are using this to determine whether to retest in three months.

HPFA · 09/07/2019 13:22

My birth child didn't speak until 20 months so I don't think your DD is out of line with normal development. I can understand the medical personnel not wanting to go overboard at this stage especially as her receptive language sounds really good. I'm not sure what they could really do right now.

whatscookingonthebbq · 10/07/2019 13:38

I know that glue ear is quite common in adoptees can I just ask, where does that info come from?

Re your dc, sometimes dc with hearing loss talk but very very softly so you could video her a bit and chat to her and then play it back to yourself with headphones! I found I was missing entire sentences and entire play stories (though dc were a bit older by then)! Re your dc I agree with the advice above that you aren't being fobbed off now and I would say keep and eye and keep on top of it. My dc wasn't fobbed off at first but then were (to simplify a long story) and they ended up getting an appalling infection and rock hard wax. I moved doctors after that. So I would say stay vigilant and find HCPs you feel confident in, but try not to think the worst at all times.

Work on tiny ears is risky which might be why a wait and see approach is being taken.

It is a balancing act!

MrsMatty · 10/07/2019 18:15

One thing to be aware of is that your child is currently at an important stage when it comes to acquiring language. Even if she is not talking a lot yet, so much will be going in! Even if you feel that the medics want to wait and see how she develops, there is still a lot can do to help her aquire language without a struggle. I have a hearing loss myself since childhood so I know many of the challenges!
The following may be helpful for your daughter:
Make communication visual- point to things or show what you mean.
Make sure she can see your face when you speak.
Speak clearly without slowing down too much or over emphasising (you need to keep to a regular speech pattern, that will help with her understanding).
Be aware of background noise and/or noisy situations where there are lots of people. It will be harder for her to understand when there's a lot of noise.
Use Makaton or simple signs- as a previous posters said, this will help with language, not distract as was previously thought.
Think about going to a baby sign group - all of my grandchildren went as babies and toddlers.
Hope all goes well for your little girl x

whatscookingonthebbq · 13/07/2019 11:24

I meant "keep an eye (on it)" not "keep and eye" in my post above the last post.

It would be good to know where the understanding about adoptees and glue ear comes from, if you get the chance.

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