Don't think can do autism /adhd assment

[Whyohwhy99]

I don't think I'm going to be able to get an autism assessment. Its asked me to get someone i know to fill in a form to say how I was in childhood and I have no one to ask. I told tjem and they said theres an alternative for adulthood but I still have no one to ask. They said i can use past reports. From school day's/professionals etc. But I don't have anything and its iblt recently I spoke to gp and that was just to sort a referral. I think the same will happen for the ADHD one as well so I'm probably not going to be able to get it done.

It is, substantially easier. You just need to figure this one thing out, and it may need to be with a different provider.

It's important that they do a decent job of building a clinical picture or the outcome won't be worth the paper it's written on.

Try not to worry about it because they will tell you the next steps at your appointment. The administrator was just warning you in case they cannot complete it, but if that is the case they will tell you what you will have to do to get assessed some other way. Quite often it is unnecessary but they are extra cautious because they know that some autistic people will find it difficult to adjust to new expectations of the appointment.

Yeah i get that i just wish they had made it clear at the start. It was hard to fill in and it took a long time. And i got my hopes up as it gave me an appointment for Friday.

The admin person already told me they can't do it. So i take it the appointment has been cancelled

The childhood studd is somewhat a lot of rubbish anyway. Becuase many parents cant remember anyway especially if for an adult or of there arecsiblings and how does it matter other than presented with issues young. Because ultimately especially girls they dont necessarily have speech delay or that many social issues to start with.

Adhd generally needs 2 settings. But may not be an issue for adultrs.

Its probably all more about gatekeeping and cost to nhs etc

My partner recounted it himself as he had no-one this was last year.

Childhood should be part of the ADHD assessment too. The clinical criteria for says symptoms must have been present before 12 for a diagnosis.

My mum isn’t a reliable witness so, when I was diagnosed with ADHD, I provided school reports and we talked about what I could remember eg. I lost everything, got in trouble for being distracted and fidgeting, etc.

I was diagnosed by an NHS service so I’m
not sure if private services are as thorough.

Possibly I'm not sure. I think if it was gate keeping the gp could have said not to refer me.

Yeah I'm late 40s. My parents are not a live and my mother used to either forget or get mixed up with what children done what. It was such a long time ago as well and as you ssy its often not found out in girls until their teens. I may not have it at all. But I don't want to be stopped finding out.

I'm meant to be testing for adhd as well i hope i don't have the 2 settings issue with that. I think it may be different for adults though.

My dd got a diagnosis for adhd at the age of 28. She doesn't have school reports or anything like that or the 2 settings thing. But she got diagnosed. I thought she was messing about at first but she showed me.

Maybe the clinic I went to were more strict about sticking to the guidance than most clinics then 😂

I emailed them about it before and they said I had to provide what I could because it was part of the diagnosis guidance and sent me a link to the NICE webpage.

They said they can't do it, or they said it may not be possible? Are you sure Friday is cancelled or do you need to confirm?

Don't just let it wither away. Get written confirmation whether they are proceeding with the appt, and if not use that as evidence to get a move to a different assessment centre. My worry is if there is a communication gap and they think Friday is going ahead, they could record you as a no show and NHS may consider you have "used up" your RTC funding. Whereas if you have written evidence that the assessment is not suitable for your needs and you haven't used the assessor's timeslot you have more chance of a move.

Ask locally (eg FB groups, local autism charity) to see if there is a RTC alternative that is more suitable for you.

They haven't confirmed the appointment has been cancelled. But the said if I absolutely can't find anyone the assent can't happen. So if anything happened I can show them. What i don't want to do is try another one for the same to happen again.

Just a rant really after emailing yesterday. And them saying they can't do it unless I have somone to fill ln the form. I reply saying I definitely don't. So i feel disappointed pissed off and frustrated because it was hard to do. Then i get another email this morning pointing out that the form hasn't been filled in. Even though i was clear the day before.