Anyone else had thyroid medication adjusted repeatedly and struggled with side effects

[PerkyOchrePeer]

For years ive had an underactive thyroid made stable with thyroxine. Then u started getting regular migraines because my thyroid was too low. My medication was adjusted to a higher dose and the migraines stopped. Suddenly I am on too much medication causing tension headaches and fatigue and palpitations a d shortness id breath. My medication was adjusted again to a lower dose but it's still too high. I gave read uf thus carries on can lead to serious health issues and whilst thee thyroid is too high then strenuous activities should be avoided. Im seei g the Gp to see what dose they should put me on to level things up.125 mg is too high and apparently 100 still makes it too high. Ive never been on a dose lower than 100.

The other issue is weight loss. Ive never been overweight but ive lost 10 pounds and look a bit too thin and people have noticed.

Anyone else had this. I dont feel too bad but not sure if this could get worse if not sorted. The worse is the exhaustion

I'm not a doctor, so obviously the GP is the right person to discuss this with, but I have had a misbehaving thyroid before. What I would be asking the GP about is whether you have antibodies for Graves or another thyroid disease. This is because, if your thyroid levels are suddenly much higher on what has been your standard thyroxine dose, I'd be wondering whether your thyroid has stopped underproducing thyroid hormones, and has started producing normal or high levels of them instead.

Yeah thanks. I do have a list of questions to ask at the appointment. Im not considered underweight for my height but the way I am built weight loss can nake me look gaunt as I have a naturally narrow face

It's best to have your thyroid levels midway between too low and too high.

Are you sure the thyroxine levels are causing the migraines? I know the thyroxine levels appear to change the migraine hit but it might not be the first trigger. How old are you? Peri menopause can trigger migraines due to oestrogen level changes. I'd look into that as well.

I'm also hypothyroid and migraines are much worse in peri.

Do you know why you are hypothyroid? Do you have Hashimoto's? This is a common reason for being hypothyroid and is an autoimmune disease. It can result in fluctuating levels of thyroid hormone in the blood stream.

Have a look at https://thyroiduk.org/ before your GP appointment so that you know what to discuss. I have found most GPs I have seen to be very ill informed about thyroid issues.

Yeah my dd.

took a couple of years to get the proper dose. Look at the thyroid forums - Reddit is good - it’s very common

I have no idea why and dont care. All I care about is getting g my thyroid level. J was first diagnosed underactive about 20 years ago and for quite a few uears the dose was correct and it was made stable. Moving forward im told to take 125 dise mon to Fri and 100 dose sat and sun. The GP hopes thus will level my thyroid. . Ive also got to have a thyroid scan

My migraines were nothing to do with the menopause, because I went through the menopause 20 years ago. I have a very low thyroid , and that's the reason for the migraines

I work with someone who hasimotos and I most certainly do not have that you are barking up the wrong tree

No worries, just a thought. Good luck with the GP.