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Original poster

I genuinely don’t know what to do

11 replies

IsItThoughh · 18/02/2026 02:44

In early 2020 I had been in deep psychosis for a year, and it ended up with me driving to a hotel, I thought I was there to talk to someone who didn’t exist and the hotel called an ambulance for me. I was taken to A&E and although they realised I was unwell as I wasn’t ’actively suicidal’ (no just seeing things and living in a completely fake reality).. they wouldn’t admit me. They called my husband who had to get my parents to drive him to Dorset from Fife where we live as I had the car and I clearly wasn’t safe to drive etc. I had taken the car whilst he was at work btw

we went home a day or so later and my parents sorted a private appointment so I was able to access antipsychotics which have been incredible, my GP prescribed what I needed as a shared care plan ? I’ve been on them ever since. We had to go private as Covid meant nhs were reluctant to admit me and it was a 4 month wait for a nhs psychiatrist appointment.

We moved recently and it coincided with a little blip in my mental health. I’m not psychotic however I am starting to see a pattern of symptoms that I can recognise as a sign I need to increase my dosage, I have been here before and I know what I need.

My new GP won’t titrate my dose at all, so I asked to be referred to the community mental health team to be assessed as they can do medication changes. I got a letter today from them saying that the team had discussed me at a meeting and because , I do not have active thoughts of suicide and that I have had access to a private psychiatrist (6 years ago) I don’t fit the criteria for community help and they will not see me in clinic.

So my GP won’t increase my antipsychotic, the community mental health team won’t see me and I don’t have a private psychiatrist anymore as it was too expensive and my old GP had taken over my care.

What do I do?

OP posts:
Rayqueen2026 · 18/02/2026 03:29

Ring your drs back and ask to see a GP who actually deals in mh illnesses. Been thru this for years with my sister, once you work the ins and outs and get the correct Dr it's much easier. They will happily up her dose based on family perceptions and herself until she's stable again then lower back until the next time...No suicide ideations or anything like that or even a counsellor for several years now as the Dr is trained in mh so knows if we say something is wrong which is more likely than my sister recognizing it before it's bad he listens and acts accordingly with the meds

Original poster
IsItThoughh · 18/02/2026 03:44

Rayqueen2026 · 18/02/2026 03:29

Ring your drs back and ask to see a GP who actually deals in mh illnesses. Been thru this for years with my sister, once you work the ins and outs and get the correct Dr it's much easier. They will happily up her dose based on family perceptions and herself until she's stable again then lower back until the next time...No suicide ideations or anything like that or even a counsellor for several years now as the Dr is trained in mh so knows if we say something is wrong which is more likely than my sister recognizing it before it's bad he listens and acts accordingly with the meds

That’s actually super helpful thank you

OP posts:
FantasyFoodhall · 18/02/2026 04:30

This sounds incredibly scary OP. I don’t have any great advice to offer, but wanted to say good luck accessing what you need. Awful that it should be so difficult- you clearly know what you need here.

DinoLil · 18/02/2026 07:51

I also went into psychosis in 2020 and was referred to EIP who were great. Have you had your 3yrs with them? If not, phone your local one and see if you can self refer. They are the ones who prescribed my anti psychotics initially and now I'm under the CMHT who manage it. I also have a MH nurse who comes to see me at home once a fortnight.

Original poster
IsItThoughh · 18/02/2026 10:36

DinoLil · 18/02/2026 07:51

I also went into psychosis in 2020 and was referred to EIP who were great. Have you had your 3yrs with them? If not, phone your local one and see if you can self refer. They are the ones who prescribed my anti psychotics initially and now I'm under the CMHT who manage it. I also have a MH nurse who comes to see me at home once a fortnight.

That’s so helpful thank you!! I haven’t had any outreach really as Covid stopped basically all community outreach here and to make it worse as soon as they found out I’d had to go private that was it not a chance of seeing anyone in the nhs!

OP posts:
Youmustwakeup · 18/02/2026 10:48

So sorry OP, that's appalling 🌷

Moen · 18/02/2026 10:54

You can call 111 option 2 (assuming it’s the same in Scotland?).

I have previously worked within a crisis team and dealt with cases like yours. If you have a diagnosis and can feel your mental health slipping they should help. Crisis team can prescribe x

ETA - EIP in our area wouldn’t pick you up if the diagnosis is longstanding, but it is worth a try!

Aknifewith16blades · 18/02/2026 11:08

I wonder if https://www.mind.org.uk/ could offer you advice and support OP? You're doing a great job handling this; I hope you get the care you need.

Measley · 18/02/2026 11:09

Absolutely ask for a second opinion from another doctor OP. It sounds like the first one doesn't have a clue.

Gonnagetgoingreturnsagain · 18/02/2026 11:09

Don’t you have a local mental health team you’re registered with? I do and I have a case worker. She liaises with doctors about my meds.

Gonnagetgoingreturnsagain · 18/02/2026 11:10

Rayqueen2026 · 18/02/2026 03:29

Ring your drs back and ask to see a GP who actually deals in mh illnesses. Been thru this for years with my sister, once you work the ins and outs and get the correct Dr it's much easier. They will happily up her dose based on family perceptions and herself until she's stable again then lower back until the next time...No suicide ideations or anything like that or even a counsellor for several years now as the Dr is trained in mh so knows if we say something is wrong which is more likely than my sister recognizing it before it's bad he listens and acts accordingly with the meds

Some GPs don’t want to get involved though unless it’s eg a repeat prescription. Mine didn’t until latter.

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