Does this sound like elhos danlos and is it worth seeking diagnosis?

[HowBizxarre]

My child has recently received their occupational therpay report and during his assessment the woman said he was hypermobile ( she noticed from his fingertips placed on cutlery where as I knew as he's always showing me awful ways he can twist his fingers and arms 😅 ) DS is receiving lots of support

I've always known I can move my toes the way DS can bend his fingertips, but I never thought anything of it, I've always had skin that scars very very easily, I scar from simple scratches ( I fell on a small sharp pebble the other month and have a horrible purple scar )

And ive recently discovered I have very very stretchy skin

I'm tired a lot and I've had gut problems for years, but I was recovering from anorexia for a long time so I put it down to that ( I'm almost 9 stone now so a healthy weight for my height 5'2 )

From researching a little I do think I have elhos danlos..... is it worth getting it diagnosed?

I also have flat feet and bowed legs but I'm not sure if the bowed legs is to do with it or not 😅

It's Ehlers Danlos. And I've been told there are absolutely no benefits to a diagnosis.

The best approach is physio to support with pain management and regular yoga/pilates.

Also if you are not yet menopausal, seek out HRT at the earliest opportunity as mine has changed drastically with the onset of menopause.

Hyper mobility is only a symptom of some forms of eds most comm!”t hypermobile eds (hEds) there ia no test for it, it used to have to be diagnosed by a rheumatologist but gps can now. Do you have any other health issues? Dental issues? Hearts issues? Id advise joining some eds facebook groups and learning more

It is concerning that someone is told there is no point in a diagnosis! There are different types of EDS, some rare types have cardio vascular implications for instance. Even for the type that doesn't have implications for internal organs, some types of yoga are going to risk damage with overstretching. It's important to only go to classes with teachers who are informed and knowledgeable about working with hypermobility.
OP - I would definitely ask for further investigations.

If you can't connect the issues, think connective tissues.

The RCGP Ehlers Danlos toolkit is useful.

Definitely worth seeing GP.