Hi All
I saw the post on bins and germs recently.
I reckon there must be a psychologist out there or parents who are in a similar situation regarding OCD.
I admit I have diagnosed myself quote ‘armchair’ label.
It’s definitely in our genes. You know it if you live with it. My DD - this is about, she has a long list and is neurodivergent. I was trying to get help all through infants/juniors. Seniors took its toll. The assessment process took so long (with plenty of excuses why they wouldn’t assess) that we went private out of desperation - we researched thoroughly and the report is approved by the nhs. She was by then 15.
I agree with one person who mentioned ‘gate keeping’ - it’s so very frustrating not getting help early.
Someone mentioned before using the word ’quirks’ we call them this also, because she is young and it’s a kinder/softer way of dealing with it all.
The team (NHS) did wonder if she was trying to get on the bandwagon and trying to be trendy re Tick-tock. NOT the case. It’s extremely hard to live with and those that have it can really understand it. They hinted/ documented that they have done CBT, they skirt around it using words like ‘formulation work around CBT’. This CBT has been extremely hard to access.
So I paid privately (2 separate qualified professionals) who are registered and asked do you do CBT for OCD - they both said YES. I put this in black & white. Both let us down whilst taking our money. One made cupcakes & such like to befriend her and one bought a book on Tourette’s (just one thing off the list). No CBT given. Now I’ve lost trust in this system. Need help.
So can anyone enlighten me where we get this CBT that most say is needed?! & really the earlier the better? Her OCD started/noticed age 7.
I know Maudsley London will, do you have to be 18? But that will cost? & it’s getting her to London.