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how do they get away with this?

18 replies

sdiwtd · 24/01/2026 19:09

my sister worked all her life up until she got too ill to do it anymore, she has two chronic illnesses, one in particular is horrendous and I don't remember one day since 2018 that I haven't seen her in pain or struggling. A year ago she also went completely deaf in one ear and has to wear an hearing aid after an infection in her inner ear and she let the dwp know about it thinking she had to let them know of any new medical conditions (see end of post to see why this is relevent..)

she has been on pip since her illness got so bad she could no longer cope, she got her review and this time around she scored zero in every single discriptor and her pip was instantly stopped, so basically she went from high rate on both to no longer being entitled to anything at all. she has been waiting to hear back from a mandatory reconsideration for five months (I have phoned twice on her behalf and all they say is it's being looked at)

I now know after she broke down tonight that she does not have anywhere close to enough money to get through a month, one of her illnesses is now even worse because stress is one thing that brings out her symptoms more, she won't engage with anyone at all, is sleeping all day, is forgetting to pick up her medications, forgot to transfer the rent payment last month, in a nutshell she is saying she feels like cancelling her entire claim because she can't cope with the process of it all (i'm not on beneifts and this is my first experience with the dwp and i have to say i don't blame her)

in relation to the title of the thread of how do they get away with this.. in EVERY discriptor the assesor mentioned the fact she wears an hearing aid as a way to try to say she isn't entitled to pip anymore. such as can you plan the route of a journey the answer from the assesor was 'she wears an hearing aid and shows no signs of anxierty' do you need help using the toilet? 'she wears and hearing aid and shows no signs of anxiety' the exact same thing was copy and pasted for every single one of them even when wearing an hearing aid wasn't relevent to the question asked. actually ignoring what is actually wrong with her.

she isn't claiming because she is deaf, and she isn't caliming to have anxiery yet this was copy and pasted on every discriptor in order to give her 0 points on everything, nothing about her actual ilnesses were mentioned at all. they also said her painkillers took away her pain then in the next sentence said her painkillers do not take away her pain, it can't be both!

the entire process is not fit for purpose if people are getting turned down with copy paste answers and i think its just a way for the dwp to get people to give up on their claims.

its obvious the MR won't be sucessful going off the figures of sucess and she will then have to wait for an appeal date so by the time this is over its will be over a year without money, yet her illnesses are still affecting her every single day.

anyone saying this is easy clearly has never been through it at all, its stressing me out and its not even my claim!

OP posts:
Caughtletren · 24/01/2026 19:11

I know that it’s not diagnosis led
bur a diagnosis certainly helps
what are her diagnoses?

Caughtletren · 24/01/2026 19:12

Wearing a hearing aid in one ear would be grounds for PIP?

GreenPoms · 24/01/2026 19:13

Caughtletren · 24/01/2026 19:12

Wearing a hearing aid in one ear would be grounds for PIP?

I don’t think so.

Interested in this thread?

Then you might like threads about this subject:

sdiwtd · 24/01/2026 19:14

Caughtletren · 24/01/2026 19:12

Wearing a hearing aid in one ear would be grounds for PIP?

no, that's the point i am making, she isn't claiming because she is deaf, all she did was let them know in the more information section that she went deaf..

OP posts:
GreenPoms · 24/01/2026 19:14

What is she claiming for then?

Caughtletren · 24/01/2026 19:15

What are her diagnoses?

dadtoateen · 24/01/2026 19:16

What Is she actually claiming pip for?

BillieWiper · 24/01/2026 19:17

But its about what she can do.

Has her ability to do the various tasks got better, worse or remained the same since her last award?

I don't see how a hearing aid automatically gives you zero points unless you're saying you can easily do the task.

Caughtletren · 24/01/2026 19:18

I went deaf after an infection in my inner ear

3 weeks later… hearing back

Huckleberries · 24/01/2026 19:21

I have to help a relative fill in a form. He can't do it on his own because he doesn't give proper answers

But from what you are saying, someone else filled in the form? Haven't had to do it for awhile so maybe things have changed.

I fully believe that they will leave out information but what is puzzling me Is the copy paste done by someone else.

TomatoSandwiches · 24/01/2026 19:21

Caughtletren · 24/01/2026 19:18

I went deaf after an infection in my inner ear

3 weeks later… hearing back

Lucky you, the whole point is that thw sister has previously qualified for high rate PIP and because she did as requested by DWP - update any health issues - the new hearing aid - which although doesn't afgect her original PIP claim they have used this as a way to deny her PIP at all.

Pricelessadvice · 24/01/2026 19:21

It depends what she is claiming for. It’s about how her disabilities affect her day to day.
No-one can really comment without knowing more information.

Caughtletren · 24/01/2026 19:22

TomatoSandwiches · 24/01/2026 19:21

Lucky you, the whole point is that thw sister has previously qualified for high rate PIP and because she did as requested by DWP - update any health issues - the new hearing aid - which although doesn't afgect her original PIP claim they have used this as a way to deny her PIP at all.

As it stands, no one is clear on this thread what exactly she is claiming for

Bruisername · 24/01/2026 19:25

The sister clearly has a chronic and painful condition that means she hasn’t been able to work since 2018 and claim higher rate pip

because on the reassessment she added the deafness to her existing conditions they have focussed on that and deemed her capable to work - her existing condition has worsened so it makes no sense

do we really need to know the exact conditions she has!

TomatoSandwiches · 24/01/2026 19:30

Caughtletren · 24/01/2026 19:22

As it stands, no one is clear on this thread what exactly she is claiming for

What she was claiming for she was already awarded high rate PIP she wasn't reapplying she was updating why are you having trouble understanding this?

Stade197 · 24/01/2026 19:30

My sister gets PIP, she has fybromyalgia and struggles with every day tasks because she is in so much pain, also autistic which causes her to struggle in other areas

She used to work until her condition got worse and could no longer manage working so had to apply for PIP

She did all her forms and interviews but was scored low or zero on lots of points for PIP so couldn't claim, because of her autism she does struggle with form filling etc so she used a company online called Turn2us and they helped her to fill everything out using words, terms and phrases that they said would help her case and after their help she was awarded PIP so they may be worth trying for help

Rockhopper81 · 24/01/2026 19:32

It doesn’t really matter what she’s claiming for - she received PIP at higher rate, she informed them of a change of medical status (which actually resulted in a new form of assistance - the hearing aid), and they’re trying to use that as evidence all of her other difficulties - that still exist - are relieved by it.

It’s horrendous @sdiwtd - I received standard rate daily living and moving around, came to review and nothing had changed (my disabilities, and subsequent difficulties, will never change), but I was awarded no points in any descriptor…mandatory reconsideration didn’t change the award (or lack thereof)…had to go to tribunal (which to be honest, almost caused another breakdown), and I was awarded standard rate daily living and moving around again - took over a year to get the back dated amount paid. I was fortunate my parents helped me financially, because I’d have been totally screwed otherwise.

5 months for mandatory reconsideration sounds a very long time - isn’t that due within a mandated period of time? Keep chasing, but be prepared to have to go to tribunal - the board there were lovely, but it seriously aggravated my health conditions to go through it all.

justtheotheronemrswembley · 24/01/2026 19:58

Jeez, there's some really hard-of-thinking people on this thread.

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