I just wanted to start a thread because I’ve done a ton of googling and can’t find much information online likely because it’s so rare, but we may be in that <1% so, if anyone else is this may come in handy one day.
DD has always had what appears to be ‘uneven’ sides of her pubic region/upper outer labia and I haven’t thought much of it over the years. However while she was having a shower recently I noticed the left side was considerably larger than the other side. After some googling I’m wondering if it can be a hernia but there doesn’t seem to be much online about it being in female children. So I booked the GP, by which time the bulge wasn’t as present at all. GP examined DD and suggested it may be a lymph node. I wasn’t exactly convinced as a lymph node would be a small hard nodule. Left it a couple of month and again during a shower I noticed it’s very much bulging again more than I’ve ever seen, she’s had a cough recently and often suffer with constipation that we need gentle laxatives for, and we’ve been trying to figure out why she gets so constipated when she eats a good amount of fruit and veg, and drinks a good amount of water every day.
re-booked the GP and I also took photos while she was having the bulging.
Saw the GP today, although the huge was not present again, I explained the above, I mentioned I’m not convinced it’s a lymph node and I’m wondering if it’s possible she has a hernia. I shower the GP the pictures/video (of DD coughing as it bulges slightly when coughing) and he examined her again, said he agrees he thinks there’s a small hernia and it’s definitely not a lymph node.
So we’re now waiting on an ultrasound appointment to confirm. Online look like they are almost always repaired with surgery to prevent complications like strangulation.
Some things to note to avoid being dismissed:
these hernias are present in <1% of females, however over 50% of cases get misdiagnosed because of how rare they are. They are more likely to present on the right side (however DD is presenting on the left)
Im lucky that our GP today was fabulous, he said although they are very rare they are not impossible and he is all for looking into rare things because it’s always a possibility. I went armed and ready to push for an ultrasound but the GP suggested it before I did so I’m really grateful we’re being listened to.
I’m fairly sure this is going to the cause of DD’s constipation and I’m hoping that fixing it means she’ll no longer suffer 🥰
I’ll update this thread throughout the process because I wished there had been one for us 🫶