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PIP / ADP for Chronic Migraine?

104 replies

greentape · 27/11/2025 13:53

I think I am going to have to apply for this benefit. I am currently so disabled by chronic migraine and struggling to function. Has anyone applied for Chronic Migraine and if so how did you find the process? Any advise?

OP posts:
Euphesia · 30/11/2025 12:09

greentape · 27/11/2025 21:46

I think this is the thing, my neurologist is a nice man but very, very busy and I know they tend to be very resistant at providing these kinds of letters as it could become a fulltime job to them. I don't ever have long with him and my GP isn't really involved with my treatment for migraine as it's all done via the hospital. Even access to my medical records is difficult I'm in Scotland and so unlike English patients I don't have access via the app and I have been met with resistance getting them before.

I am glad you got better help from the Nurses, I do see a migraine nurse so hopefully she will be helpful.

I don't know where you are in Scotland but my neurologist at Glasgow's QE is very helpful. Ask, what's the worst that can happen.

TaraRhu · 30/11/2025 12:12

I'm a migraine sufferer.I had about 2 a week. Botox solved it. Try that. BUT What you need is flexible employment not hand outs. Like others say pip is to help with independence. Theee both v pip could be used for during a migraine attack that would help. You can't claim for missing out on stuff. Sorry migraines are awful but not something that entitles you to money.

greentape · 30/11/2025 12:42

@TaraRhu I wish I only had 2 migraines a week, that would be a dream case scenario for me. I am trying Botox but as with most other Migraine treatments it doesn't work for all studies vary some show a higher rate of success at 70% others are as low as 25% success so if it is somewhere in the middle that is around 50% of people see significant results from Botox however 50% of people won't and usually for the most severe chronic sufferers like myself the the response rate is usually even lower and as with most migraine treatment including CGRP medications response often wanes over time, especially in the most severe, refractory sufferers which I am. So while I'd love for Botox to work I can't bank on it, I've been doing that for 20 year now. If I get a miracle recovery then great I'll cancel my claim.

I cannot hold down any job, my migraines are so frequent and severe that I've been told that my adjustments would be impractical. Attempts to work form home have all been terminated because I can't guarantee any amount of work time in any given week, or month. I'm limited to the time I can spend in front of a screen.

Most insulting of all is your statement that I'm claiming due to "missing out of stuff". That isn't why I'm claiming, I'm claiming for help with the day to day costs of living with a crippling disability to try and make my life a bit better and easier, if you resent that or disagree with it that your issues my only regret I should have done it years ago. Not sure why am am literally risking a migraine to even argue with someone like you so I'll stop now.

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greentape · 30/11/2025 12:53

@Euphesia I've sent you a PM.

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