Has anyone heard of Lipedema?

[firstofallimadelight]

I went to my doctors as I suspected I might have it. Gp had never heard of it and said it sounds like cellulite.
i wanted to know as i have chronic back pain and had read that it could be linked to back problems.
Is it actually a thing and does anyone know any real life experiences of it?

There was a documentary about this lady on Scottish tv, but it’s not on iPlayer now which is a shame. Here’s a bit about her
https://www.pressandjournal.co.uk/fp/lifestyle/health-and-wellbeing/4438101/lipoedema-skye/
https://m.youtube.com/watch?v=0-v6bYjY_u8

Hi just to let you all know I got my diagnosis this week. I went to a private clinic for assessment and the consultant is going to write to my GP too.
I have been advised to dry brush twice a week , moisturise daily . Eat an anti inflammatory diet and do low impact exercise . And wear compression leggings

Yes, it's definitely a real condition, although it still seems to be under-recognised. Someone I know was initially told it was just weight gain, but was later diagnosed with lipedema after seeing a specialist. If you still feel it fits your symptoms, I'd trust your instincts and ask for a referral or a second opinion.