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DD 18 & Urgent referral, worried sick.

63 replies

Allromanticsmeetthesamefate · 24/10/2025 18:10

DD just started uni in September so living away from home. She has suffered from heavy periods, crippling period pain and mid cycle bleeding for a few months but that this has got worse in the time she has moved to accommodation in a different city and meant that she had to make a GP appointment where they put her on the combined pill to try and regulate her cycle.

As well as making her very anxious and emotional they also didn’t stop the bleeding so she was sent for an internal scan which she had last week.

I got a call from her this morning at work in an absolute state as she opened the NHS app to check if update and it said Emergency gynaecology appointment, cannot rule out malignancy. I reassured as much as I could, it could be a lot of things, the likelihood of it being anything sinister at her age highly unlikely etc but she has since spoke to a GP who has confirmed she has been fast tracked for an emergency scan and biopsy and not now I’m really terrified and actually just quite sad that this is her 1 few months at Uni and she is going through it all this herself.

I wondered if anyone could reassure? The GP she spoke to was factual and kind but did say the results were very unusual for DD’s age and I’m not sure if I’m more or less worried.

OP posts:
Iwantamarshmallowman · 25/10/2025 21:04

My friend had these symptoms with endometriosis. My GP once referred me for a mammogram for extreme pain. my referal said suspect breast cancer. she told me she says eveything is cancer in order to get an urgent referral.

Geranium879 · 25/10/2025 21:16

How stressful for a young girl, I’m so sorry she is going through this. I just wanted to comment to say that I once got an urgent referral for a mole. It said “possible melanoma” and o was extremely stressed. The doctor then called me and said she thought it was benign, but had to write that on the referral or else I’d be on a waiting list for 12 months … and if she didn’t use that terminology the referral may even have been rejected. I did see a dermatologist who said it was benign. It was checked again a year later and hasn’t changed, still benign! Not hugely relevant but just wanted to share my experience of reading something horrific when actually the doctor just wanted to make sure I got checked.

Allromanticsmeetthesamefate · 25/10/2025 21:39

Thanks everyone for asking. She and I are very glad she is home and I have been able to give her cuddle, Felt grateful that DH got up at the crack of dawn to make trip to pick her up.

The pain is really awful, and stopping her sleeping, almost completely and the Mefanamic wasn’t touching it, I have been to Boots and picked her up Co-codamol (thanks to who suggested that) thankfully that let her sleep for a good 5 hours this afternoon and she has taken some more of the Mefanamic in between and more of stronger stuff before bed.

I'm really unsure what to do moving forward, she is due back in Uni on Tuesday (2 and half hours away) so definitely home until Monday but the pain is so awful and debilitating and her bleeding has started again…should she go back? If she needed some emergency care, anxiety gets on top of and obviously we are waiting on an emergency appointment coming through for her scan and biopsy which we will need to be there for and then there is the results…

Sorry if this is all a bit all over the place, I’m feeling very sad tonight and just don’t want her to be somewhere where she feels out of reach.

I felt very rational earlier on but realistically DD has these symptoms which have got progressively worse over 18 months, there is definitely something that isn’t right (classing endometriosis as quite serious and lot to deal with at 18) and we going to be in a situation that involves waiting on Biopsy results…

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Geranium879 · 25/10/2025 21:41

Can she speak to her GP and director of studies to try and have a bit of time off ? I think she is better off at home for now. Or she could even email them permission to speak to you, and you could try to sort it for her on Monday.

Aliceisagooddog · 25/10/2025 21:45

She should definitely contact wellbeing team at uni and her tutor etc to explain the situation and get time off. They are usually very helpful x

surprisebaby12 · 25/10/2025 21:45

Could it be endometriosis?

Herewegoagain8 · 25/10/2025 21:46

I’m sorry she’s going through this op - can she stay home till the biopsy results are in? From my experience of Mefanamic acid it is prescribed to stop/lessen excessive bleeding not for pain so she will definitely need pain meds on top. Wishing you and her all the best.

JeminaTheGiantBear · 25/10/2025 21:59

I really think she should stay at home poor girl. What a lot of pressure for her- she needs support. There’s usually a course tutor/well-being lead so I would agree between the three of you that she will email him on Monday & stay at home until she has the scan & biopsy results. I assume these will be done at the uni town so you will be driving her to them.
It is so awful seeing your child suffering. Please be kind to yourself.

miniworry · 25/10/2025 22:11

@Allromanticsmeetthesamefate I was diagnosed with endometriosis at the same age as your DD and I too had just started university away from home. In actual fact, it was thanks to the location of my university (Leicester) that meant I saw a specialist who was incredible and didn't just fob me off. I had all of the symptoms that your DD has. It was a lot to take on, I had a laparoscopy to confirm the diagnosis and then went on a 6 month treatement which involved me being put into the false menopause to help my symptoms.

Long story short, I had 4 endo surgeries before I was 30 (including 2 for ovarian cysts caused by endometriosis) but it honestly just became something I lived with and it didn't hugely impact on my quality of life at all, it was well managed. In fact once it was diagnosed I felt like a weight was lifted off and it wasn't just 'painful periods'.

I'm now a mummy at 35 to two gorgeous children (5 and 1.5) who were conceived totally naturally.

What I'm trying to say is that endo can be lived with even at your daughter's age if this is what it turns out to be, which given her symptoms seems quite likely x

Allromanticsmeetthesamefate · 25/10/2025 22:14

miniworry · 25/10/2025 22:11

@Allromanticsmeetthesamefate I was diagnosed with endometriosis at the same age as your DD and I too had just started university away from home. In actual fact, it was thanks to the location of my university (Leicester) that meant I saw a specialist who was incredible and didn't just fob me off. I had all of the symptoms that your DD has. It was a lot to take on, I had a laparoscopy to confirm the diagnosis and then went on a 6 month treatement which involved me being put into the false menopause to help my symptoms.

Long story short, I had 4 endo surgeries before I was 30 (including 2 for ovarian cysts caused by endometriosis) but it honestly just became something I lived with and it didn't hugely impact on my quality of life at all, it was well managed. In fact once it was diagnosed I felt like a weight was lifted off and it wasn't just 'painful periods'.

I'm now a mummy at 35 to two gorgeous children (5 and 1.5) who were conceived totally naturally.

What I'm trying to say is that endo can be lived with even at your daughter's age if this is what it turns out to be, which given her symptoms seems quite likely x

Thank you for sharing. Thats really reassuring. X

OP posts:
Comefromaway · 25/10/2025 22:21

it must be so worrying but they have to rule out the real nasties first (fo obvious reasons).

My daughter was diagnosed with Adenomyosis at 21 which is similar to endo. Mefanamic acid didn’t touch her either. She’d been like that since age 14 which is unusual for one so young.

Hope your Dd gets answers soon.

Hiptothisjive · 25/10/2025 22:26

I hope your daughters pain eases and they get to the bottom of it soon.

The point I haven’t seen is the emergency side - if there is something abnormal or they can’t explain or they don’t like the look of it is very normal and routine to be out In a two week emergency investigation cycle. This scared me a lot when it happened but it is the normal
procedure. It doesn’t automatically mean something sinister and it’s good they are moving quickly.

Hope for better news soon. .

Allromanticsmeetthesamefate · 26/10/2025 11:39

Made the decision to keep her at home until biopsy and scan and we have just phoned 111 as pain is getting worse, making her feel dizzy and sick and the co-codomal is not even reaching 3 hours.

Feel so sorry for her. She is so upset that she is missing her flats Halloween party and her 1st course performance.

OP posts:
buffyreboot · 26/10/2025 11:53

Be you period patches helped me a lot and a plug in heated stomach pad (Amazon have them fairly cheap)

I waited 2 years for my endo diagnosis and surgery so maybe phrase it to her as a good thing it’ll be quicker to get sorted whatever it is?

I had a huge endo surgery in May for mine

Jamesblonde2 · 26/10/2025 11:56

OP from my experience she may have endometriosis. You can get cysts too and they like to check the cysts are nothing dodgy, which is very rare that they are. I think she’s got endometriosis by the sounds of it. It’s good it’s been found now if so so she can treated and be more comfortable. Hope you’re both ok.

ChessBess · 26/10/2025 11:58

Sending love OP as it’s so worrying not knowing. The chances are it’s something benign given her age and sounds like endometriosis or similar. Hope she gets the results fast and you can relax. Keep us updated x

rainbowstardrops · 26/10/2025 12:06

Oh bless you all. I have no words of wisdom but I just feel for your poor daughter being in so much pain and missing the start of uni. I really do hope you get some answers soon and your DD can be helped asap 💐

Wobblyheart · 26/10/2025 14:29

Just wanted to say I had endometrium of 19mm and heterogeneous, I am nearly 40, it cleared on its own. Obviously, I don't know what else they had seen there on the scan but I hope it will be good news for your daughter. Cancer would be extremely rare at this age.

Wobblyheart · 26/10/2025 14:29

Oh yes and I have adenomyosis

TheLivelyViper · 27/10/2025 16:22

@Allromanticsmeetthesamefate She very likely has adenomyosis, particularly from the scan results. She could have endo, but you'll need further investigations for that. Also, it's important to have things to bring up, but this is early in the diagnostic process. Also, it could be other things, so don't narrow it into too much, too early. Wait for the biposy and scan results and see.

Heterogeneous means it doesn't look uniform so the texture appears patchy, speckled, or irregular.* There are two types of adenomyosis (focal - so like blobs across the uterine muscle or diffuse - small bits spread across all of it)*. There's also certain cysts, but that can occur with either). So something like speckled is likely more diffuse.
Adenomyosis is when the uterine lining invades deeper into the muscle. Adenomyosis is localised to the uterus only unlike endometriosis which is not in the uterus at all because it is by definition tissue similar but not the same as the endometrial lining across other organs in the body. So fallopian tubes, ovaries, bowels, bladder. It is different for every person.

Does she have any other symptoms? Like pain with sex and insertion to the vagina, severe vomiting and nauesa, constipation and/or diarrhoea.

I recommend trying the mirena as it will make the uterus lining thinner so there is less bleeding and less cramps as there's less blood vessels there. It will reduce the bleeding and often stops periods for some people over time. There are things like licodaine, numbing gel that can be done for insertion.

Also ask the GP for a higher mefenamic acid and/or naproxen or a different NSIAD (NSAIDs, which help a lot as they are anti-inflammatories and give pain relief). Some are better for some people than others.
For the heavy bleeding use tranexamic acid (helps reduce heavy bleeding).

In terms of possible conditions (cysts, endometriosis, etc). It is split into two overall types in gyne 1. Primary dysmenorrhea (heavy bleeding and painful periods with no condition or cause or 2. Secondary dysmenorrhea so a condition e.g endometriosis or adenomyosis causing it.
Then if ultrasounds pick up on anything (pelvic ultrasound or transvaginal) you may need to have an MRI to see endometriosis (more are able to do it now, especially with more training for consultant radiologists).

However, the only way for definite diagnosis is a laparoscopy and then they will often excise the endometriosis tissue if they find it etc. But endometriosis is a chronic illness and cannot be cured, after surgery it will grow back, it cannot be excised from everywhere to leave organ functioning intact and then post-surgery adhesions often form.

The main symptom of endometriosis is not actually period pain because endo is not a period condition - it's a whole body inflammatory condition where the endometriosis tissue even produces its own oestrogen and the pain is felt throughout the month not just when on your period.

Main endo symptoms:
• Irregular or heavy periods
• Pelvic pain
• Pelvic pain on opening bowels (dyschesia) and wider gastrointestinal symptoms (diarrhoea and constipation)
• Pelvic pain on passing urine (dysuria) and bladder symptoms sometimes
• Referred pain to the tops of the legs or back
• Fatigue
Mangagement can look like pain medication depending on how severe your pain and symptoms are (can be opioids - often used more temporarily and obviously as little as possible, NSAIDs) and contraception and hormonal treatments.

The links below have much more detailed and useful information.
https://www.nhs.uk/conditions/adenomyosis/

https://www.leedsth.nhs.uk/patients/resources/endometriosis-2/

nhs.uk

Adenomyosis

Find out about adenomyosis, including symptoms, what to do if you think you have it and how it's treated.

https://www.nhs.uk/conditions/adenomyosis

Yellowsubmarine55 · 27/10/2025 17:46

These are classic symptoms of endometriosis and adenomyosis and a biopsy is taken to rule out anything nasty and is usually done as a precaution.

I was diagnosed with both about 20 years ago in my 20's and before diagnosis it was awful pain wise so my heart goes out to your dd that she's in so much pain.

I used to have to plan my life around the time of my period as the blood loss was horrendous.

Anyway I hope you get answers soon and the only thing that gave me relief was the progesterone only pill or the mirena coil works the same as it turned my cycle off.

All the best x

Clearinguptheclutter · 27/10/2025 17:52

How worrying for you both hope you get answers sooon

i’m the other end of the age spectrum but I’ve recently developed adenomiosys and symptoms do sound similar. Along with it’s very common. I’m about to start with mirena coil to see if that helps.

Allromanticsmeetthesamefate · 27/10/2025 20:27

Hello thanks all, still hanging in, just. Another call to 111 last night for advice as DD woke us in an absolute state from the pain, it’s absolutely soul destroying when it comes on like that and felt completely helpless. They told us to add in ibuprofen to the mix which was enough to send her back to sleep with the Co-codomal. Unfortunately although she had been prescribed naproxen and 500/30 Co-codomal it is out of stock in our chemist.

DD got an update from NHS today to say to quote an number to the Gynae clinic to make an appointment for her biopsy but unfortunately the clinic just had an automated message saying please allow a further week for them to get back to her with a date/time. DD has been very emotional since as the thought of going on for another week or so like this doesn’t feel possible.

Can I ask those in the far better know than us that DD’s OG scan results say that whatever they are looking at is “intrinsic vascular” which I believe means it has its own internal blood system and/or blood flow, could that still be any of the above mentioned likely outcomes?

OP posts:
miniworry · 27/10/2025 21:14

@Allromanticsmeetthesamefate

'Intrinsic vascular' just means the area they’re looking at has its own blood flow showing up on the Doppler scan. That’s really common and not necessarily a bad thing at all. Most tissues in the womb, including completely normal endometrium, polyps, and fibroids, have their own little blood supply, so it’s just a descriptive term.

It doesn’t automatically mean anything sinister. Polyps, for example, often show up as “vascular” because they usually have a small feeding vessel, and even hormonally thickened lining can look that way. The radiologist is just noting what they see so that the biopsy and follow-up can be as accurate as possible.

So yes, it can still absolutely fit with any of the more likely, benign possibilities people have mentioned (polyp, fibroid, hormonal changes, hyperplasia, etc).

I know the medical language makes it all sound ominous, but in young women, the odds are still overwhelmingly on the side of something treatable and benign. Hopefully the biopsy will just confirm that and let your DD move forward and start feeling better.

miniworry · 27/10/2025 21:19

@Allromanticsmeetthesamefate

Just to add, both adenomyosis and endometriosis can sometimes show blood flow on scans too, so intrinsic vascular could still fit with either of those. Adenomyosis especially can make the womb lining look thickened and patchy, with a bit of internal vascularity showing up on Doppler. Both conditions are benign, though they can cause the heavy, painful, irregular bleeding your DD’s been having.