I will try and type this as succinctly as possible - I am hoping for some help because I don't know what I can do next.
For 10 months I have been dealing with an intense stabbing pain in my lower right abdomen paired with bloating, nausea and issues with my bowel movements. Over time it has become much worse and I am now at the point where I have a significantly reduced appetite and I am starting to lose weight because of this. The stabbing pain has also started spreading to other areas, such as under my ribs on the right side. Painkillers do not help me with the pain.
Waiting lists have meant that the process has been long but IBS, kidney stones, muscular and gynaecological issues have been ruled out.
I have been under the colorectal surgery team - I had a colonoscopy in August and they found a small patch of inflammation in the opening of my appendix. My GP recently said that the biopsies confirmed this was active inflammation. I have since had a kidney ultrasound that has also found my spleen is enlarged. I was thinking we were getting somewhere and had a morsel of hope.
I have been chasing Colorectal up for a follow-up appointment to discuss the findings and because my symptoms and pain have become unbearable. I have been to A&E a few times when the pain has left me incapacitated - but my CT scans have been clear so I have always been discharged for the consultants to deal with. GPs also say they can't do anything and it is in the consultants hands.
This evening, I received a letter saying 'great news - you're fine and you have been discharged'. I don't know how to process it or put into words how frustrated I am. They haven't addressed the inflammation or enlarged spleen. I can no longer cope with this situation and I am questioning if I am crazy.
Surely they should have followed up because of the pain, worsening symptoms, active inflammation and enlarged spleen? Surely not everything can be seen on a CT scan? I have only ever been phoned by a registrar - the colorectal team have never seen me or examined me in person. I really feel like I am not being taken seriously. I am at a complete loss and It is not an option to go private. What is my next move? I am mid-30s if relevant. Any reassurance that this might be sorted one day would be much appreciated too, really losing hope.