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What is the solution for children who don’t fit mainstream OR special school?

53 replies

SENCOhelp · 15/09/2025 10:15

My DS recently turned 5 and started in year 1 last week. He has SEN, nothing officially diagnosed but he isn’t NT and it’s very clear to see this compared to both older DS and his peers.

In reception I would say he thrived. He enjoyed exploring provision but also took part in some of the learning I.e phonics group and a maths group. He is ‘non verbal’ in a sense, though his speech is improving constantly and he is now beginning to communicate more with us so as I have always felt, this is just a matter of time.

He is very bright- can read full books and also knows most times tables, can do crazy addition mentally etc. The school often underestimates him and are still sending sheets with the most basic phonics on and ‘red words’ like ‘the’ when he can read entire Julia Donaldson or Supertato books and does every night at bedtime. I have requested reading books multiple times but get ignored. Not sure if they think I’m making it up so I’ve started recording him reading to show them which may sound unhinged but I’m tired of him being underestimated.

Anyway, it’s been one full week in year 1 and I was hauled into a meeting today with the new SENCO lead (changed 3 times in a year) to explain he isn’t setting into year 1 at all. The trust transitions abruptly from play based learning in reception to expecting them to sit behind a desk most of the day in year 1 and so naturally, he’s struggling with this. My older DS also struggled and complained for months about hating it and finding it boring. I remember him becoming quite upset one day because in art they were no longer able to paint whatever they chose and instead had to paint what was requested. It’s a shock to the system when they’re still only five so very small I feel.

I did remind her it’s only been a week but she’s adamant already that he won’t slot into their way of doing things. She admitted he’s clearly intelligent and isn’t special school level but that he needs 1:1 and they can’t provide this. My question is what happens with children who fit somewhere in the middle? Or is it just this particular school isn’t right for him and I should be searching for one with more play based learning in year 1 and 2?

I would consider homeschooling but DH and I work FT in hectic careers we need in order to keep financially afloat.

OP posts:
flawlessflipper · 15/09/2025 18:45

Some ASD SS will admit without a formal diagnosis. Some require a diagnosis but not all.

MrsPengiuins · 15/09/2025 20:44

It's incredibly difficult. We went the EHCP route but has been an absolute nightmare for us with disastrous outcomes and wish we had paid to send him private. If that's not an option then you stand a much stronger chance if you pay for private assessments. You will have to fight the LA for everything and probably everything will need to go to appeal. Lots of kids like this in my area out of education and NEET. It is expensive, it cost me my job with a 6 figure salary, the stress I believe gave me cancer and my child was so distressed by lack of provision by LA he ended up hospitalised for 8 months where he nearly died as given wrong drugs. He was very like your son. Zero lessons have been learnt. If I could go back in a time machine would never have got EHCP and would have gone private and he would be off to university now. Instead he's Neet, benefits are generous but I would give those and everything we own not to have this really awful outcome for him. I know some on here may out it's easy, it's not unless you are a lawyer or can pay for one plus all the assessments. It's hell on earth and both me and my child were treated like we were sub human. Avoid Cambridgeshire. Biggest mistake we made moving here.

Disappearingteatowel · 19/01/2026 09:41

Does he have SLT? My recommendation would be find a really good private one (if you can afford, state SLT in our area is sadly woeful). We got a massive amount of value from ours, diagnosed Gestalt Language processing and communication delay. They also did sessions at nursery then school to also assist staff. Our DS is also 5, yr1, state mainstream with EHCP. Happy to DM if I can help more.

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