Meet the Other Phone. Only the apps you allow.

Meet the Other Phone.
Only the apps you allow.

Buy now

Please or to access all these features

Chat

Join the discussion and chat with other Mumsnetters about everyday life, relationships and parenting.

Ds Cardiology situation if he moves to Uni

10 replies

siliconcover · 02/09/2025 12:58

Ds had heart failure last summer. Since then he's had 4 Cardiac MRI's. Waiting on results of last one for him to have the confidence to go through Clearing & move away (time very tight now). He would be happy to have a new Cardiologist as current one not good (we're in Scotland & getting access to results very hard)
His current GP will only prescribe his current meds if he is under a Cardiologist.
Hopefully a new GP would be fine to keep this script going?

I emailed Consultant sec but no reply. So frustrating. Does Ds just 'go for it'?

OP posts:
Peptalk2025 · 02/09/2025 14:00

No random online should be stupid enough to give you the go ahead for you to tell a cardiac patient to just 'go for it's without proper medical advice. I have no idea why you're even asking!

CheeseDanish · 02/09/2025 14:02

Are you saying he is planning to leave the country to study? Why wouldn't he just stay under his current cardiologist? My UK-based godson had a heart condition in his teens, and went to university in Ireland, transferring to a new cardiologist when he did so.

oldclock · 02/09/2025 14:03

When he moves, his current cardiologist should refer him directly to one in the area where he will be living, and keep an eye on him until the first appointment with the new one. Uni GP likely to be happy to prescribe on that basis, unless v v unusual meds.

Interested in this thread?

Then you might like threads about these subjects:

SummerFrog25 · 02/09/2025 14:13

I'm sorry to hear about that, must be terrifying for all of you 🤗 (I wish there was a less smiley hug!)

I too would assume his current cardiologist would refer him to someone near his Uni if he feels it necessary (can't be done via phone calls/apppointments in holidays).

looking at it realistically, he can't always live where he does now because of his cardiologist can he?!

personally I'd go for clearing & try to get a place. Surely at the very worst he'd end up deferring?!?!

ScaryM0nster · 02/09/2025 14:26

Quite a few students remain registered for medical stuff at their home address. Compared to the full calendar year tye academic year could be very short.

If getting home for an appointment if required is vaguely feasible, then I’d say carry on, and ‘just’ have the base plan of staying with home services until sort a better plan.

siliconcover · 02/09/2025 14:46

@Peptalk2025 fair enough (though perhaps realise the post is coming from a place of semi-desperation?)

Ds was told that he had recovered from LVSD Heart Failure (PeriMyocarditis)
But Consultant keeps doing MRI's 'just to check'. Results usually ambivalent. Therefore kept on 'a beta-blocker type drug' which is Ivabradine (Ds has PoTs - a different Cardiologist dianosed this, 1st one is grumpy about it. The Ivabradine helps - a bit - but not enough for Ds to feel properly better - therefore a new area Cardiology referral might be very helpful indeed. GP has said that Ds defo needs to stay under a Cardiologist re Ivabradine prescription & monitoring (he initially refused to prescribe it, even after Cardiology req. (at end of 1st box GP went on holiday so Ds ended up having a 7 day break whilst new supply sorted)

We recently made a formal complaint (on advice of PALS). This is not responded to yet. There is no love lost. They will not want Ds to stay local.
I expect they will now discharge asap so we'd have to start again re Cardiology.

Cardiologist just emaled Ds: 'no results available yet. If you wish to stay on Ivabradine you'd have to ask new GP'. So, not much help at all for poor Ds.

OP posts:
Peptalk2025 · 02/09/2025 17:27

siliconcover · 02/09/2025 14:46

@Peptalk2025 fair enough (though perhaps realise the post is coming from a place of semi-desperation?)

Ds was told that he had recovered from LVSD Heart Failure (PeriMyocarditis)
But Consultant keeps doing MRI's 'just to check'. Results usually ambivalent. Therefore kept on 'a beta-blocker type drug' which is Ivabradine (Ds has PoTs - a different Cardiologist dianosed this, 1st one is grumpy about it. The Ivabradine helps - a bit - but not enough for Ds to feel properly better - therefore a new area Cardiology referral might be very helpful indeed. GP has said that Ds defo needs to stay under a Cardiologist re Ivabradine prescription & monitoring (he initially refused to prescribe it, even after Cardiology req. (at end of 1st box GP went on holiday so Ds ended up having a 7 day break whilst new supply sorted)

We recently made a formal complaint (on advice of PALS). This is not responded to yet. There is no love lost. They will not want Ds to stay local.
I expect they will now discharge asap so we'd have to start again re Cardiology.

Cardiologist just emaled Ds: 'no results available yet. If you wish to stay on Ivabradine you'd have to ask new GP'. So, not much help at all for poor Ds.

Semi desperation is one thing but your son's safety is clearly far more important. Do you honestly trust random internet strangers with his heart health?

TuesdaysAreBest · 02/09/2025 17:41

ScaryM0nster · 02/09/2025 14:26

Quite a few students remain registered for medical stuff at their home address. Compared to the full calendar year tye academic year could be very short.

If getting home for an appointment if required is vaguely feasible, then I’d say carry on, and ‘just’ have the base plan of staying with home services until sort a better plan.

This is a bad idea if there is ever the possibility of a home visit being required. Students should be registered where they spend most of their time. For most, that will mean university. They can, if need be, see their family gp at home by registering as a temporary resident.

turkeyboots · 02/09/2025 17:44

DS will stay with his excellent gastro consultant regardless where he goes to college. But in your circumstances I'd be looking up cardiology centers of excellence and looking for a university nearby. Its a great chance to move into a hospital catchment.

siliconcover · 02/09/2025 18:17

@Peptalk2025clearly I will abide by medical advice. I'm posting here as that is proving hard to access (&, as above, not consistent) so I wanted to chat it through. If you have anything helpful or supportive to add that would be great.

OP posts:
New posts on this thread. Refresh page
Swipe left for the next trending thread