Need a massive handhold. Ds has collapsed lung and portable rare syndrome

[MoSalahsBeard]

Posting here so I can cry and rant to someone because it’s just me and ds in the hospital at the moment.

it all happened on Friday night, and yesterday am we found out he has a spontaneous collapsed lung. Now being moved elsewhere for a chest drain. They’ve also found a heart murmur and that is aorta is an unusual shape which points to a syndrome, along with other things, the syndrome causes eye problems, heart problems and spine problems. I’m so sad but I can’t cry in front of him. I keep welling up and having to swallow it down. He’s 14 and already had a lot of health issues and neurodiversity to deal with. It isn’t fair.

Sending love and hugs.

Oh your poor boy. And big hugs for you.

He'll be well cared for in intensive care; they'll look after him and give him what he needs to recover.
You still need to look after yourself: you can't be strong for him without taking care of yourself. Is there someone who can be with you?

thinking of you all xx

I’m praying for him op. Stay strong, intensive care nurses and doctors are amazing. Sending your precious boy every good wish

Thinking of ye. He is in the best possible place now. Sending you hugs and prayers .

So many of us are holding you and your boy in our thoughts tonight. I really hope he starts to pick up very soon. Much love xx

I’m so sorry OP you must be out of your mind. Thinking of you x

He’s safe x

Intensive care is excellent If he needs careful supervision he’ll get it Just breathe and have a cup of tea and try to rest. You’ve got an army of folks holding your hands here

Thinking of you OP. Sending you strength and the support of MN. Intensive care will give him the best support.

Sending virtual.hugs.
I'm sorry, this is not fair and so scary.
The medical team will take good care of your boy. ICU staff are incredible.

Rant and rave on here if you need. It's totally OK to cry. There'll be someone here to virtually hold your hand.
You are doing amazing, supporting your boy. It's incredibly hard.

Thoughts and love with you guys.

Another virtual hand hold here. He's in the best place for the best care.

He is in the best possible place being cared for by an amazing intensive care team. Try and get some rest it's really important ❣️

So sorry to read this. I’m wishing your son well. He is in the best place to help him.

I'm praying for your boy, sending strength

I hope he turns a corner soon. Take care.

Oh that's heartbreaking. I'm so sorry he's so unwell. Wishing your son all the very very best.

Really thinking of you ❤️

Think of you all and sending love and blessings xx

Oh I am sending you and your lovely boy so much love. I hope you get more positive news once things are stabilised in ICU.

Edit. Posted too soon x

Thinking of you OP xx

Just wanted you to know you are all in my thoughts, x

Sending love and prayers OP x

Oh, love. The intensive care team will take such good care of him. Had he already got his chest drain in? Sometimes they can block, or need jiggling around to work properly, or suction on them. This must be so scary for you, but this sounds like something ITU would usually be able to sort. Thinking of you.