so sick to my stomach.
i was diagnosed with a neurological genetic condition 20 years ago. It’s always affected me slightly but my balance and how far I can walk has got worse in last 3 years but I get by ok. I have a good working from home (mostly) job.
in the last two years I’ve had to spend a lot more on things to help my health and decided that I would apply for pip as I currently cannot afford a car.
pip assessment went well my husband was with me and explained the help he provides, that we have a helpful family and a cleaner once a week, the assessor asked about our 3 children ages and when I eldest is 11 and youngest 8 she said they’ll be able to help more now then and I didn’t think anything of it and said yes they are about tidy after themselves a bit more now and eldest sometimes helps me out washing away.
the assessor then asked if they were in carers support groups! I said no. She said she would be speaking to the safeguarding officer to see if I needed a social services visit.
I said they don’t provide any care for me or do anymore than other children (probably less!) they just tidy up rooms and sometimes help with putting washing away all other cleaning is done my husband cleaner or me. She that’s fine I’ll still need to flag.
I feel worried sick that social services will knock on the door. I mark my condition from my children they understand I’ve had operations and I’m not spotty by any means but I just say I’m getting old I don’t say I’m disabled ever.
in so scared about social services coming round upsetting the children.
as much as that money would make a difference to our lives I wish I’d never applied for it now.