*New* study’s findings re: M.E/CFS

[Sodastreamin]

The University of Edinburgh’s ‘DecodeME’ scientists have just completed a (government funded) DNA study into patients diagnosed with M.E/Chronic Fatigue Syndrome (CFS) and have published their results. It’s NOT imaginary and it’s NOT associated with Depression nor Anxiety.

I have recently read some truly horrifically ableist comments re: ME/CFS on MN, in addition to the usual “It’s not real/They’re just lazy/it’s mental illness” bullshit you see whenever ME gets mentioned. So I had to come on here and share these results and hopefully help more people to understand that this awful, soul destroying condition is NOT considered psycho somatic anymore by the NHS. It just isn’t and this is as close to proving this as we can ever physically get. I also hope any MNetters with ME who haven’t yet seen this report, will see this and feel some relief that progress is being made towards one day finding effective treatment/s.

I personally donated my own DNA (it was all anonymous in that they don’t attach it to your data) as I have lost my much adored & extremely passionate career to ME and I’m still grieving that loss almost 20 years later. It’s destroyed most of my entire life and I’m not one for the dramatics.

I’ve linked the full report and added screenshots where the findings are summarised.
Please, I beg of you, if you personally know anyone with ME/CFS then please please at least read the summarised findings on the screenshots.
Thanks

Report: https://www.research.ed.ac.uk/en/publications/initial-findings-from-the-decodeme-genome-wide-association-study-

I really hope they find out more about what causes it and how to treat it. At school, there were 3 girls with ME/CFS, including a friend of mine. I'm sorry to hear how it has impacted your life. Thank you for sharing.

Thank you, that’s kind. I know I’ll get abuse from one or two but it’s worth it to ‘spread the word’ as it were 🙏

Commenting again in the hopes that more people see this…………!?!

I'd be very careful about the conclusions you draw from this kind of correlation.

What exactly is that meant to imply? That you don’t believe it?! 🙄

I'm living with ME. It's a dreary business, but, four years in, I think that I've got a reasonable handle on it. I no longer try to push through the crashes, eat better and accept that I have had to modify my previously very active life style. The last change has been the most difficult. Thankfully, I'm retired from my very demanding career.

Yes it is a balancing act, isn’t it? I would describe it as having to compartmentalise your activities to ration your energy! I was diagnosed in 2003 and I still rarely get it right, though I do also have Parkinson’s disease so I can’t blame everything on ME!
I truly hope you’re enjoying your retirement, you’ve worked harder than most, that’s for sure! 💜