Anyone have any knowledge or experience of Misophonia

[TheNightSurgeon]

I'm pretty sure this is what my 8yo dd has.

She's always getting angry at things that are reasonable noise level, chewing, washing up noises, she can't talk if someone else nearby is talking etc, she's getting stressed about going back to school after the summer in case her class is too noisy.

I've bought her the noise cancelling headphones, and they work to a degree.

This isn't something to go to the doctors about is it? What can actually be done?

If anyone here suffers from it, and you feel confortable sharing, could you tell me what it's like and how to help my dd. I have no experience of it so I don't understand it really and I would like to.

The other difficulty I have is that dd will scream in a really loud pitch when someone is chewing too loudly or whatever, and I have a dd who has a condition which causes seizures if there's a lot of stress or noise, so as you can imagine there's a lot going on here and it's getting worse and harder to manage as she's getting older. She can't help the screaming, but it means my other dd is having more seizures, we can't eat together at all anymore and other day to day life is getting harder too.

Thanks for any advice.

My DD was referred to occupational therapy from her pediatrician for over reaction to noise.
They start with exposure therapy and go from there.

I live with misphonia and Auditory Processing Disorder (APD) which is a lovely side order with stealth dyslexia. There is a little bit of research that there is some connection between Misphonia and APD but it's not well understood.

If your DD can't talk while others are DD may have APD, in very basic terms in APD everything is turned up to 11, you can't lower the noises around you to focus on the one thing you need to listen to. I personally stop being able to process language when it gets noisy and tune out of the world because you literally cannot think and yes it makes you angry in a way you cannot express properly I'm a middle aged woman and still can't describe it.

I can't find the words for the inability to process language, the best I can do it say it feels dehumanising. Few people understand that feeling, I hope that they never get the opportunity, it's awful. You can't read, speak, hear, understand, or even visulalise.

I can't wear headphones because the one thing I really hate is being even more fucking isolated from the group, headphones are isolating. They work for some but not others.

Asking people to eat properly and not talk with their mouths full helps, as can some music or low level noises (TV etc) to cover chewing noises but not conversation. Otherwise I remove myself and eat alone with a bit of noise because I can't stand myself making eating noises let alone anyone else. People talking with their mouthful makes me want to vomit, I obviously don;t tell them this and manage to muddle through the occasional meal with people who don't know me well enough to know I really want them to stop making that noise and close their mouth to chew while trying not to beat them to death with a chair leg

There isn't much you can do, I was late diagnosed and developed my own techniques but I cannot say whether they will be affective for your DD. What is certain is the current methods suggested are developed mostly by people who don't have it or understand it because I'm not sure it is easy to understand even if you do experience it.

That's tough.

I've had misophonia since childhood but I've never screamed.

It does make me very very tense though, and snappy. Maybe you can work with your daughter on another way of dealing with triggers that won't impact your other daughter.

Finally learned I have it. What an eye opener to why I have had years of stress.. Currently take medication to help me sleep. Any noise has palpitations set in. Terrifying..

Does she show any signs of having autism or ADHD? They often coexist. I have all 3. Lucky me. It’s debilitating and affects my life so much (the noise, that is). The GP told me to find ways to manage it but if it were my child I’d be seeking professional help so that things hopefully improve for her. It’s a really awful thing to have.

As others have said, I think this is more than misophonia. I have that and it makes me very tense & stressed and I cant concentrate (because I'm resisting the urge to rip your head off and bounce it round the room... Luckily I haven't yet).

I only have one trigger though. I've managed it by managing my stress levels (I can cope better if I'm less stressed), telling people about it in advance so i can then ask them to not do x, headphones in public places where I can't avoid it (eg trains, office).

Could be sensory processing disorder(SPD), and worth asking your GP for a referral for an assessment for both SPD and auditory processing conditions.

Thank you all.

I have 2 dc with autism, and I do sometimes think I see signs in my youngest too, but it's quite tricky at her age, with my older two it became apparent when they were in the 10-12 age range.

It makes things more difficult to tell at home as well because my home is very set up for the needs of my older two, so she wouldn't struggle with a lot here if she is autistic (if that makes sense) and sometimes I do wonder if the signs I see could be learned behaviour from her siblings.

This hearing thing is getting worse and worse, she hates a lot of noises, but also needs background noise as well, even to sleep she needs music or something on.

I think I will take her to the doctors and get referred for a hearing check at least.

She is clearly struggling and I'm doing my best to help her, but I'm finding it tricky to know exactly what to do.

Same.

I simply ate dinner very quickly to avoid the (to me) disgusting sounds of the rest of my family eating.

In the mornings, I timed my arrival downstairs to leave me just enough time to eat while everyone else was getting shoes and coats on. I left my shoes and coat and bag all ready the night before so I could be out the door with the rest.

Still.cant stand the sound of people eating noisily (any sound at all means noisily to me) and trained my DCs to chew with mouths closed. I can't stand sniffling either, so they all learned to blow their noses. Snoring - divorce (though there were many other reasons ahead of snoring for that).

I have misophonia - have had it ALL my life. It’s horrible. I also have ADHD. Misophonia often occurs with other ND conditions so I would be considering this, especially if you have two DC with a ND diagnosis already. Two of my 4 DC are ND but their presentations are completely different.